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Worried for the future of my disabled son, I have a few questions!
Hi, I'm hoping someone who has been through this before can help me. My son has autism, epilepsy and a genetic condition. We had a meeting with his geneticist this week so said we should prepare ourselves that he may need care for the rest of his life. Now, I just can't stop worrying about the future for him. I am his full…
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Carers Allowance under Labour
I seem to remember a promise from Starmer at Elections - something about Carers Allowance being increased ?Yet - looking at the Manifesto now - I see nothing beneficial "On unpaid carers – including Carer's Allowance, back payments and cliff-edges We asked: Will you improve help for unpaid carers? Including... Q Those on…
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Carers allowance
Bit of a long one, I receive carers allowance for my mum who has mental health problems due to a horrific attack that left her body burnt and threatened with a shotgun. she receives disability, housing and council tax support. The carers allowance is taken off my UC which is a top of my wages. Because I receive carers…
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Prescription Delivery Service
I am diagnosed with a lot of health conditions and require 9 regular medications. I am finding it very difficult to get to my local pharmacy to collect the medications and they will not deliver. I have previously tried one online pharmacy but had problems with them not supplying the medications i need on time. Can anyone…
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Am I On Facebook And Do I Wear Glasses (Pip Assessor Question)
I am deeply concerned with the questions I got asked near the end of my assessment on the 9th-October-2024. Just a few minutes before my assessment was almost done. The lady asked me. 'Do I go on Facebook, and do I wear glasses?' My reply was. I do go on Facebook, but not often. I only go onto my personal page 5 times a…
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Disabled Facilities Grant - Do I have to have the design that my Council wants me to have?
Just starting application My council wants me to have a wet room. I would prefer one of those walk in sit in bath/shower combination with water spa. The water spa would help with my legs. I'd like to keep the separate toilet and have bars fitted to help me get on and off the toilet. Can I choose what I want?
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Giving updates to PIP
Hi can those who have had interaction with PIP respond please. Mean comments not welcome I'd like to know how your calls have gone when you ring PIP to give an update. I've rang today for the second time and the person on the phone only seems concerned if things have gotten worse. A friend has had a similar experience.…
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Discount card/scheme for people with Disability with broadest range of shopping discounts
I'm looking to find which discount scheme for people with a registered disability has the broadest range of shopping discounts, especially online. Or the scheme who has the most members even if the shopping range is not as broad. Entertainment/Days out discounts also of interest. Ideally real world experience from someone…
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Disabled Persons Trust / Trustee Bank Account
I am setting up a Disabled Persons Trust for my adult daughter. It will be a 'live' trust to allow gifts over the years but also to receive her inheritance when I pass. An account or accounts need to be associated with the Trust Deed to hold 'property'. I am at my wits end as the banking industry appears to have withdrawn…
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Claiming Attendance Allowance for profoundly deaf 91 year old.
Hi all, My Father is 91. He has been diagnosed profoundly deaf for over 20 years. Additionally, he suffers from Tinitus which affects his balance, he has a heart condition and is quite frail. We recently applied for Attendance Allowance to help us support him but last week we received a letter saying no because 'he did not…
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Really good experience of Sunflower lanyard
Just to say I've been on holiday with a very deaf sibling, who wore their Sunflower lanyard while travelling. This was picked up quickly by airport staff, and we were ushered through the express lanes at check-in etc. It's for any hidden disability: if you haven't come across it before, details are here:…
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Recommendations for accessible vehicle hire in the Rushmoor south region?
Hi, I am trying to sort out a hire vehicle over Xmas to transport my wheelchair-bound mother around for a week or so. The regular websites don't seem to mention this option. Do you use a hire company? Can you recommend one? Thanks
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Disability Living Allowance State Pension and Winter Fuel Payment
I think the answer will be a definite "No" but asking, just in case. Is a pensioner receiving State (Retirement) Pension and DLA for longstanding disability but not receiving any means tested benefit likely to be eligible for the Winter Fuel Payment? I saw somewhere (might be an out of date source) that DLA was a…
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DVLA car tax
Hi I'm disabled and receive higher rate PIP. I no longer drive but we have a family car. Am I right in thinking that I can’t apply for the free tax as my husband uses the car?
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Personal Pension And Care Package
I have a personal pension as yet I haven’t drawn down from it, the plan was when I reached 65 I’m now 62 Will it be classed as part of my investments for a financial assessment in regards a care package or disregarded
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Advice RE Respite care
It would be great to hear from anyone who has had similar experience. I am very new to all this. My Partner cares for her Mother and we are planning on applying for some Respite Care so we can have a holiday which otherwise wont be possible. I haven't started the application yet. I was wondering about it and thinking about…
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Bridging loan for care home fees
Hello, A relative of mine moved into a care home earlier this year and we have since been trying to sell her house. The house sale is going through but is taking a long time and my relative has now run out of money to pay the care home fees, so relying on the money from the house sale. I don't think we will have a…
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Stairlift no longer Needed
Hello, My partner relative had a stairlift fitted however its been over a year since her relative has passed away. So the household has decided to sell the stairlift. I believe they paid £5-6000 (excluding labour fitting charge) for the Handicare FreeCurve curved stairlift than runs on rechargeable batteries that features…
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Bank Card - Autistic People
Does anyone have any advice regarding getting a bank card for an adult with Autism? They are non-verbal, and don't have capacity to manage their own account/finances. They access the community with support staff, and historically have always used cash with staff supporting / managing this for them. However, the past few…
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Increased attendance allowance with deprivation of liberty in a care home?
Hi All Just looking for some help / advice - couldn't find this anywhere else My mother is in a care home and the subject of a deprivation of liberty order (due to dementia), she currently receives attendance allowance at the lower level (from before she was admitted into the home) Does the fact she is subject to this…
