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Embracing the new family dynamics and looking forward to the future with optimism
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SingleSue said:Re music, that was the key to balancing middle son's autism, not listening to it but making it. At first it was getting his anger and frustration out on a drum kit but then it was discovered he had a real talent for it, not just drums but as a multi instrumentalist and vocalist. For high school, he even had music practice times built into his statement to keep him on an even keel.
He went on to study music at university...and it is still the thing that keeps him on an even keel.When I die I will know that I have lived, loved, mattered and made a difference, even if in a small way.8 -
Savvy_sewing said:SingleSue said:Re music, that was the key to balancing middle son's autism, not listening to it but making it. At first it was getting his anger and frustration out on a drum kit but then it was discovered he had a real talent for it, not just drums but as a multi instrumentalist and vocalist. For high school, he even had music practice times built into his statement to keep him on an even keel.
He went on to study music at university...and it is still the thing that keeps him on an even keel.We made it! All three boys have graduated, it's been hard work but it shows there is a possibility of a chance of normal (ish) life after a diagnosis (or two) of ASD. It's not been the easiest route but I am so glad I ignored everything and everyone and did my own therapies with them.
Eldests' EDS diagnosis 4.5.10, mine 13.1.11 eekk - now having fun and games as a wheelchair user.12 -
The boys went for the ride with their old Foster Dad and his daughter, and I got to relax and chat with the Mum in the garden over a glass of non alcoholic Pims. When they got back from the train we had a picnic lunch in the garden and sat chatting for hours.
They complemented me on how much better behaved they were, their manners and the vocabulary of both of them.It was lovely to talk with them, and when Dgs1 saw them he ran straight to the fella, calling his name and hugged him so much. It was a really good day.The boys both fell asleep in the car before I had gone 5 minutes.
I detoured to drop off my Mums Crisps for her and then came home.
they loved the train and came home with something each from the shop.
I felt very spoilt having someone making lunch ( although I did help make some sandwiches and chop some veg.), but it was lovely.
The boys behaved well. Apparently there was one little scene, but of course nothing that phased them, and it didn't ruin the day.When I die I will know that I have lived, loved, mattered and made a difference, even if in a small way.7 -
So glad that you have all had such a lovely dayI am a Forum Ambassador and I support the Forum Team on Mortgage Free Wannabe & Local Money Saving Scotland & Disability Money Matters. If you need any help on those boards, do let me know.Please note that Ambassadors are not moderators. Any post you spot in breach of the Forum Rules should be reported via the report button , or by emailing forumteam@moneysavingexpert.com. All views are my own & not the official line of Money Saving Expert.
Lou~ Debt free Wanabe No 55 DF 03/14.**Credit card debt free 30/06/10~** MFW. Finally mortgage free O2/ 2021****
"A large income is the best recipe for happiness I ever heard of" Jane Austen in Mansfield Park.
***Fall down seven times,stand up eight*** ~~Japanese proverb. ***Keep plodding*** Out of debt, out of danger. ***Be the difference.***
One debt remaining. Home improvement loan.5 -
It's great that you had such a good day - and that you saw someone who can attest to how much the boys have improved. It's easy to overlook that when you are dealing with yet-another meltdown!It's not difficult!
'Wander' - to walk or move in a leisurely manner.
'Wonder' - to feel curious.6 -
Hi SS, have you considered trying a visual time table and now and next board with the boys? The schools I support in use them to great effect with some children in the spectrum.
You can also involve the children in planning their days with it. On the time table once an activity is done, it gets removed. With the now and next you have 2 things on there so for example Now we are going to play on the trampoline (picture of trampoline) next we will have tea. ( picture of food or similar) once trampoline done, picture is removed, tea moves to now and then you add a next.
Quite easy to make and give a visual back up to your words.
I also think you may like to read a Facebook blog by a friend of mine. Silenced by my child, destroyed by local services. It really the story of how her son has been let down in a similar way to what's been happening with you. She has some interesting posts on there and the history goes back nearly 20 years.5 -
Worth a try.
I will see if I can find her posts. ThankyouWhen I die I will know that I have lived, loved, mattered and made a difference, even if in a small way.5 -
Moo - your influence on the boys is now showing xxI must not fear. Fear is the mind-killer.
Fear is the little-death that brings total obliteration.
I will face my fear. I will permit it to pass over and through me. When it has gone past I will turn the inner eye to see its path.
When the fear has gone there will be nothing. Only I will remain.7 -
It was quite late before Dgs1 went to bed, nearly 9.30 as I had a phone call from my friend and then DGd wanted something. But after a quick revisit to the loo he went to bed and slept until 7 this morning.
dgs2 went to bed around 7.45 after a cool bath, and actually went with squash in his bottle rather than milk. ( a first) and woke at 2.45 and wanted "juice" and not milk. Then slept until 7.We are watching Astro Boy on the TV. A distraction from wanting gadgets.
I am learning not to rise to dgs1's attempts to go off the rails if he doesn't get what he wants. I keep calm and distract.When he hurts himself I say that was a rather silly thing to do, give him a quick cuddle ( if he's not lashing out), and then carry on normally.We have a day at home today. Then tomorrow it's one of my other grandchildren's 5th Birthday so we are going to spend a good chunk of the day with them.
Wednesday is Holiday club and then time after with Daddy.
on Friday it's holiday club and then we leave for Kent. Saturday Twin1 and her children are going to visit for the day. Sunday were going to visit a castle and Monday we come home again.
So the talks about what we are going to do in the time ahead has started.
I am feeling much more in control of myself, and therefore the situation and I am beginning to get used to not having work as my main focus. Although I do have a Wedding fitting tomorrow. But I may pass the work to my other seamstress depending on what is required.
More and more I am leaning towards using my sewing as my own therapeutic strategies and less as a business. I am going to restart lessons when social distancing is eventually behind us. I am looking into how to teach others to do alterations as it is a skill very different from making.Time for my breakfast.
Then household jobs.Have a good day everyone.When I die I will know that I have lived, loved, mattered and made a difference, even if in a small way.5 -
Molly41 said:Moo - your influence on the boys is now showing xx
I would just love a slightly easier ride. XWhen I die I will know that I have lived, loved, mattered and made a difference, even if in a small way.6
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