MSE Pregnancy Club 26

RobotsinDisguse

And now, when the midwife did come back she has told me that my NT test is high and that i need to go to the hospital again on monday to discuss the results. So I'm petrified. Not so much of the possibility of having a Downs baby (I'll love my child whatever.. that's why the 12-24 thread was upsetting me), but that I'll have to make more decisions, will probably be ignored further and will feel out of control whatever happens.

Can anyone tell me of any experiences if anyone has themselves/friends been in this position? What happens at the meeting? Being forwarned really helps me manage my anxiety.

fran-o

Sorry Robots, not got any great advice just hugs for a difficult time. We were given a really detailed book by the midwife/ hospital about various screenings and their implications before we had our 12 week scan. Is there anything like this tucked away in your medical notes?

Just wondering if you have seen a midwife that was not understanding of your health issues, is there a possibility to ask to see someone else? I've got a feeling someone else on this thread had a horrible experience with a particular midwife/ nurse and was able to request that they did not see that person again. Maybe they'll pop by with more. Every health trust has a dept called PALS (patient advice liaison I think!) so do talk to them about your options or register a complaint.

Best wishes

mrshappy

Hi Robots, I don't really have any advice, sorry, but no wonder you were stressed and upset by that experience. It sounds awful.
I'm pretty sure you can request to see someone else, sorry I can't be of any more help x

kerri_dfw

You could try contacting the Supervisor of Midwives, although I've never done this myself being my first baby.

claire16c

Sounds like a right kerfuffle Robots over something that could have been simplified.

I dont have your experience but what I would suggest is, as you are worried about the aspirin etc, is to perhaps make an appt with your doctor, to talk over all the tablets you are taking to ensure that another professional is happy with you being on them all at once? So just for a second opinion really as you say the consultant wasnt listening to you when talking about this.

Where is the consultant that you saw as you said the hospital is in another town?

I know from my experience at the hospital a few weeks back, I saw 2 drs and two consultants and they all had varying opinions on things - one thought I may have been leaking amniotic fluid and another pretty much said that wasn't possible without me really knowing about it - Id had a bit of bleeding that was a bit liquidy, but he made it sound like it would have flooded out.

It didnt really matter for me because its not like I was then put on tablets or anything but as you are, if you are worried about what that particular consultant has given you, there is no harm in seeking help from someone else and getting their advice.

samtoby

mincepiemonster wrote: »

Only got a moment to post but wanted to say welcome over Sam! I will be thinking of you on Monday. I remember you from the TTC threads and I know you've had a rough ride this past year - I hope that in 48 short little hours you'll be doing a happy dance and buying up half of Mothercare following your scan! x

Thanks everyone. I am hoping it will be a happy day, its in the afternoon like my 12 week scan where I found out my baby had died. My 12 week scan for this baby was like 10am so I didn't have long to wait.....3pm for my 20 week

I don't have any advice RobotsinDisguse but do you know what the risk level was for downs? Mine was a 1: an amount. I am sure someone had a high risk on the 12-24 thread but I can't remember who it was.

I would 2nd others opinion on seeing someone else - all this stress will not help your BP. x

sophiasmum

Robots sounds like you had a really bad experience x
I can offer experience with the high nt score - on my last pregnancy I came back high risk for downs on triple test. Can only imagine what you are going through as it terrified me. Was offered an amnio (which I suspect you will be offered) and I refused as like you my baby was precious and I wasn't prepared to take any risks. I then paid for a private consultation and a quad test and a detailed scan where they look for soft markers of downs -none found though I was still high risk. My beautiful daughter was born with no issues though it did ruin whole pregnancy for me - hence I refused any testing this time. What will be will be. Stay strong and do loads of reading up about it all.
Right Im going back to 12-24 thread I refuse to be moved - am ignoring the nonsense. Come back ladies x

claire16c

RobotsinDisguse wrote: »

And now, when the midwife did come back she has told me that my NT test is high and that i need to go to the hospital again on monday to discuss the results. So I'm petrified. Not so much of the possibility of having a Downs baby (I'll love my child whatever.. that's why the 12-24 thread was upsetting me), but that I'll have to make more decisions, will probably be ignored further and will feel out of control whatever happens.

Can anyone tell me of any experiences if anyone has themselves/friends been in this position? What happens at the meeting? Being forwarned really helps me manage my anxiety.

In terms of this part, I am really sorry to hear this but recently I seem to have read a lot of posts where someone has had a high result, and the baby is fine. In fact a man posted on this thread not long ago with that.

If the result is high you can ask for an amnio (with small risk of miscarriage) or you can pay for a private blood test (around £600) which is non invasive - if you want to get a proper answer as the NT is just a 1 in x number.

So firstly Id wait and see what the number is.

Then discuss the options with the hospital. Dont be pushed into an amnio if you dont want one.

You might choose to do nothing, and just see what happens when the baby is born.

My friends baby who has recently been delivered early but was suspected at one point to have something wrong with him, did have an amnio and a whole barrage of tests and it turned out it was a problem with the placenta and not the baby at all. But the amnio for her was fine.

Unfortunately its all about weighing up the risks and a personal preference of what route you would choose to take.

In my opinion, if you are going to carry a baby to term and love it regardless then I dont see the point in risking a miscarriage by having an amnio. But other people might want to take that risk and feel more 'prepared.'

Bambisbelle

Robots - I'm so sorry you're having a of time it with your midwife and health care team, I have to admit me and mine don't always see eye to eye, in my opinion you know your body best and if the health care you are receiving is making your anxiety worse then you are well within your rights to ask to see someone else (as far as I know anyways)

As for the tests etc I'm not sure what to expect they will probably talk you through the results of your test and if they're pretty nice they should listen to you & answer any questions and queries you may have. l don't know if it would help but maybe you could write down some questions to ask them; ie what the next steps are going to be, what is involved etc, also remember to take it with you so you can write down any answers they give you.

I've got my fingers crossed for you though Robots, hopefully someone will be along with more helpful advice than anything I've said. Let us know how you get on.

B xx

Rummer

Robots It sounds as if you need to ask for a change in care staff. If you do not feel strong enough to make that request could your husband do it for you? It is important to feel supported and you do have the right to request a change in care. I did in a previous pregnancy and although it was unpleasant making the request it made the rest of my pregnancy much more enjoyable.