DLA for incontinence

Mupette

bestpud wrote: »

Quite!

WUM = wind up merchant

I was being sarcastic..

But it seems only the select 'in crowd' are allowed that privilege.

Kimitatsu

Can we keep this on topic please and relevant to the OP? Otherwise I will close this thread.

OP - I would find your local CAB or legal services representitive and see if you can get a welfare benefits caseworker to look at it for you. It doesnt seem like an open and shut case (not that DLA claims ever are!) but the likelihood is if he applies, it will be rejected and he will have to appeal because of the complexity. Many appeals succeed because they have the relevant people involved rather than someone with limited knowledge. At the end of the day if it doesnt work you have lost nothing but they may be able to steer you in the direction of other sources of funding.

Good luck

mammamia2004

i get dla(care) for my duaghter for this reason, she wets herself anything from 5 to 10 times a day, night times are even worse!! she is only 6 and as been on a waiting list to see some one for 6 months, the school nurse and doctors ahave tried drink trainging programs whilst we wait for an appointment!! i think the reason is cos of her age and she cant run a bth herself anf stuff like that, she also have to take several uniform to school its a bloody nightmare, all i do is wash clothes and bedding, maybe he has been refused cos he can managed to clean hiself x

mammamia2004

firesidemaid wrote: »

something else to mention, is to check with your/their water supplier, as many will cap bills if you have a medical condition that requires a large amount of water useage eg. for cleaning and washing etc

thanks for that i am going to contact them lmao xx

shegar

MrsHelpful wrote: »

Hi Bogof, he rarely touches alcohol of any kind because it makes you need the toilet more.

He has been investigated in several hospitals the length and breadth of the country, and has had more surgeries than I or he can remember I would estimate it to be over 50 in the same area, they are very reluctant to perform further surgeries as the skin from his belly button to his groin is paper thin because of the number of surgeries he has had, he had his first surgery at 6 hours old because of this problem, the prosthetic valve was supposed to be the answer to all his problems but it hasn't been. The only other thing they can do for him, but will not yet because of his age and the fact he already has a colostomy etc is a urostomy (where urine would be collected in a bag from a hole in his abdomen). This will when/if its done cause major problems in itself because of the scarring and thin skin in the area it would need to be placed. He did a few years ago have a supra pubic catheter (inserted through the abdomen not where they usually insert them! which did eliminate the incontinence for a few months however it had to be removed because of constant infection at the insertion site. He also had a normal catheter, but because the passage is so narrow, they had to use a child size one which resulted in constant overflow and leakage so that was removed.

He did try to curtail his fluid intake, but that led to kidney stones and further surgeries so he does tend to drink normally now as he kidney stones 3 times in the space of a year.

His problems for the most part are down to neglect by a parent, but that is another story. The colostomy was reversible but he was never taken back to have it reversed. By the time he looked into getting it done himself he was in his 20's, he saw 3 different consultants, some form of dye was put into the colon but they could not actually see where it was going because internally he is in quite a mess with scarring etc, not one of the surgeons was prepared to attempt the reversal. Same is probably true for the urinary problems too, had he been seen regularly then no doubt the situation would not have been quite as bad as it now is. So medically/surgically I think they have done what they possibly can, the urostomy will be a last resort.

Following a surgery in May last year, he was advised to take 6 months off work, 3 weeks later he was back in work at a desk job, doing reduced hours but still going to work rather than claiming benefits. His consultant advised he apply for DLA, as it does affect his life to some degree and that of his wife, they were due to go on holiday for the first time in years last year with our DD, it was cancelled a month before because he was afraid he would have an accident and embarrass himself on the plane.

I could go on and on, he has a very complex history but that is the gist of it. I appreciate some people do not class it as a disability, my personal feelings however are that it is as it does limit his life socially and is quite an obstacle for him from that point. It obviously has some psychological effects to, as it prevents him doing things "just incase".

DLA would not help him become less incontinent, it could have maybe helped towards laundering facilities as washing machines and tumble dryers tend to wear out fairly quickly, as do beds (even with protective covers, are still replaced more than the average household), trousers etc don't last very long with constant soiling and washing. My DD gets DLA, it doesn't help make her less austic, it does not provide extra care for her (her dad and I do that), what it does do is replace white goods that are needed on a regular basis, provided her with a laptop, garden equipment (trampoline etc not a bbq set before I am pounced on). Replaces items she breaks in temper, pays for days out and holidays for her and the rest of the family. The last paragraph is not directed at you Bogof, is just a general remark.

Well after reading the above post I do wish him well and hope that he can get some help with DLA for his very horrible condition. My husband had a severe stroke at a young age 49 and he had terrible problems with bowels and bladder and couldnt control himself at all, thank goodness those problems have settled for him.He too had to wear pads, nappies etc...

Indie_Kid

MrsHelpful wrote: »

I have never heard of an incontinence pad being called a nappy, so I guess you learn something new every day. To me a nappy is something that covers you back and front and fastens about your waist, and a pad is something you place in your undearwear.

This is what I thought too. I was advised at my DLA tribunal to wear one and felt rather offended. (it would make things harder for me - my problem is my bowel and I'm also visually impaired)

Kimitatsu

oookay peeps - think this has been done to death and it will just denegrate so thread closed