DLA for incontinence

MrsHelpful

sunnyone wrote: »

And a blue badge!

Yes and a blue badge as both his consultant and the council felt he needed one. Oh and for the record my DD has one too for being autistic, fully mobile but has a blue badge, they are not only awarded for mobility problems.

I was asking for a bit of advice not to be slated if it's all the same. Had I come here and said how can he give up work and live off benefits, fair enough. Am really sorry that you felt the need to respond the way you did. His BB was given for a legitimate reason, and I have no need to justify that.

MrsHelpful

Thanks to all those that responded kindly, he does require some assistance when he has an accident mainly if they occur outside of the home though.

His life is fairly restricted because of this in that he tends to only go to work and home. Is newly remarried and won't even attend and social nights out incase he has a problem. Is only 38 now and for him it is quite debillatating. Although I do appreciate his care needs are not as bad as the needs of some.

dmg24

sunnyone wrote: »

And a blue badge!

It is incredibly difficult for anyone to get a BB without a DLA HRM award, therefore the person must have had strong evidence to support how his condition affects him.

If you wish to debate who should or should not get a BB, you would be best to start a thread on Discussion Time. This is not the place for it.

dmg24

MrsHelpful wrote: »

Thanks to all those that responded kindly, he does require some assistance when he has an accident mainly if they occur outside of the home though.

His life is fairly restricted because of this in that he tends to only go to work and home. Is newly remarried and won't even attend and social nights out incase he has a problem. Is only 38 now and for him it is quite debillatating. Although I do appreciate his care needs are not as bad as the needs of some.

There is some case law that LRM may be awarded if a person needs reassurance when out of the house due to continence problems, but I would imagine this is more due to the psychological issues that it could cause, not the actual care needs (I have not read the case, so am happy to be corrected if anybody has).

The argument against care needs is that he should be able to fulfil them himself (although I appreciate it is often not as simple as that).

MrsHelpful

dmg24 wrote: »

It is incredibly difficult for anyone to get a BB without a DLA HRM award, therefore the person must have had strong evidence to support how his condition affects him. QUOTE]

Thanks dmg24, he has had is BB since 1998 following a surgery that went wrong, that left him in a worse mess continence wise.

And to be fair to him, he only applied for DLA after his consultant advised him to. He has always worked full time, and if it were me I would not be working. He however has lived with it all his life and while it does embarrass him, he is always upbeat about it to those that know.

MrsHelpful

dmg24 wrote: »

There is some case law that LRM may be awarded if a person needs reassurance when out of the house due to continence problems, but I would imagine this is more due to the psychological issues that it could cause, not the actual care needs (I have not read the case, so am happy to be corrected if anybody has).

The argument against care needs is that he should be able to fulfil them himself (although I appreciate it is often not as simple as that).

He doesn't really need reassurance, just practical help. For example am talking from my own experiences, but know his current wife is the same, going shopping or out for a meal, and having to leave him sat in a public toilet while you rush off to buy him new clothes and underwear to put on. It does not happen often though as he rarely goes out incase it happens.

Going on holiday (although this is not a DLA need), just showing how debillitating it is for him. Is the only guy lying on the beach in a t shirt (so you can't see the colostomy bag, and knee length shorts, refusing to go in the pool as the incontinence pad would become saturated and visible through a pair of swimming trunks. I do admire him as I don't think I would have coped as well as he has, and he has done this from such a young age.

PipsoG

Long term and continued incontinence is bound to have an affect on a person's mental well being. Although there has been some medical assistance this is not working effectively so accidents are happening both in the home and when out.

I would suggest that there is nothing to loose by making an application for DLA and if this application with supported by the hospital consultant and/or GP explaining that these problems are affecting him mentally as well as physically.

If successful, then the money will help but I would think they also need to seek help with the services of a good continence expert and explore the possibilities if the operation that failed and made things worse could be rectified by some other surgical proceedure.

It is obvious that help with personal care is needed on a regular basis both day and night and the DLA form does ask questions about help that is needed if full detail.

Incontinence is something that is very degrading and is just as bad if you are old or young.

I do hope that things improve.

Best Wishes.

clb776

does he not wear a nappy? I know this could feel a bit degrading but they are discreet. My grandmother is incontinent and we use these pad things which usually catch everything (somtimes there is a leak but not that often).

I can only think about how upsetting this must be for him...

good luck!

welshmoneylover

What a sad post and what a dreadful condition.

Glad he got his badge, sounds as if he needs it.

MrsHelpful

PipsoG wrote: »

long term and continued Incontinence is bound to have an affect on a person's mental well being. Although there has been some medical assistance this is not working effectively so accidents are happing both in the home and when out.

I would suggest that there is nothing to loose by making an application for DLA and if this application with supported by the hosiptail consultant and/or GP explaining that these problems are affecting him mentally as well as physically.

If successful, then the money will help but I would think they also need to seek help with the services of a good continence expert and explore the possibilities if the operation that failed and made things worse could be rectified by some other surgical proceedure.

It is obvious that help with personal care is needed on a regular basis both day and night and the DLA form does ask questions about help that is needed if full detail.

Incontinence is something that is very degrading and is just as bad if you are old or young.

I do hope that things improve.

Best Wishes.

Thanks for that, he applied for DLA on the advice of his consultant, who sent a supporting letter and he was declined. I was just wondering if it was worth him appealing.
It is degrading for him, but he is always cheerful, I know I wouldn't be!