DLA for incontinence

firesidemaid

something else to mention, is to check with your/their water supplier, as many will cap bills if you have a medical condition that requires a large amount of water useage eg. for cleaning and washing etc

MrsHelpful

shegirl wrote: »

If there is an alternate continence product surely he should try it!What's more humiliating -wearing a chunkier product (can still be hidden) or wetting clothes?

Please have a bit of compassion, I would not work if I had to wear a nappy and struggle to change it in the works toilet, and I doubt you would either.

Mupette

And so they start again.

OP what a nice person you must be to still be helping your ex.

Incontinence is a highly embarrassing thing to have and unless you are someone who suffers, well lets just say i would be distraught by now from what i have read on here, in fact yes it is quite upsetting.

To be a carer of someone with this is one thing, to actually have it and have to live with it is another, It's one of the most soul destroying things to cope with.

I do believe it's not up to the decision of the posters on here who gets what, on benefits, but they like to feel they do.

It is true DLA is based on what you can and can't do, what care needs are etc, obviously there seems to be a lot of care needed for him.

I hope this get's resolved with the delicate tact it needs.

Everybody is different, the world is not black and white, but to some apparently it is.

I have nothing constructive to offer, just to say what a nice person you seem to be.

shegirl

MrsHelpful wrote: »

Please have a bit of compassion, I would not work if I had to wear a nappy and struggle to change it in the works toilet, and I doubt you would either.

I have plenty of compassion thank you,my almost 11 year old severely autistic son is doubly incontinent and has never had a solid stool in his life to boot!So I am perfectly compassionate when it comes to such problems.

Sorry,but the way I see it is you help yourself or you don't.You can't expect more help or money if you can actually make a difference to the situation another way.

I fail to see how wearing a 'nappy' (all incontinence 'nappies' I've seen are called pads by the way) is worse than peeing yourself and people quite likely seeing that and having urine drenched clothes

MrsHelpful

LondonDiva wrote: »

If he is getting free NHS continence products and has access to the specialist adivce and support from a consultant asa well as the PCT bladder & bowel team, what additional needs would he have requiring DLA?

If he's leaking at night, it suggests that he's not got the correct type for nights. If he's leaking in the day it strongly implies that he's not changing his bag / pads often enough and he may need to make an appointment to a, be reassessed to ensure the pads are the correct level for him or b, to review his use of the products to ensure that he is using them appropriately and changing them often enough.

He will be provided with more pads than he needs at anytime, so the leaking strongly suggests a need for help to use the support he already has, to save him needing to do any additional washing.

What other issues or expenses have come up which require the DLA?

I just asked for advice on whether he should appeal the decision, he is in hospital 4-5 times a year. He was actually using a conveen sheath during the nights for about 6 months last year, but even that did not help. The nature of his problem means that his bladder fills to capacity yet he has no sensation so it is not a constant trickle that can be absorbed, is a case of full bladder over riding the prosthetic valve and releasing a vast amount in one go.

shegirl

MrsHelpful wrote: »

I just asked for advice on whether he should appeal the decision, he is in hospital 4-5 times a year. He was actually using a conveen sheath during the nights for about 6 months last year, but even that did not help. The nature of his problem means that his bladder fills to capacity yet he has no sensation so it is not a constant trickle that can be absorbed, is a case of full bladder over riding the prosthetic valve and releasing a vast amount in one go.

Well,I hope he finds a product that is more suitable for him.Anything has to be better than what he goes through with wetting.It will be awful for him,naturally,but surely something to make a difference will end up making a difference to him

sunnyone

MrsHelpful wrote: »

Not sure what AE is, I personally do not receive any form of DLA as I am fit and well and work part time, my DD receives DLA at HRC/LRM.
Am also sure that if your bleeding problems were as severe as you claim them to be then you would have had a hysteroectomy or endometrial ablation as a matter of urgency.

I had a total hystorectomy a couple of years ago, after many years of shame, imagine a lady in cream trousers suddenly try to hurry of a boat with her jacket tied round her waist to hide the blood from crotch to knees.

Ablation didnt work, my fibroids were entrenched and a full hysterctomy was needed with ovaries removed because I had endo.

I have continace problems and they are not the end of the world, my nerves are damaged and the NHS provides me with everything I need, I use a leg bag which requires no bladder function at all and a night bag stands next to my bad for overnight use.

I uncontorlably pass pure burning acid from my ulcers vis my rectum and need urgent toileting and maybe a change of clothes (I always carry a spare set for accidents).

I totally under stand his problems but not his need for a BB or DLA.

shegirl

sunnyone wrote: »

I had a total hystorectomy a couple of years ago, after many years of shame, imagine a lady in cream trousers suddenly try to hurry of a boat with her jacket tied round her waist to hide the blood from crotch to knees.

Ablation didnt work, my fibroids were entrenched and a full hysterctomy was needed with ovaries removed because I had endo.

I have continace problems and they are not the end of the world, my nerves are damaged and the NHS provides me with everything I need, I use a leg bag which requires no bladder function at all and a night bag stands next to my bad for overnight use.

I uncontorlably pass pure burning acid from my ulcers vis my rectum and need urgent toileting and maybe a change of clothes (I always carry a spare set for accidents).

I totally under stand his problems but not his need for a BB or DLA.

Apologies for highlighting that but it must be awful

sunnyone

shegirl wrote: »

Apologies for highlighting that but it must be awful

it is and it was caused by the medication prescribed to me, my insides are ruined and will never get better but im still alive.

The acids fine within the body, it has a purpose but its not meant to reach the outside that isnt protected from burns, TMI I know.

MrsHelpful

shegirl wrote: »

I have plenty of compassion thank you,my almost 11 year old severely autistic son is doubly incontinent and has never had a solid stool in his life to boot!So I am perfectly compassionate when it comes to such problems.

Sorry,but the way I see it is you help yourself or you don't.You can't expect more help or money if you can actually make a difference to the situation another way.

I fail to see how wearing a 'nappy' (all incontinence 'nappies' I've seen are called pads by the way) is worse than peeing yourself and people quite likely seeing that and having urine drenched clothes

Shegirl, I merely asked for advice, I was not infuriated that he had not received it, was just wondering if it was worth him appealing the decision.

In relation to nappies you have not seen many then, as tena actually produce an adult size pampers. That is what a nappy is and I have never heard anyone call an incontinence pad a nappy before.

As I am sure you realise yourself, being doubly incontinent is a disability, he could be sitting at home claiming benefits, but he is not. He is not entitled to DLA fair enough, I accept that and so does he. Your need to belittle is quite upsetting though.