DLA for incontinence

lolababy

Here we go again people who would rather give there opinions rather than constructive advice. Yes you can claim dla for the effects of incontinence.;

5.17 Incontinence

high rate mobility
In CDLA/217/2009 the tribunal failed to consider a claimant's physical condition as a whole, including her bowel incontinence, which included 'the physical and muscular effort of trying to control her bowels and the very real effects of an episode of faecal incontinence, including discomfort, soreness and so on'.
indirect help
Stewart v Advocate General for Scotland (1999) (reported in R(DLA)2/00) says that help with the bodily function of urinating can also apply to help following completion of that function. CSDLA/1095/1999 states that the need to remove and clean soiled clothing could count as attention. In this case the fact that the claimant had learning difficulties prevented the claimant from dealing with the consequences of incontinence. See Cockburn v CAO (1996).
psychological problems
C42/99-00(DLA)* (9/01) is a Northern Ireland decision which states that psychological problems, in this case associated with bedwetting, do not constitute severe mental disablement. See CSDLA/552/2001 above for an opposing viewpoint.
reassurance
CDLA/494/1994 states that reassurance and moral support when a person is suffering from an attack of incontinence could constitute "attention" for care purposes or "supervision for lower rate mobility.
use of a commode
CSDLA/629/2002 says that the only emptying and/or cleaning of a commode which can count as attention is what must reasonably be done immediately for the purposes of hygiene. See also Gregory Ramsden v Secretary of State for Work and Pensions (2003) and Cockburn v CAO (1996). CSA/76/1989 states that some consideration should be given to how a commode is emptied if its use is suggested. See also CSDLA/44/2002 which also considers claimant’s ability to use a commode and whether there is room for one.
In CA/3943/2006 the claimant was using a bucket instead of an upstairs toilet. The commissioner's view was that this was an emergency measure rather than the use of a commode in an appropriate location.

Case law above may help.

mum2one

The 1st thing I would do is speak to the CAB and ask for a number of the people who help with the DLA forms, and if you are in the time limit for appealing, find out when the date is.

My mum gets DLA, for mobility, since she had her stroke last yr, its affected a great part of her life, and as such her care needs had changed, the CAB gave us a number, related to the council (think?), and they came and filled in the form, they know the correct termonolgy to use.

I know he's your ex, but he's lucky to have you helping him.

Good luck xx

MrsHelpful

Oldernotwiser wrote: »

Hang about!

All I did was thank a poster who suggested that this guy used incontinence pads and I was singled out for it! I'd be grateful if you could give me an example of a post where I have "demoralised" someone because I think that you must be fantasising if you think that this is the case.

It might be more useful if you were critical of the OP for describing another poster's description of her own need for incontinence products as "absolute tosh", which was one of the rudest comments that I've read on here.

You need to stop stirring and read what has actually been written more carefully!

So should you as you are a liar, post 17 actually mentions the pads he uses, yet a couple of posts later and you are thanking a poster for suggesting he use a nappy, you and everyone else are fully aware that incontinence pads are totally different to inccontinence nappies.

As for Sunnyone I stand by what I said, her post was over exagerrated and utter rubbish in an attempt to get a sympathy vote or two after her vitriolic comments. Fitter if she got a job and a life, instead of being a forum troll.

MrsHelpful

Oldernotwiser wrote: »

No, I'm not.

In care homes, incontinence pads are usually referred to as nappies and the post I thanked was clearly referring to pads.

You have totally misunderstood what was posted (as if anyone would think that a grown man would wear a real nappy - complete with extra large safety pin?) and you're not prepared to apologise for your mistake.

No in care homes they are not they are either referred to as incontinence pads if they are pads, or in the case of the large green tena nappies (that fasten like a pampers), then they are called nappies are two entirely different products.

I made no mistake so owe you no apology as a couple of posts prior to that one his incontinence pads are mentioned, so you were aware pads were already in use. You went on to thank a poster for suggesting a nappy, then backtracked when caught out and claimed you thought nappies was another name for incontinence pads.

Be on your merry way, as you are in the same league as sunnyone.

Bogof_Babe

I would just like to clarify that in my earlier post I was suggesting incontinence pants not pads. These are fastened at the side by a velcro type strip, so not too difficult to change even if in a work toilet. I'm not sure exactly how they work but I understand they absorb up to a litre of fluid, so maybe worth a try.

As for the "vast quantities" being released in the night - couldn't this be managed better by reducing the amount of liquid consumed in the evening? I'm not advocating becoming dehydrated, but there is a sensible limit. Obviously if he likes two pints of beer in an evening this isn't going to help the situation.

I had a colleague who was friendly with a chap who had been made quadriplegic in an accident, and apparently he managed his bladder problems by a technique of tapping on his abdomen at regular intervals, which enabled him to pass whatever urine had built up. This might not be suitable for the OP's ex but if I was him I would be asking the medical authorities to explore every possible avenue. If a quadriplegic can manage this condition I would have thought there was something that might improve things for the man in this discussion.

No comment re. the benefits side of things, as I don't know the rules, but I do feel that an adult who is forced to spend every day worrying about embarrassing floods and worse is possibly not getting the medical support he needs.

Oldernotwiser

MrsHelpful wrote: »

So should you as you are a liar, post 17 actually mentions the pads he uses, yet a couple of posts later and you are thanking a poster for suggesting he use a nappy, you and everyone else are fully aware that incontinence pads are totally different to inccontinence nappies.

As for Sunnyone I stand by what I said, her post was over exagerrated and utter rubbish in an attempt to get a sympathy vote or two after her vitriolic comments. Fitter if she got a job and a life, instead of being a forum troll.

I am not in the habit of either lying or being called a liar. Care homes I know have used the term nappy as a general term for incontinence products of any sort.

Also, in post #17 you say "refusing to go in the pool as the incontinence pad would become saturated and visible through a pair of swimming trunks." which I took to mean he didn't use them, rather than that he used them but couldn't swim in them; this is why I thanked someone for suggesting he use something.

You are obviously a deeply rude and troubled person and your ex is obviously well rid of you. I hope, for his sake, he doesn't have as big a chip on his shoulder as you do.

bestpud

I'm kind of torn on this one as I'm not convinced he isn't eligible for DLA tbh, assuming he has explored all options and his consultant will confirm there is no further action he can take.

FWIW, my dad has an colostomy bag and he sunbathes on the beach (or used to) - he just makes sure he wears high waist shorts. Come to that, he wears high waste undies and trousers anyway.

I'm sure he could find some swim shorts that are high enough for the bag but baggy enough to hide a pad? I would hope so anyway as he's young to be covering up like that.

I can't understand why he prefers to soil his clothes rather than wear a different type of pad (I thanked the 'nappy' post as I could see it referred to pads, although I will be honest and say I raised an eyebrow at the use of the word nappy). I do know though that a lot of people call them nappies.

Tell him to get some advice and hep completing the appeal if he decides to go down that road, but I do think it depends on whether he is like this because he refuses to accept alternatives, or whether there is no other options for him.

If it's the latter, I think DLA would be appropriate as he has mobility needs that are likely to make life more expensive for him.

Also, has he got a RADAR key for public toilets?

MrsHelpful

Bogof_Babe wrote: »

I would just like to clarify that in my earlier post I was suggesting incontinence pants not pads. These are fastened at the side by a velcro type strip, so not too difficult to change even if in a work toilet. I'm not sure exactly how they work but I understand they absorb up to a litre of fluid, so maybe worth a try.

As for the "vast quantities" being released in the night - couldn't this be managed better by reducing the amount of liquid consumed in the evening? I'm not advocating becoming dehydrated, but there is a sensible limit. Obviously if he likes two pints of beer in an evening this isn't going to help the situation.

I had a colleague who was friendly with a chap who had been made quadriplegic in an accident, and apparently he managed his bladder problems by a technique of tapping on his abdomen at regular intervals, which enabled him to pass whatever urine had built up. This might not be suitable for the OP's ex but if I was him I would be asking the medical authorities to explore every possible avenue. If a quadriplegic can manage this condition I would have thought there was something that might improve things for the man in this discussion.

No comment re. the benefits side of things, as I don't know the rules, but I do feel that an adult who is forced to spend every day worrying about embarrassing floods and worse is possibly not getting the medical support he needs.

Hi Bogof, he rarely touches alcohol of any kind because it makes you need the toilet more.

He has been investigated in several hospitals the length and breadth of the country, and has had more surgeries than I or he can remember I would estimate it to be over 50 in the same area, they are very reluctant to perform further surgeries as the skin from his belly button to his groin is paper thin because of the number of surgeries he has had, he had his first surgery at 6 hours old because of this problem, the prosthetic valve was supposed to be the answer to all his problems but it hasn't been. The only other thing they can do for him, but will not yet because of his age and the fact he already has a colostomy etc is a urostomy (where urine would be collected in a bag from a hole in his abdomen). This will when/if its done cause major problems in itself because of the scarring and thin skin in the area it would need to be placed. He did a few years ago have a supra pubic catheter (inserted through the abdomen not where they usually insert them! which did eliminate the incontinence for a few months however it had to be removed because of constant infection at the insertion site. He also had a normal catheter, but because the passage is so narrow, they had to use a child size one which resulted in constant overflow and leakage so that was removed.

He did try to curtail his fluid intake, but that led to kidney stones and further surgeries so he does tend to drink normally now as he kidney stones 3 times in the space of a year.

His problems for the most part are down to neglect by a parent, but that is another story. The colostomy was reversible but he was never taken back to have it reversed. By the time he looked into getting it done himself he was in his 20's, he saw 3 different consultants, some form of dye was put into the colon but they could not actually see where it was going because internally he is in quite a mess with scarring etc, not one of the surgeons was prepared to attempt the reversal. Same is probably true for the urinary problems too, had he been seen regularly then no doubt the situation would not have been quite as bad as it now is. So medically/surgically I think they have done what they possibly can, the urostomy will be a last resort.

Following a surgery in May last year, he was advised to take 6 months off work, 3 weeks later he was back in work at a desk job, doing reduced hours but still going to work rather than claiming benefits. His consultant advised he apply for DLA, as it does affect his life to some degree and that of his wife, they were due to go on holiday for the first time in years last year with our DD, it was cancelled a month before because he was afraid he would have an accident and embarrass himself on the plane.

I could go on and on, he has a very complex history but that is the gist of it. I appreciate some people do not class it as a disability, my personal feelings however are that it is as it does limit his life socially and is quite an obstacle for him from that point. It obviously has some psychological effects to, as it prevents him doing things "just incase".

DLA would not help him become less incontinent, it could have maybe helped towards laundering facilities as washing machines and tumble dryers tend to wear out fairly quickly, as do beds (even with protective covers, are still replaced more than the average household), trousers etc don't last very long with constant soiling and washing. My DD gets DLA, it doesn't help make her less austic, it does not provide extra care for her (her dad and I do that), what it does do is replace white goods that are needed on a regular basis, provided her with a laptop, garden equipment (trampoline etc not a bbq set before I am pounced on). Replaces items she breaks in temper, pays for days out and holidays for her and the rest of the family. The last paragraph is not directed at you Bogof, is just a general remark.

ginnyknit

Dealing with problems like incontinence all day every day is very stressful to both the person and the carer. We have to plan our outings like a military campaign due to Dh's bowel problems, he is not incontinent as such just needs the loo asap. Recently we literally abandoned the car next to a loo and I had to quickly explain to a traffic warden very quietly, what the problem was and he actually let us park. We have a blue badge for his other disabilities but it has been a godsend for the toilet problems. With all you have to deal with when a person has disabilities I find this one the most stressful and upsetting. I am sure carers allowance could be paid to his partner if she is up in the night so often, they must both be exhausted, I know I am. All praise him for working, I wish my Hubby could.

pendulum

Mupette wrote: »

All this is so childish.

You are the one who has put a quote from Oldernotwiser in your sig, which is childish and unnecessary. Reflects badly on you.