Fibromyalgia

raeh

oh and i hope you all have a good day tomorrow xxxx

raeh

sorry tobruk i didnt see that you had posted. I find it very comforting after feeling alone with fms for so long that other people actually really understand how im feeling??
when i have to make a phone call about something official i write down first everything i need to say and anything i want them to know and usually i have enough written down to cover anything they might ask otherwise like you said i go totally blank and talk utter sh!te. I do that at work sometimes as well when im in a meeting?? i think the stress makes me panic and my brain goes to total mush

TOBRUK

SNAP!! I too write everything I can think of down when I have to make a call and I highlight anything important which I need to put across!

My first language is Welsh and I find when having a conversation in English it is worse - when I can't think of a word sometimes I can think of the welsh word but that certainly doesn't help ha!

Yes, I agree that it is comforting to know I'm not alone and also, it's the first time for me to be able to vent how I'm feeling on here. I live alone and it can be extremely lonely but even when I have company I can't share my feelings - they wouldn't understand!

Elmostreet

:j:j:j:j:j:j:j:j:j:j:j:j:j:j:j:j:j:j:j:j:j:j:j:jfibro hugs !

Elmostreet

To Everyone! Fibromites Together!

bigzippy

TOBRUK wrote: »

Reading ... can't remember after the first page what I'm reading about, nothing seems to sink in! Receiving forms or letters of importance that needs sorting frightens me and even when I've dealt with them I worry if I have done things properly and can't remember what I've said. Trying to sort things out over the phone is scary because I get totally BLANK and can't get my sentences together.

I too wonder when I am feeling unwell and although I don't believe it's the M.E. I don't like to go to the surgery. Just like 3 months ago I was feeling really ill and just dismissed it as anything other that my existing illness - that was until I started really itching and then had spots - I did go to the surgery, and it was chicken pox! It took 8 weeks to get over :rolleyes:

Oh dude, ditto.:

How annoying is it when you know you've "read" the same page/paragraph/line at least 7 times, but you still have no clue what it says?! Before I lost my job I used to write a draft of what I had to do, then get my workmate to read it through and make sure it actually makes sense, cos I knew I couldn't even read something I'd written myself.

OH looked at me funny when I wrote down what I needed to say to the rev at the church on the phone, I just gave him a look back lol.

People think you're being cute or ditzy or something when you can't think of the word for "window" or something, and it's usually easier to leave them under that misguided assumption... :rolleyes:

I was the same with my glandy/chesticles pains - I didn't go to the docs cos I thought it was ME, then I got convinced to go and they misdiagnosed me at least twice (at least 2 diff docs!) with mastitus (erm...no kids = no breastfeeding = severely unlikely!) - so then I felt stupid for not going, then it got worse and the OOH doc said it wasn't mastitus - it was Fibro "as part of the ME"!! I cannot express just how annoying it is to go to someone who's supposed to know the answers, and they just don't! :mad: But then, I don't need to tell you guys that

Magenta

Hi all,
I too am a member of the pyjama/track suit brigade. I have even been outside wearing mine, (with a coat on the top) just too exhasted to change into 'proper clothes'!

I also confess to being a member of the sore and thin hair club, I haven't used a hairdryer on my hair for many years.

I was wondering if anyone else suffers from a burning tingling sensation a ll over the body. It started with the sensation as if boiling water was being poured down my left thigh and leg. Now at times I get this burning over every millimetre of the body, even between the toes. It is horribly unpleasant, as if your being roasted all over your body. Yet the skin is only slightly warmer than usual.

I also get the stone cold feet, hence the thick woolly socks!

Before being ill I had a high powered job which took me all over the world and which invloved lots of organisation and planning and dealing with large groups of people from different cultures and in different languages. I was well known for my patience and ability to work under stress. That has all gone now, I find I get horribly irritable with things I can't do and the 'idiocacy' of some people. I just can't be bothered. if a bag of flour was to fall on the floor and burst everywhere I would probably just leave it there, too much pain, too much trouble. I have also discovered that I can't spell anymore!!!

Magenta

TOBRUK wrote: »

SNAP!!

Yes, I agree that it is comforting to know I'm not alone and also, it's the first time for me to be able to vent how I'm feeling on here. I live alone and it can be extremely lonely but even when I have company I can't share my feelings - they wouldn't understand!

I too live alone and by the nature of the illness, I have M.E too, it is a lonely life.
It is really fantastic to realise that I am not some 'lazy slacker who is making it all up' . and that there are other people with the same things and that we are able to talk about them.
Thanks.

tightperson

Magenta wrote: »

I also get the stone cold feet, hence the thick woolly socks!

So do I, I've asked for plenty of thermal socks for Xmas.

bigzippy

tightperson wrote: »

So do I, I've asked for plenty of thermal socks for Xmas.

I still can't recommend enough the faux uggs from Tesco for £8 (or 2 for £15 lol) - toasty warm I haven't taken em off, inside or outside, since I bought em last week!