Fibromyalgia

somebody_else

raeh wrote: »

am i the only person that cant cope with hot baths?? we have a big double sized bath with the jacuzzi but i just cant lay in it as it makes me so uncomfortable, my back hurts even if i put towels in to lay on and pad it out and its almost impossible to get myself sitting back up and out when iv laid there but i love standing in the hot shower, that really seems to ease my muscles

I've not had a bath since 1999 (and the only reason I had one then is because I developed a violent allergic skin reaction to the anti-epileptics I was put on after the bleed in the brain, so I was having luke warm salt baths), because a) it makes me feel so ill and b) I expend so much energy trying to get out again that I'm wiped out for the rest of the day.

I can't even stand under the shower these days - I've got a swivel chair over my bath that I sit on under the shower. It's better than nothing.

somebody_else

bigzippy wrote: »

I have the same thing. My arms get REALLY achey if I maul about with my hair for anything more than a few seconds and when I attempt straightening it too...it just seems to be too much to ask of my poor arm muscles these days.

Me too! [What was that someone posted about pain sympathisers? I'm starting to feel like one now.] Just washing my hair is too much to do in one go these days. As for styling it once I've washed it... well, I can probably dredge up the energy to do that once every 2 or 3 weeks. Thank god for perms is all I can say - wash, comb, scrunch and ignore it.

somebody_else

Here's another one for you all.

How many of you have lost large quantities of hair since you've been ill? I used to have really thick hair, but certainly in the last 10 years, it's got so thin that I'm bordering on bald patches in places.

Fortunately, I've now got a good hairdresser who not only has noticed how thin my hair is in places, goes out of her way to be very gentle with it when she's handling it to avoid damaging it any more.

ailz95

Afternoon All,

A good time for listing your ailments is when a salesperson, that you don't want to hear from, calls. They always ask how you are - I've started telling them - do you know one or two have even hung up on me!

I'm another one that lives in pjs. I even bought some this winter that are fleecy all in ones with feet in - and a velcro bit at the back so that you can go to the loo without having to get undressed. The only problem is that I can't get out of them without help :rotfl:.

I'm exhausted today - and achy - of course. I don't do too badly at actually healing (I take sea kelp which is mainly iodine) but the scar takes a long time to go away. A scratch I had on my knee was healed in a week, but a year later the mark is still there. I look like I self harm.

Today I can't think well enough to decide what I'm grateful for .

Hope your Sunday goes well

Ailz

somebody_else

ailz95 wrote: »

Afternoon All,

A good time for listing your ailments is when a salesperson, that you don't want to hear from, calls. They always ask how you are - I've started telling them - do you know one or two have even hung up on me!

Oh, that's a good one! I shall have to bear that in mind next time a salesman knocks on my door (funny how they always swear that they're not selling anything), and asks me how I am.

Careful_with_that_Axe

Ello fellow aches and painers
Hope you are all doing as OK as you can today.
Not looking back to who said/asked what, so I'll just type :rolleyes:
Thread veins - I'm 45, but the thread veins are from long-term steroid use (although I've managed to get down to 5mg a day :T ). I had the first dose of laser treatment yesterday with the result that I look like a clown today! Big red cheeks! Dermatologist said that there's no getting away from it, it's quite painful. At least he was honest!Like being smacked on the cheeks with a red hot rubber band repeatedly.
NOT something I would make a hobby of!:D Next treatment in 5/6 weeks to tidy up any left.
Interestingly, he gave me some Aloe Vera gel to apply as he said he highly recommended it for skin use! So major thanks to whoever recommended it. Ironically, it ws the same make I had ordered - Aloe Vera Organic that's 99.9% pure (allegedly). Will stock up for when I have next anaphylactic reaction to meds and come out in Urticaria!
Treatment is also slightly cheaper than I had feared, so I'm pleased.
I too used to have strong arms (partly as a result of over-compensation for arthritic neck) - I couldn't crack an egg now. I have trouble reconciling the loss of strength and, revelling in my inbdependence, I try to do everything myself. But to be honest, I don't think that's a fect of my personality that I can change. Like pacing myself - I can't do that either. I just go at it and then suffer afterwards.

People always say to me my hair looks better straightened and I should do it all the time wihout realising how painful my arms get doing it.

Sorry for stream of consciousness post - I'm feeling a little isolated today, so am keen to "talk".
So, no doubt I'll be back later!
Hugs to all. Stay warm.
jo
x
p.s YES to hair sore!!

Unity

bigzippy wrote: »

I've come to the conclusion that if I have any more bluddy tests/procedures they can knock me out first! They wanted me to have the endoscopy(?) (the one with the camera down your throat) and I told em to get lost after the trauma of the colonoscopy! :eek:

Totally agree once again, I wasn't too bad with the colonoscopy - although I previously had to stop a colonic irrigation because it hurt too much. I think by the time I had the colonoscopy - more nerves had become trapped so I couldn't feel much at all below waist level. In fact my lovely GP was amazed as they'd taken far more than the usual number of biopsies and I never felt a thing!

I bow down in a "We're not worthy" kind of way to all who have suffered the endoscopy though - as there is absolutely no way a camera is going down my throat:eek:. I have a phobia of choking and drowning so although it would have given a definite yay or nay to Coeliac disease I said I'd just keep to the diet and not worry about the dx .

They may well not "Like it up 'em" as Corporal Jones used to say - but here's one who doesn't like it "Down 'em" either.

somebody_else wrote: »

I know what you mean.

Hair sore? Yup - I suppose it goes with the sensitive nerve endings, but I also find that putting my hair up is stupidly painful after a while.

I was going to say something else but the brain's just turned to sludge and I can't remember what it was.

Oh well, "time for bed" said Zebedee

"Thought you'd never ask" said Florence.

[Shut up s/e and go to bed. Ed]

Since developing FMS I have my hair cut very short - there's enough to spike it, but that's about it - hence I never need to hold a hair dryer. It means a quick shampoo either in the shower or over the bath and that's it - done. I'm told by my hairdresser that I'm lucky I have small neat features or it might look very butch - but that's the least of my worries - I can cope with it and that's paramount.

somebody_else

Careful_with_that_Axe wrote: »

Ello fellow aches and painers
...Sorry for stream of consciousness post - I'm feeling a little isolated today, so am keen to "talk".
So, no doubt I'll be back later!
Hugs to all. Stay warm.
jo
x
p.s YES to hair sore!!

Here, Jo, you'll appreciate this one. Little story for you...

A few years ago, I developed a nasty chest infection (strangely, although I feel like sh!te most of the time, I rarely go down with anything - I actually have to be quite 'well' to pick anything up) and it had reached the point that I couldn't cough without screaming (and that's not actually very easy to do). Anyway, a friend collected me from home and took me up to A&E - you know how these things typically get to their worst when the surgery is closed.

After I'd been 'triaged' and whipped into a cubicle, a male nurse came along to do some blood tests. Top tip folks - waiting until they've got a needle in your vein is not the time to look at your friend and say "have you noticed how they don't say just a little pr i ck any more?"

I'll give him his due - he kept that needle still, but I think he must have done himself an injury in the attempt.

somebody_else

Unity wrote: »

I bow down in a "We're not worthy" kind of way to all who have suffered the endoscopy though - as there is absolutely no way a camera is going down my throat:eek:. I have a phobia of choking and drowning so although it would have given a definite yay or nay to Coeliac disease I said I'd just keep to the diet and not worry about the dx .

They may well not "Like it up 'em" as Corporal Jones used to say - but here's one who doesn't like it "Down 'em" either.

Well, they did it once, but there is no way they're going to do it a second time without a total knock out. On the notes I saw after the event, it says something along the lines of "patient didn't tolerate procedure well". Too bluddy right, I gagged and heaved all the way through.

Unity wrote: »

Since developing FMS I have my hair cut very short - there's enough to spike it, but that's about it - hence I never need to hold a hair dryer. It means a quick shampoo either in the shower or over the bath and that's it - done. I'm told by my hairdresser that I'm lucky I have small neat features or it might look very butch - but that's the least of my worries - I can cope with it and that's paramount.

I used to have much longer hair that I have now - I don't have it too short or it means I've got to wash it every day (and I'm not fortunate enough to have 'neat' facial features for it to look good), so I keep it shoulder length. Any longer than that, and not only can I not wash it (although I can't remember the last time I used the hair-dryer), it comes out in even larger handsful every time it does get wet.

Careful_with_that_Axe

somebody_else wrote: »

Well, they did it once, but there is no way they're going to do it a second time without a total knock out. On the notes I saw after the event, it says something along the lines of "patient didn't tolerate procedure well". Too bluddy right, I gagged and heaved all the way through.

:rotfl: They really have a succinct way with words!

Thanks for the story - poor bloke!
I used to have a terminal fear of injections - funny how you get used to things ain't it :rolleyes:

am pretty stoic about things that need to be done to me in the name of medical. I did not enjoy them taking a sample of synovial fluid from my elbow when I broke it to check I didn't have an infection in the joint.
The A&E bloke said he would "sleep better if he knew it wasn't infected". Oh well, in THAT case, do please go right ahead! :rolleyes:

It was quite funny really - he was the double of Boris Johnson - looks, manner, speech everything. I quite took to him