Fibromyalgia

Unity

To Somebody_Else and Bigzippy, I used to have Procaine infusions every three months to help with pain. Procaine is a local anaesthetic, but in this case it was given in a very diluted IV drip over three days. I had this for around twelve years, then on the last occasion I had anaphylactic shock. I ended up in A & E unable to breathe or swallow and had to be given Prednisolone to sort it out.

Following this I was waiting for allergy testing to find out if I could have dental anaesthetic. Lignacaine is similar but not quite the same family so there was a fair chance it would be okay. Unfortunately I needed a tooth extracting before this could be done - and because I was in so much pain I authorised this to be done without any anaesthetic at all as there was a six month wait for a general one. Things seldom go to plan and the tooth broke leaving half in place - so the dentist (with my permission) risked a very small injection to get the root of the tooth out. I was fine.

So to cut a long story short and answer the question, I think I've got quite a high pain threshold, but I also have problems with some local anaesthetics.

somebody_else

Unity wrote: »

So to cut a long story short and answer the question, I think I've got quite a high pain threshold, but I also have problems with some local anaesthetics.

I frequently say that I'm a total wimp when it comes to pain, but I think I have probably got quite a high pain threshold. I just don't like it, and I object to people inflicting more on me.

bigzippy

somebody_else wrote: »

I frequently say that I'm a total wimp when it comes to pain, but I think I have probably got quite a high pain threshold. I just don't like it, and I object to people inflicting more on me.

I'm the same. I have a really high tolerance for the "natural" symptomatic pain etc and for anything major, but as soon as I bump myself awkwardly, or cut myself or - my least favourite new one atm - hair sore!! I'm soooooo ridiculously hair sore these days! I'm gonna have to go for something really simplistic for the wedding day cos I'll be in agony otherwise!
I can deal with all the pains, I just hate that there are new unneccessary ones - which are more painful than they should rightfully be, if you know what I mean..?

somebody_else

bigzippy wrote: »

I can deal with all the pains, I just hate that there are new unneccessary ones - which are more painful than they should rightfully be, if you know what I mean..?

I know what you mean.

Hair sore? Yup - I suppose it goes with the sensitive nerve endings, but I also find that putting my hair up is stupidly painful after a while.

I was going to say something else but the brain's just turned to sludge and I can't remember what it was.

Oh well, "time for bed" said Zebedee

"Thought you'd never ask" said Florence.

[Shut up s/e and go to bed. Ed]

bigzippy

somebody_else wrote: »

Interesting.

I also had a [thing where they stick a camera down your throat, into your stomach and have a look around before pulling bits off the stomach lining for a biopsy] and having pretty much reached the screaming ab-dabs point by then opted to have it done under sedation 'cos I'd been told I wouldn't remember any of it afterwards.

They lied!!!

I'm fairly sure that it's all down to neurological damage, but as I'm not a doctor, what could I possibly know?

I've come to the conclusion that if I have any more bluddy tests/procedures they can knock me out first! They wanted me to have the endoscopy(?) (the one with the camera down your throat) and I told em to get lost after the trauma of the colonoscopy! :eek:

bigzippy

Unity wrote: »

See, you do know how to multi-quote after all :dance:.

That's cos I'm ACE, did I not tell you?

Unity wrote: »

I was also one of the strong types - people always gave me the jars and bottles they couldn't open and I could arm-wrestle blokes - but only with my left arm . When my girls were little I had a Silver Cross double buggy (really heavy - even without passengers) and loved to walk for miles with the result - I had arms like Popeye . These days I couldn't knock the skin off a rice puddin':o. Like everyone else here, I hate to have to ask for help, but the biggest loss is the manual dexterity to do fiddly little jobs - it really frustrates me :mad:.

I've always been an artsy fartsy person, so it really frustrates me when I can't paint/draw a straight line, or thread something fiddly etc. I've definitely had to learn to grow in patience with this condition! :rolleyes:

Unity wrote: »

I'll bet there are lots who will identify with this as well. When I do go out, during the day ( I am never out after dark, I have wilted by then) I like to put my make-up on and have my hair looking reasonable and as a result people who don't know me, think I can't possibly be ill. The thing is that it makes me feel better to look better and that's the important thing I think. If people call in and catch me unaware - they realise how bad things must be _pale_

I know exactly what you mean. People think I'm fine - "well, I saw her last week and she looked alright to me! Yeah, she was down the pub all done up, so she can't be THAT ill!" :mad: Do they not !!!!!!! realise how much of an effort all that is? Or how long you'll prepare in advance, and suffer afterwards?! Grrrrrrr

Unity wrote: »

I am beginning to wonder what 'grim risks' they didn't tell me about with the tonsils :eek:but I wasn't given a choice, they had to come out and that was that. I have to say though I was a lot better without them in my pre-fibro life :j. ... I think it was the glandular fever that finally sealed the fate of the tonsils - so they're gone, but not forgotten .

Lol - if it's all done and dusted you probly don't need to know
They were talking about haemorrages and all sorts. I decided I had enough going on without dealing with all that malarky... :rolleyes:

Unity wrote: »

Well, I had a terrible night last night - I spent my time walking through a jungle, climbing over tree roots, then a desert and you know how hard it is walking through soft sand :sad: so whether my legs were aching and that caused the dreams or the dreams caused the pain I don't know, but I'm taking a Zopiclone tonight in the hope of a quiet night. Time for the PJ's :T

I had really weird weddingy dreams last night... or was it most of today...? :rolleyes:
I got conned into buying some "Earth" shoes years ago, when I used to run around Sainsbury's as a job, where sole at the toes was higher than the heels... it was supposed to mimic walking over sand, which is supposed to be really good for your posture etc.... All I know is my feet have never been the same since... and not in a good way!!

P.s. The pjs haven't left me today

raeh

wow i just realised thats something else i never put down to fms.... sore hair!! i have quite long hair and if i tie it up for work my head is so bruised feeling after a couple of hours i cant even lie on it!

hello everyone btw

to the people [cant remember at this time of night who has just said what] who said about pain thresholds, i said a while back that i think re: the fms pains i have a high pain threshold but if i get a paper cut or something small it really hurts like hell and takes ages to heal. the kitten has scratched my arm and i look like iv been self harming , they will probably be there for weeks too :rotfl:

am i the only person that cant cope with hot baths?? we have a big double sized bath with the jacuzzi but i just cant lay in it as it makes me so uncomfortable, my back hurts even if i put towels in to lay on and pad it out and its almost impossible to get myself sitting back up and out when iv laid there but i love standing in the hot shower, that really seems to ease my muscles

unity i never go to work without my hair done and face on if i ever go out without make up people ask if im ill as i look so bad but if im not going anywhere i cant be bothered wasting the energy putting it on lol. but i have had people comment about how i cant be ill when i look 'good' all the time

when i said im strong in my arms, i meant if im lifting something big and have my arms round it im fine but i cant manage anything with my hands? i drop things and dont have the dexterity to do things, its really frustrating i have trouble with pans and lifting trays from the oven all the time

oh and im not even attempting multi quoting :rolleyes:

good night everyone, i think iv totally got fibro fog now as its taken me ages and ages to write this lol and correct every few words

bigzippy

raeh wrote: »

wow i just realised thats something else i never put down to fms.... sore hair!! i have quite long hair and if i tie it up for work my head is so bruised feeling after a couple of hours i cant even lie on it!

I have the same thing. My arms get REALLY achey if I maul about with my hair for anything more than a few seconds and when I attempt straightening it too...it just seems to be too much to ask of my poor arm muscles these days. :rolleyes:

raeh wrote: »

am i the only person that cant cope with hot baths?? we have a big double sized bath with the jacuzzi but i just cant lay in it as it makes me so uncomfortable, my back hurts even if i put towels in to lay on and pad it out and its almost impossible to get myself sitting back up and out when iv laid there but i love standing in the hot shower, that really seems to ease my muscles

I very rarely have a bath tbh raeh. It kind of has to be a last resort. I like the warm water (but the effort of getting dry again is too much to even think about sometimes!) but the rigidity of the bath to sit/lie in is too much most of the time. I seem to be one of the few people with ME to actually have the swelling at the base of the neck (that the term actually technically refers to) and I really struggle to lean my neck against anything comfortably.

raeh wrote: »

unity i never go to work without my hair done and face on if i ever go out without make up people ask if im ill as i look so bad but if im not going anywhere i cant be bothered wasting the energy putting it on lol. but i have had people comment about how i cant be ill when i look 'good' all the time

All I have to say is this: http://www.cafepress.com/cp/moredetails.aspx?showBleed=false&ProductNo=88737854&colorNo=0&pr=F

raeh wrote: »

oh and im not even attempting multi quoting :rolleyes:

Wimp!

bigzippy

sharon59 wrote: »

Elmo-l get lots of swelling of hands feet and tummy and go to a support group and it seems a common fibro thing despite what the drs may tell you!
Dont think this dull cold weather helps although if its above 70f l also get worse so no pleasing me!

Ditto. My stomach looks most perculiar these days. I'm hoping at least some of this is due to the Amitriptyline, but I've also always put it down to the IBS before
I'm not sure any weather can please me - I'm always too hot or too cold :rolleyes:

somebody_else

bigzippy wrote: »

I've come to the conclusion that if I have any more bluddy tests/procedures they can knock me out first!

Oh, me too. I've told them that if they want to do anything more invasive than a blood test I want a GA. I'm fed up with being told, "this won't hurt" when it bluddy does!