loss of benefits for Disabled Son

autismmum

oh yes the carers assement took 1 year of nagging then ... result, got it and im so lucky so many dont, we have loads and loads of washing due to ... issues, both my sons are auistic so my little one now 11 lol (not really little)
will still get dla and wftc for him, but big A will be at special college till 19 then is ema will stop and i assume the wftc will reduce quite a lot, i cant work much due to responsabilities but hubby does over 40 hrs is IB A BENIFIT? just wondering what it stands for? ty

calleyw

autismmum wrote: »

oh yes the carers assement took 1 year of nagging then ... result, got it and im so lucky so many dont, we have loads and loads of washing due to ... issues, both my sons are auistic so my little one now 11 lol (not really little)
will still get dla and wftc for him, but big A will be at special college till 19 then is ema will stop and i assume the wftc will reduce quite a lot, i cant work much due to responsabilities but hubby does over 40 hrs is IB A BENIFIT? just wondering what it stands for? ty

IB is incapacity Benefit it is for people who can't work due to illness and disability. There are special rules for under 25 years old. Normally you have had to paid NI contributions to get it.

http://www.direct.gov.uk/en/DisabledPeople/FinancialSupport/DG_10016082

Yours


Calley

calleyw

finningley1 wrote: »

Hi There,

He will be able to claim IB but I will not be entitled to Tax Credit unless I go to work for over 30 hours per week, as you will know that will be hard to do If you look after some-one with Special needs you never know when you will time off work for various things.

My husband does not have such big needs as your son. And he is able to go out on his own but can't walk far before he is in discomfort and it tires him out.

But I also don't believe that he is 100% safe at home which is where he spends most of his time. But I have no choice but to work full time as he only gets lower rate care DLA (which I still think is wrong) so no carers allowance earn to much to get tax credits as a couple :rotfl:. Never mind that is a lot less than the national average wage. Have to to pay mortgage and full Council tax as we have savings.

I sit at work and worry all the time if he is all right. I don't let him use the cooker while I am not there so had to buy a microwave. I don't like him going up and down stairs with out me there. My husband pays for my mobile phone bill so that I always have credit to keep in touch with him at all times.

I have numerous appointments to attend due to my husband condition as he no longer has a driving licence. And they are between 36 and 50 mile round trips and not practical for public transport. I was working here before my husband had his stroke and I have attitude of tough if my boss does not like then he can sack me and I will then go for unfair dissimal. But I know that will not happen.

This week just gone I had one appointment friday afternoon and another monday morning. But I just make up the time.

Yes it is not easy but it can be done if you can find a good boss. I stay in lower paid job with no pension and only SSP because of the need to be flexible.

Could you not work from home or set up your own business as that would allow you to be more flexible and put in the 30 hours a week?

All the best.

Yours


Calley

autismmum

thanks all, well i am a trained counsellor so i could work from home i guess, but i was thinking of relocating and setting up a kennels and cattery, my son A & C could then help and i could legitametly pay the a wage, i am going to do a part time dog handler course and my sons stages college course gave him a cert in animal care, he's ok with cats but i wouldnt let him go on a dog walk in control of an animal even in a secure area , i just wouldnt think an owner would like that, any suggestions

space_rider

I have a daughter with a chronic health problem which is getting worse. I too will get to your situation and I won`t be able to increase my hours as she will need too much care. I will simply have to sell my house and downsize.

autismmum

thats so sad, and unfair. have you checked all the alternatives? ask mencap maybee they can suggest something, or the independant living fund.

madhouse

space_rider wrote: »

I have a daughter with a chronic health problem which is getting worse. I too will get to your situation and I won`t be able to increase my hours as she will need too much care. I will simply have to sell my house and downsize.

I think the thing that a lot of people don't appreciate is even if the person you care for is out during the day, a lot of carers are up a lot of the night as well. When are you supposed to sleep!!! Nobody would think it reasonable for someone who wokrs nights to work every day as well!!

autismmum

absolutely we change sheets and re settle our sons at night, we used to tae it in turns but hubby works 40 rs now so i do it, and now ive got fibro myalgia and lol were all a bit crippled feel 60 most days lol gotta keep a sense of humour though, being a carer is hard isnt it.

finningley1

Hi
Totally agree with all the above sleepless nights hard work etc.
I have been known to fall asleep in a chair when I have had visitors round very embarrassing but totally shattered sometimes.
If My Son wakes during the night that Is It he will not go back down so you have to cope with It.
It Is hard work but one smile or a laugh from him and my heart melts even after all these years bet all carers feel the same!

When My Dad was alive he helped and I have a older Son but he lives away from home now and has his own life as for Sons supposed to be father the less said the better no contact or any help in over 14 years but he has missed out not us, just wish the benefits would make carers lifes more comfortable.
Well going to do the daily washing Bless Him !