loss of benefits for Disabled Son

finningley1

Many Thanks
No He can not work He Is confined to a wheelchair has severe Learning Difficulties Epilepsy and also Autisum.
He needs a lot of care from feeding him medication washing dressing etc.

Apart from all that he Is a Joy to be around Is always Laughing and thinks life Is one big Laugh Pity I dont at the Moment but never mind there are a lot of people worse of than us!

Zara33

Could you perhaps reduce your hours to take you in line with the threshold for ca.

Swan_2

finningley1 wrote: »

Many Thanks
No He can not work He Is confined to a wheelchair has severe Learning Difficulties Epilepsy and also Autisum.
He needs a lot of care from feeding him medication washing dressing etc.

Apart from all that he Is a Joy to be around Is always Laughing and thinks life Is one big Laugh Pity I dont at the Moment but never mind there are a lot of people worse of than us!

I'm glad you came back

once you get past all that negative stuff :rolleyes: there's lots of positive advice here for you

finningley1

Thanks For That Glad there are Nice People On this Forum, and that they are not all like some of the More Negative Ones who have been putting their Opinions In.

Gemmzie

Finningley, have you tried getting grants at all? Okay it's not permanent income, but you might be able to get a heating grant or a grant towards respite care. Sometimes it's little things that can make life more comfortable for you both.

I commend you as a carer, all carers work long hours and save the states millions per year. I don't blame you for wanting to make life as comfortable as possible for your family.

Careful_with_that_Axe

I really don't know if I can offer anything that hasn't already been posted by the supportive members of MSE (who are the majority), except talking to a Welfare Rights specialist. I think you can get in touch with them through the Council.
My nephew who is at the severe end of the Autistic Spectrum is 15, so my Sis has yet to go through the particular issues you are facing.
All the best to you and your family.

Careful_with_that_Axe

p.s. tried to keep previous posts questioning dubious statements neutral, even though my head was about to explode!

finningley1

How Right you are sometimes It is better to be dignified and not lower ourselves to some peoples standards!

Can not remember the saying totally but it is a shame some people can not live a day in other peoples shoes!
Will get in touch with a welfare rights person Thanks Again

LadyMorticia

I don't really have any advice benefits wise as I'm not clued up on the system that much really but I just want to say you have my support and I hope things get better and settle down soon.

****hugs****

xx

madhouse

This is the issue I have with Carer's Allowance being so low. I am a full time carer to a child with autism. Sensory problems mean that he is unable to cope in a school environment and too intelligent for a special school, therefore I teach him at home. At present the I feel the money I receive to allow me to stay at home is adequate. However most of this is made up of other benefits, due to husbands low income . (It was recommended that he change jobs as son needed consistency of care and overtime/shifts in previous job was stressful) and son being a child. However we are aware that when our son is 19 our income will change but we are unsure if his needs will ( still hoping things will change). Carer's allowance is supposed to compensate for not being able to work but at just under £49.00 for a full time week it comes nowhere near. We are now trying to cut back dramatically to prepare for the massive drop in income to come in he future.