loss of benefits for Disabled Son

finningley1

Hi Again,
It depends where you live I suppose.
But when My Son goes to the DayCentre when he reaches 18, which will be In April, the centres are not like school and there will be a charge for him going there.

I am not saying there should not be a charge(before all the dogooders jump on my case again!)
When they stop your benefits as well as the usual things still to pay for there is also additional services that are now extra
I was talking to a lady yesterday her Daughter Is now 18 and she like me Is a single parent and has to pay a Mortgage council Tax the same as most people
Her Income has dropped by 500 pound per Month so she can only afford for her Daughter to go to the Day Centre twice a week..

dmg24

finningley1 wrote: »

Hi Again,
It depends where you live I suppose.
But when My Son goes to the DayCentre when he reaches 18, which will be In April, the centres are not like school and there will be a charge for him going there.

I am not saying there should not be a charge(before all the dogooders jump on my case again!)
When they stop your benefits as well as the usual things still to pay for there is also additional services that are now extra
I was talking to a lady yesterday her Daughter Is now 18 and she like me Is a single parent and has to pay a Mortgage council Tax the same as most people
Her Income has dropped by 500 pound per Month so she can only afford for her Daughter to go to the Day Centre twice a week..

I would definitely speak to social services about getting some funding for the day centre. I know someone who used to attend a day centre and this was paid for by social services. Unfortunately he is not allowed to go anymore because he 'played up' too much (you wouldn't believe that the purpose of the service is to support those with learning and behavioural problems) x

finningley1

Hi DMG
Totally agree I know a lady who works at Day Centre and she tells me some are not allowed to go because they Play Up!
As you said why on earth are thy going there In the first Place.

Have not had my Son Yet That will be fun, He can be a handful In a funny Way Though! They will know It when he arrives.
Some Councils do charge for Day center Provision some-times a nominal Payment so It depends where you Live.

donnalove

yeah i symathise with you , its really hard. i have 2 children on dla one lower one higher, we get 3 premiums on ctc which comes to £5000 a year then theres the normal child rates, luckily this will drop in steps, the first when my eldest reaches 19 in 3 years and the second in 8 years so i have time to plan ahead. but it is an awful amount to lose.
You also have the added cost of paying for transport to these day centers. It seems there is an awful lot for when your child is classed as a child, but not when they reach adulthood but have the same needs.

you should make sure when claiming IB that he gets the age addition, not a lot but every little helps, he should automacticaly qualify for this.

hope it works out for you

bestpud

How long is the day centre open? I know it's not the best but could he go every day while you work? I realise you have to pay for the centre but if you'd be better off by working 30 hours, it may end up being the best option.

Have you thought of getting work in the day centre even, or another one like it? You would certainly have the right skills for it and you would be home when your son is. I say that as the people I look after tend to have school type holidays from their day centres, which would make it more difficult for you to work more hours in some jobs.

I'm sorry if those are rubbish ideas - I'm just thinking off the top of my head really and don't know your full circumstances!

finningley1

Hi Bestpud
Thanks fo those ideas might be worth considering,as he will be at day centre for hopefully the full week.
Also compered to the school term he will go there for most of the year by that i mean they have very few holidays, so i could go for another job.

thanks again
x

Js_Other_Half

Have you investigated the Independent Living Fund for help with his personal care expenses? If he has a transitions key worker that is the sort of thing they should check out.

Also as other have said, direct payments may help.

autismmum

um, sorry to seem mad and out of the loop but my son is 17 and im very worried about this... will it happen to me? A is 17 and on dla ongoing no end date given, does this mean it stops at 18 ??
also on another trac the council pay direct payments for me to have laundry done and a gardener.. get a carers assesment.

autismmum

so my wftc will change when A gets to 18 and then .... he lives on what? ah i see, yikes, wished i'd thought of that sooner.

finningley1

Hi There,
No He will still keep his DLA.
If you are on tax credits that might change In our case when My Son leaves His Special School at 18 and goes to a local day centre His Child Benefit obviously stops also His Ema also His Chilld Tax Credit and also I will lose the Working Tax Credit I got. so As I said over 800.00 pound per Month.
He will be able to claim IB but I will not be entitled to Tax Credit unless I go to work for over 30 hours per week, as you will know that will be hard to do If you look after some-one with Special needs you never know when you will time off work for various things.

It depends what area you live In we do not get any sort of help with Laundry as you can Imagine some times with seven bed changes a week It does get a bit of a bind, that Is why my electric bills etc are enormous I have Had a assessment done, you are lucky In that sense that you have that It Is nightmare as you will know.