Mooloo's struggle with babies and bills

adarynefoedd

Sorry if somebody has posted this before but the Family Rights Group Friends and Family carers message board might be of interest to you http://www.frg.org.uk/family_and_friends_forum.html good luck with what you are doing, hard and difficult but the right thing!!

SuziQ

Glad to hear biggestofmooloos eye is fine Mooloo-unfortunately I have just started a second attack (2 in 6 weeks-I was only off treatment for 11 days!) Hope the treatment works better for me this time.

Jo4

Mooloo, I am glad some things are starting to go right for you but I hope they continue to go right for you and yours. Glad your sisters eye is alright again.

lolababy

Agh! social services. Iv not read all of your posts so forgive me if you have already had this put in place. Social services hold places open in nursery and childminders for children deemed to be at risk. It might be worth putting this to the social worker in order to get extra help.
You sound like an amazing woman .

Savvy_sewing

adarynefoedd wrote: »

Sorry if somebody has posted this before but the Family Rights Group Friends and Family carers message board might be of interest to you http://www.frg.org.uk/family_and_friends_forum.html good luck with what you are doing, hard and difficult but the right thing!!

At the moment my link is broken, but I will have a check out of this a bit later today. Thanks very much. There is so much on this site it is easy to miss things.!!:rolleyes:

Savvy_sewing

SuziQ wrote: »

Glad to hear biggestofmooloos eye is fine Mooloo-unfortunately I have just started a second attack (2 in 6 weeks-I was only off treatment for 11 days!) Hope the treatment works better for me this time.

Sorry to hear that your eye is still playing you up. Biggest of Mooloo is just desperate to be able to wear her contact lenses again, but still has to wait another week.!

Savvy_sewing

lolababy wrote: »

Agh! social services. Iv not read all of your posts so forgive me if you have already had this put in place. Social services hold places open in nursery and childminders for children deemed to be at risk. It might be worth putting this to the social worker in order to get extra help.
You sound like an amazing woman .

Hello lolababy, thank you for this information. No I didnt know that they hold places. I will be asking them this week.! I am very frustrated that I have to ask for everything! (And still dont really seem to be getting much help!). Its all very well them coming to the house every week or so, and talking but they really are not doing things very fast. Even the referral to New Horizons is tentatively going to be in the Summer before she gets there, if at all!. I am not going to hold my breathe. I just need to gather my strength to do battle.
Its so frustrating.!!

Savvy_sewing

p.s. I am not an amazing woman, just a normal Mum who is frustrated that she cannot get help when its needed. After fighting for everything that we have had, or not managed to get, for the last 20 years its part of the course I suppose. Its just been wearing me out a lot!. I dont seem to have the drive I used to have. I sit back on my laurels a lot more now then I used to. I have lost the oomph to argue thats the problem. So I then get frustrated with myself for not being on the ball anymore.! I think I do tend to beat myself up for not being organised and efficient enough, but if I am having a bad day I just want to take my tablets and rest. The fight goes out of me a bit on those days.
(Think today is going to be a bit of one of them. I have brought the laptop into my bed, got BF's big dressing gown on, and GMTV on the telli in the bedroom. )
I cancelled going out in the snow, I was supposed to have accupuncture this morning, and a session in the gym later. But I really dont like the snow, I fear I might fall, and my joints are bad enough. I havent cancelled the gym, but I am about to. I just looked at the time and I really wont be ready. My tablets are only just beginning to kick in. So bit of a non productive day for me today.

duchy

This is wh[FONT=verdana,arial,helvetica,sans-serif]at drives me NUTS. The help is out there but you [/FONT][FONT=verdana,arial,helvetica,sans-serif]are expected to KNOW to [/FONT][FONT=verdana,arial,helvetica,sans-serif]ask for it-which is impossible when you don't know it exists. Post 16 support is dre[/FONT][FONT=verdana,arial,helvetica,sans-serif]adful -it's [/FONT][FONT=verdana,arial,helvetica,sans-serif]as if they thin if they ignore you long enough you'll go [/FONT][FONT=verdana,arial,helvetica,sans-serif]aw[/FONT][FONT=verdana,arial,helvetica,sans-serif]ay ! Keep on [/FONT][FONT=verdana,arial,helvetica,sans-serif]at em Mooloo ([/FONT][FONT=verdana,arial,helvetica,sans-serif]and re[/FONT][FONT=verdana,arial,helvetica,sans-serif]ally I should follow my own [/FONT][FONT=verdana,arial,helvetica,sans-serif]a[/FONT][FONT=verdana,arial,helvetica,sans-serif]dvice too)
[/FONT]

Savvy_sewing

HI Duchy, I hope things are ok with you? I forget you have similar and probably worse problems with your family. The aspergers side of the twins was the mildest part of thier problems when they were diagnosed when younger. They had ADHD, Dyslexia, dyspraxia, and mild autism. I can forget that sometimes becuase I see no hyperactivity in them at all. Its all inactivity. I wonder if thats becuase they grew out of that, or the amount of ritilin they had when younger? Who knows. The dyslexia is in DS as well, but they seem to take that in thier stride, although they do not read much which I find hard as I love my books. The dyspraxia means that they are very clumsy and are often covered in bruises. !
Now of course it is on my mind that it may filter through to the babies. As yet I cannot tell, but of course I didnt see anything in the twins until after they were two really. Anything I did see that I thought was not right I was always told was "its becuase they are twins, or its a twin thing, etc etc." But I did fight that all the time.
I try to still fight, but somedays its such an effort. Maybe the fact that I have been a single mum for over 15 years is quite tiring, and now when I was expecting everyone to have flown the nest, or at least only expected to have DS at home!
I have asked him if he still plans to stay with me, as a few years ago he nearly went to live with his Dad, and as he has applied for a mechanics apprenticship at the same firm as his Dad, I wonder if he will want to live with him to. But at the moment he still plans to stay here. That is a comforting thought, but I am aware that his Dad has often tried to persuade him to live with him and his new wife. (Well not so new now, probably about 4 years ago).