Mooloo's struggle with babies and bills

Errata

Just a suggestion and hope it helps.
After every meeting or telephone conversation write to the organisation / people involved along the lines of "It was agreed that blah blah blah would happen by blah blah and blah blah has responsibility for blah blah. If I have misunderstood please reply to me in writing advising me what was agreed". Don't wait for anyone to confirm anything in writing - you write to them first spelling out what was agreed.

~Chameleon~

duchy wrote: »

So Queen of string I don't see your post as being in the least bit comforting but just another sign of how badly young people with mental health issues and disabilities are treated-it's an absolute disgrace !

Interesting point of view, as I actually found Queen of String's post to be very useful and insightful into how the "system" actually operates, albeit in a diabolical manner, and thought it might give Mooloo some hope in that now they are in a crisis situation something will be done to help the twins and they won't be left on the street, so to speak.

Savvy_sewing

~Chameleon~ wrote: »

Interesting point of view, as I actually found Queen of String's post to be very useful and insightful into how the "system" actually operates, albeit in a diabolical manner, and thought it might give Mooloo some hope in that now they are in a crisis situation something will be done to help the twins and they won't be left on the street, so to speak.

I did find the post comforting in a sort of way. It made me realise that it is not me thats mad, its the system.!
I have to stand tall and not back down.! (I doubt I could continue to cope anymore, anyway!)

queen_of_string

Just to clear any confusion, I know it is hard to know how to interpret a new poster's posts. I am not in any way suggesting that what is happening here is acceptable or desirable. the company i run now is my own, private company, born from a desire to provide a proper service and me being unable to continue to peddle the policies of the council and the system.

My hope was to provide a little info from someone who has worked on the other side and to reassure mooloo and her family that what she has done is right and is the most likely way in these times to get the support for her girls that they need to be enabled and empowered to be independent and have a normal relationship with their other family memebers.

I am as horrified and appaulled that the system continues to run as it does when so many of us out here on the front line as carers, families and as those providing services know that prevention is better, quicker, has less long term harmful effects, keeps families together and people well and able to function in society and life. It is also of course cheaper, but coucils are not set up to spend in order to save, it doesnt tick their performance boxes, only fire fighting and responding to crisis do that. It's criminal really.

Savvy_sewing

Queen of string, I am understanding what your saying completely. It is unfortunate the way the system runs, but there is not a lot I can do about it.
I just get very frustrated, becuase I feel as if my hands are tied!.
Tomorrow the teenage support worker is coming around in the morning. I am going to take notes, and then as suggested, put them into a letter for confirmation.
I am a fairly articulate person, so I will make sure that they "hear" what I have to say. They cannot fob me off anymore!. There is only so much that I can take, and I am not going to take it all lying down. If you get my drift.
If my health had been better, I would have probably wanted to do something in the private sector myself. Alas I have not the strength at the moment.

BF has just suggested we go away for a few days in July, so we are off to Prague!!! Yipee.

Savvy_sewing

I am trying to remain positive and active this morning. Alas the mess is pretty standard now!. No matter how often I ask for the family to pull together, it is now just pulling apart.!
Both the twins bf's staid again last night. So there is more plates and cups lurking.
I have just got one of them to hang out the wet washing, while I sorted out the rest of it into appropriate piles etc. Woken the other one up, and he is on emptying the dishwasher, and re loading it, I hope.
Twin2 is cleaning sticky fingers off of the patio doors, and twin1 is marshalling the babies in the garden at the moment.
Once I have caught up with my emails, and here, I will be back on sorting out the recycling! I cannot believe that DS forgot to put the bins out again!.
It is the only job I ask him to do really, and he still doesnt do it!.
If he doesnt pull himself up when we move into the cottage there will be another battle of wills going on!.
At least it will only be his and my mess and not anyone elses!.
Time to put some clothes on, cant have the social coming and I am still in my PJ's !

jha

Hope the meeting goes ok for you Mooloo. :grouphug:

SuziQ

Hope you get a much more positive meeting today Mooloo.

jha

Hoping you had a nice weekend mooloo:beer:

Savvy_sewing

Hello, I had an extended weekend. I was so tired, I just couldnt face coming back home on Sunday afternoon. So I came back yesterday morning.
On Friday one of the Social Workers from the teen support team came to see us, as I expected. Mostly she waffled. She has told us that she was off to a meeting with the Daventry Support Team, where she was handing Twin2's case over. She said that the housing option is still there, although they may have to go into B&B first.
Yesterday afternoon, twin1's teenage worker came, she said, that the girls are on the list, priority, and she is putting the case accross at a meeting on 1st May. (So thats Friday). Meanwhile the health visitor then telephoned to tell me that they were in a meeting the other day, and that the hand over from one social team to the other is going to happen here at my house on the 6th!.
Nice to let me know!.
Since the doctor changed my medication last week, I am in a lot less pain, but I am also sleeping a lot more too!.
Been trying to keep calm, and not panic about things. Although that is very hard.
I am excited that I will be getting the keys to the cottage on Friday, but worried now as Biggest of Mooloo has again split up with her BF, this time she made the move. But he was supposed to be getting a van to help me move as he did when we came here in October!. I dont have enough funds to hire a van myself.
I am off to the doctors now for some accupuncture.
Tomorrow I have to go to the "Pathways to work" interview. That will be interesting. Who wants to employ someone who is needing a sleep every afternoon?
Right I better go or i will be late.