Aspergers/ASD support thread

Mics_chick

Does anyone know of a good site where you can get social stories and other visual aids from?
I've been referred to one site by the paediatrician which is good but they only have single pictures available for you to use as you like.
I just wondered if there was a site where they have "ready-made" series of pictures for certain situations?

starnight_2

That would be good if anyone does as my DS still won't wear clothes in the house! (Well he wears underwear).

I'm here for a wee moan. Feeling sorry for DS today. Took him to school, managed to get there on time YAY! But he walked into the playground, skirted halfway around the edge and stood there. It made me realise how much help he still needs in social situations, he just didn't want to walk through the other children to find his friends!

Now saying that, I also realised how lucky he is. He has had the same friends since he was 2, and his best friend spotted him and went to him taking along a few other people. I just don't know what I would do if he didn't have such good friends. Even his CAMHS doc has said they seem to help him a lot.

mimmy1977

Mics_chick wrote: »

My situation isn't exactly the same as your Mimmy but I wanted to post coz I want to reassure you a bit if I can.

My son is 5 (6 in Jan) and was diagnosed with Aspergers only 3 weeks ago and in a way felt like a blessed relief for me
It means I understand him more and can give us both more leeway.
I don't see alot of his behaviour as naughty anymore and I don't feel so guilty if I lose my temper when he is really being trying (I suffer from PND so can have a very short temper myself some days ).

I think whatever your child is like you can worry about them anyway but it just means your worries change if you find out they have Aspergers or any other "un-obvious" condition.

My daughter is 7 and still can't read really so I have been worried about her more than my son as my sister wasn't diagnosed with dyslexia until she was in her 40s!
I've got an appointment with the headteacher tomorrow morning to try and get them to finally get her tested - I've been put off by her teachers whenever I've tried to discuss it at her parents evenings.

They have always seemed to offer more support with my son coz he is more demanding/challenging than my daughter who is very quiet, easy-going and helpful.
I'm very happy with the school in alot of ways coz it has such a friendly happy atmosphere but I am frustrated by the way they've handled my daughter's condition.
I have been very "up-in-the-air" myself until recently because of my PND but now I feel more on top of things I'm not going to let them off the hook anymore.

Sorry to for the rant about my daughter's condition but it was just to show that in some ways it is more positive than other situations coz you get offered more help and support for yourselves and your child.

As for your child feeling the odd one out just try to explain it to them as a positive thing.
My son is very advanced with his reading but is also very funny.
Sometimes this can be very annoying when he wants to be like Harry Hill and I'm trying to take him somewhere or get something done quickly but it makes him unique and lovable in his own way

I hope this has helped - even if it's just a little bit

It did thank you,I suppose I want people to see him how I do a lovely kind loyal little boy.

Savvy_Sue

starnight wrote: »

That would be good if anyone does as my DS still won't wear clothes in the house! (Well he wears underwear).

:rotfl: How much does that matter? Our completely non-Aspie DS3 still loafs around in nothing but boxers, given the chance, and he's 18! If anyone comes, he dashes upstairs quick to put jeans and shirt on, but it wouldn't bother me if he didn't, as long as it didn't bother him.

It's really bizarre, because we don't have the heating on high: there's me in about 6 layers, and him in his boxers! :rotfl:

kittiej

Hello all

I took my DS to the hospital yesterday to see a consultant paediatritian.

I am going through the process of having DS assessed for ASD which is turning into a long process. Anyway this consultant (who we've never seen before) asked if I wanted a Fragile X DNA test done on my son. I agreed to this but was wondering if anyone else has been offered this at all?

The results take about 6 to 8 weeks to come back so it's a waiting game.

starnight_2

Savvy_Sue wrote: »

:rotfl: How much does that matter? Our completely non-Aspie DS3 still loafs around in nothing but boxers, given the chance, and he's 18! If anyone comes, he dashes upstairs quick to put jeans and shirt on, but it wouldn't bother me if he didn't, as long as it didn't bother him.

It's really bizarre, because we don't have the heating on high: there's me in about 6 layers, and him in his boxers! :rotfl:

Yeah, I suppose it's not a major thing, and I don't mind his running around like that. It's when we get unexpected visitors he runs and hides upstairs rather than getting dressed and coming back down. :rotfl: Though most people are just used to him now, at least he no longer strips in public.

Mics_chick

starnight wrote: »

Yeah, I suppose it's not a major thing, and I don't mind his running around like that. It's when we get unexpected visitors he runs and hides upstairs rather than getting dressed and coming back down. :rotfl: Though most people are just used to him now, at least he no longer strips in public.

Could you keep a dressing gown or something similar in a handy place downstairs for him to put on if someone comes? Would he put it on if you told him to?

Vicky123

kittiej wrote: »

Hello all

I took my DS to the hospital yesterday to see a consultant paediatritian.

I am going through the process of having DS assessed for ASD which is turning into a long process. Anyway this consultant (who we've never seen before) asked if I wanted a Fragile X DNA test done on my son. I agreed to this but was wondering if anyone else has been offered this at all?

The results take about 6 to 8 weeks to come back so it's a waiting game.

When my son was diagnosed at just before his second birthday fragile X was all part of the procedure, so he had the test, it came back negative which paed said was good, he is profoundly autistic though and now 13.

starnight_2

Mics_chick wrote: »

Could you keep a dressing gown or something similar in a handy place downstairs for him to put on if someone comes? Would he put it on if you told him to?

I did use to have a dressing gown for him, though it's something to think about again. I'm not sure if it's the fact that once he has all his clothes off he forgets to put back on or he just doesn't like the feeling of them, or a mixture of both which is what I suspect.

debtmess

may i say hello x

have found this thread from one is disability and dosh x

my youngest son is 4 he was diagnosed over a year ago (june 2009) with asd he has just started in a unit within a infant school and has settled in and doing well in a class of 8 (all boys) who are between 4 and 7 years old.

i have friends etc but very few people i can talk to about my ds