Aspergers/ASD support thread

fazeypie

Have you considered a childminder with experience of children with AS? Have you asked your employer if you could switch your job to term time only, or ask if you could work different hours in school holidays? I'm not too sure how employment law stands when you have a child who is classed as disabled. Although it does sound like you may have looked into all of this already.

leongal12

Try childminders- there are some out there with experience and they usually have more flexibility- contact the Family Information Service. They may have someone who specialises in helping parents of children with additional needs find childcare that is appropriate. Check out what is being offered with Aiming High in your area- government programme to increase opportunities for children with disablity to access community activities there is also something called DCATCH- Disable Children's Access to Childcare. You could always try the uni- find a trainee teaching/psychology student looking for work- interest and common sense hopefully and trainee teachers have had an enhanced CRB (Criminal Records Check ).

Mics_chick

I had the visit from the social worker today - he was a very nice chap called Dean - and it went very well
It was just like a friendly chat really and we both came away with a short list of things to find out about

covlass

fallen_angel_69 wrote: »

I'm having a really hard time trying to find holiday clubs for my dd who is 12 I live in Coventry I have been to sure start the carer's center and disabilty services All holiday clubs only run till children are 11 years old Has anyone here have any ideas of anywhere that does childcare just for school holidays including xmas one Leaving her on her own just is'nt an option because of a/s/d

I have the same problem coventry city council do do a lot of activities for disabled children and the age ranges are getting better.

http://www.coventry.gov.uk/ccm/cms-service/stream/asset/?asset_id=35880042

Sadly you will have to stay with your daughter if she needs one to one. My daughter has been on a woiting list for a one to one support worker to enable her to attend some of these activities for over a year now, so the only time we get too go is when i take her.
Here is another link which may be of help

http://www.coventry.gov.uk/ccm/navigation/education-and-learning/special-needs-and-inclusion/coventry-parent-partnership/coventry-snip-snap-special-needs-information-and-advice-handbook-for-parents/

fallen_angel_69

Thanks for all your replies and help I'd never even heard of DCATCH and thanks for the other links I'm at the stage where i'm beginning to panic The trouble i have with my job is i can't work term time only Llyods would rather just replace me it would be easier for them that way My boss is good to me though if she is ill he just lets me have the day without pay When she was being bullied at school i never got a call from the school till 2pm asking her where she was It turns out i'd took her to school and she'd walked out and let herself back into the house My boss let me grab my coat and run and i had to try to find her I went home to get the car as i walk to work and she was in the house I've never been so scared in my life that'd she gone missing and angry at her for doing it The house was in a really bad way with water in bathroom all over the place and the shower running half microwaved food everywhere I went mad at the school that they hadn't let me know and they said we'd tried your mobile and didn't get a reply from you till 2pm I explained i work in hospital and we have no signal Then the cheeky buggars actually rang the works number and asked where it was as if i was lying to them ...lol They now realise they have to ring the work number and they even have works e-mail to get in contact that way (Lloyds have a hosp contract so i kind of work for 2 people)

The diabilty action team said they would get a social worker to contact me on Mon she rang Tue and said she would get back to me that day I'm going to contact them again on Mon It's a good job it's just a childcare problem not a major one else anything could have happen to her in the meantime I thought social workers were meant to help and protect children I'm glad i've never had to deal with one before

Mics_chick

Do you have any house rules to help your kids (with or without ASD/Aspergers) to know where they stand and help them to behave well?
Also do you use any sort of reward system for your child - either a reward chart or something else?

Mandles

Mics_chick wrote: »

Do you have any house rules to help your kids (with or without ASD/Aspergers) to know where they stand and help them to behave well?
Also do you use any sort of reward system for your child - either a reward chart or something else?

I have 3 kids and smallest has aspergers. My rules are no fighting or fighting games(including computer games with fighting), no eating sweets or chocolate in front of my little lad (as he is not allowed these (and this has made a difference to his behaviour), no shouting at each other as my little lad will join in and shout and get nasty.
As my lad is small we have sticker rewards for good work/ behaviour. Also little lego toy rewards when he is really good. Older kids also have treat days out and their own room away from their little brother so that they can play with friends in peace!

Mics_chick

Mandles wrote: »

I have 3 kids and smallest has aspergers. My rules are no fighting or fighting games(including computer games with fighting), no eating sweets or chocolate in front of my little lad (as he is not allowed these (and this has made a difference to his behaviour), no shouting at each other as my little lad will join in and shout and get nasty.
As my lad is small we have sticker rewards for good work/ behaviour. Also little lego toy rewards when he is really good. Older kids also have treat days out and their own room away from their little brother so that they can play with friends in peace!

Thanks for that Mandles

How old is your little boy?

Mandles

Mics_chick wrote: »

Thanks for that Mandles

How old is your little boy?

Mine is 5 years old. He will always has aspergers behaviour but without any doubt in my mind , his diet has made a real difference to his behaviour. So if anyone is struggling i really recommend seeing a homeopath/dietician or someone like that. I know a very good one who operates in scotland and london (got to be quick to get london appointment though).
I know it is not for everyone but for me, changing his diet has made him much calmer and made him a little bit more "here" if you know what i mean.

I read your earlier post. My son sounds a bit similar to yours in the wandering off and being a bit uncontrollable bit, although my lad has poor speech and is very behind the other children education wise. Is your son bad enough to be statmented? My lad has got a statement and this has enabled the school to get extra funding so that he has a one to one helper. Probably looks awful but he does better sitting facing a plain wall with no distractions as he is incredibly easily distracted.

I don't know if "earlybird plus" operates in your area but this is a course that you and the teacher or helpers can go on as to how best to deal with him. Also you could (or the school could) try to get someone in from an autism group to give the school stratergies to deal with him. I don't think he should be sat like he is being naughty in the corner like that. My lad is allowed more outdoor time than the other children if needed as he can't concentrate for long. That is why it may be an idea to get him statemented as it is then easier to get help as he will obviously need someone with him to be outside on his own. Or they could take him to the special needs room. The autistic society have fantastic advice so you could ring them. As they told me, under the disability act, the school have to provide and adapt to meet his needs.

Mics_chick

Mandles wrote: »

but without any doubt in my mind , his diet has made a real difference to his behaviour.

What changes have you had to make to his diet Mandles?