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Aspergers/ASD support thread

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  • Done that already - their rep accompanied me to his first MA meeting about 6 weeks ago! The school have only just got the EP involved and from what I understand, they need the nod from her to proceed! We're having another MA meeting in mid jan so I'm gonna wait until then and if the EP isnt on side, the battle will commence lol!

    The school aren't very helpful when it comes to special needs (although this term they have been more helpful than before). They've only got 8 statemented children out of over 400 kids! I get the feeling they dont like it to reflect on the school badly!
  • Savvy_Sue wrote: »
    sibbing

    Sibbing - Self Injurious Behaviour
  • Savvy_Sue
    Savvy_Sue Posts: 47,324 Forumite
    Part of the Furniture 10,000 Posts Name Dropper
    Dainty1976 wrote: »
    They've only got 8 statemented children out of over 400 kids! I get the feeling they dont like it to reflect on the school badly!
    Yup, some schools are like that.

    If you think he can cope in mainstream, but not this one, then start looking at others. Not all mainstream schools are equal: some really do well for special needs children, others would rather they weren't there.
    Signature removed for peace of mind
  • Thats the plan if he doesnt get a statement by the end of next year. Only problem is, that the next nearest school has four form year groups so 120 kids in each year which I know he cant cope with. The reason I chose his current school is because they only have two form year groups and I thought it'd be easier on him at the very least. The other school, has a great reputation for being more accommodating, but the environment is much more chaotic and they do a lot of freeplay in the lower years meaning that there are kids running around all the time everywhere, he'd freak out at that!

    His current school definitely have an air of "Special Needs??? Not here dear!!"

    I have to find a solution to this problem if it comes to it though - I may even move house to be closer to a better school if I have to!
  • I spoke too soon...

    Elder son was excluded again - this time 5 days for attacking sub maths teacher. Thankfully he has just finished his schoolwork and goes back tomorrow.

    Looking forward to escaping house arrest...

    Here's something that's been on my mind this week while cooped up here...

    Can an Aspie who is very very bright, very advanced with reading and appearing as above average in all subjects at end of year 2 and 3 still have ADHD as well??? (He's now year 4)

    I understand that ADHD is normally associated with reading/learning delays but that Aspies can appear within the average range when they ought to be excelling. I also understand that it's the front bit of the brain that determines ability to concentrate on reading and that is the bit that usually is underperforming with ADHD. His short term memory is also very good. I think this is why the paed is thinking not ADHD for my elder son (but younger son probably has it and will be assessed).

    However, the more I sit at home with the elder one during these exclusions trying to get him to do his work, the more he's driving me crazy...

    He's up and down, fiddling with things, looking out the window, trying to chat about other things, standing on his chair, crawling under the table, arguing about his answers, wanting to take breaks, etc etc etc. I am telling him sit down and focus but even with me sitting next to him the whole time and trying to stop him from running off, the work is taking way, way longer than it ought to.

    I notice no difference between the two boys when I am trying to sit them down and explain something, beyond clearly one is excelling and one is behind academically and in terms of understanding. No-one wants to make good eye contact and actually listen...

    Or is all the inattention/lack of concentration just inherent with the Aspieness anyway???

    mousy
  • i have 2 sons diagnosed with ADHD. the one with the severest adhd, is actually the one who is brighter academically, he has always been above average in reading, tho his writing is very poor and most work has to be done on a pc, so others can read it
    loves to knit and crochet for others
  • Perhaps I should have said above average in all subjects except handwriting... My son's is pretty dire too. I have been asking at CAF meetings if we can sort some help for that but nothing's been forthcoming yet.

    I realise that that's a normal Aspie thing anyway.

    mousy
  • Hi All,

    Does anyone know where I can get some decent and free PECS software or symbols? I've spent hours trawling through the web and come across a few semi decent sites, but not very comprehensive in themselves.

    So far I've looked at:

    pecs.com
    ispeak.co.uk
    do2learn.co.uk and
    slater software

    Am losing the will here and getting desperate as I need to crack on and make more home-use resources asap!

    Thanks
  • covlass
    covlass Posts: 562 Forumite
    " I would not change you for the world, but I would change the world for you"
    Proud to be parent of a child with Autism:D

    When I see your face there's not a thing that I would change 'cause your amazing just the way you are
  • covlass
    covlass Posts: 562 Forumite
    Dainty1976 wrote: »
    Hi all,

    I was wondering if anyone has any tips/advice re: sibbing!

    My son has gone from a lovely placid boy to a nervous wreck since starting school in Sept 09 (He's in mainstream at moment, school are being slow about wanting to start the statementing process - I'm going to do it myself come January if they still haven't).

    He is self harming pretty much all the time now and I'm at my wits end as to how to get him to stop. I hold his hands away from himself and he tries to bite himself instead. He kicks walls/furniture to try and hurt his feet, scratches his arms, legs, face and eyeballs, pinches/slaps/punches himself, pulls his hair, headbutts walls, bites his wrists and arms it goes on. His vocal ticks are also increasing - even when he seems calm, he cannot fight the urge to shout out or scream/grunt. His little sister is becoming more nad more scared of him each day and often cries and runs away to hide from him when he's shouted out really aggressively!

    He's now started kicking and pushing me too! Kicked me this morning - I was so shocked for a second, I just stood there!

    I've tried swaddling him in a blanket which sometimes works (as I've learned that deep pressure helps at times but he doesnt like being held) - but mostly he will continue pinching himself under the blanket!

    It started off just when he was upset but now he's doing it whilst sitting watching tv, or walking down the street or in any mood! If ANYONE has any advice, I'd REALLY REALLY appreciate it!

    Thanks

    Has your son got an occupational therapist, may be he has some sensory needs.
    being swaddled in a blanket as you say he enjoys it possible because of the sensory feed back he is getting. try and get hold of a weighted blanket.

    Again self harming could also be because of the sensory feedback, mt daughter has badly damaged her hand and wrist as she bites it so hard, we try to encourage her to use a chewy tube but she is not excepting it very well.

    Talk to an OT you will be amazed at what type of things are available to give the sensory feed back in a safe controlled way.

    Items we use:
    Weighted blanket
    Hugging vest
    Chewytubes
    Peanut balls
    rocking chair
    " I would not change you for the world, but I would change the world for you"
    Proud to be parent of a child with Autism:D

    When I see your face there's not a thing that I would change 'cause your amazing just the way you are
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