No "T" words mentioned at all - the continuation thread

Elona_2

TA

i remember the feeling of guilt when trying to coax DH to eat or drink the enriched drinks and also when I eased back a little hoping he would catch up. You know you are already doing all you can and will play it by ear so that he can relax and it is so difficult to get a balance.

The idea of a drip or tube does sound like a good idea if it is possible. Hugs

TravellingAbuela

ELONA I remember well the struggles you had with your DH when he was ill and also your happiness when the wedding blessing you had both planned actually happened. A lovely memory for you.

POLLY the eating/digesting problem is still a bit of a mystery. It came out of the blue way back in late March and the diagnosis kept changing between each person we saw about it, Neurologist, Oncologist, Gastroenterologist and various GPs. No help was found other than a referral to a Dietitian and Nutritionist and that wasn't really any help either. He can eat very little and has been surviving on nutrishakes, Fortisip drinks etc and custard, hot chocolate, soup without bits in etc. In the process he lost 3 stone so it'sno wonder he is weak and tired is it. I feel bitter now about all the time wasting that went on.

LYN some lovely words from you as always.

Take care one and all xx

Elona_2

IA

DH used to really enjoy smoked salmon and scrambled eggs and home made berries and cream that had been semi frozen. I am still trying not to be bitter about the year of useless biopsies that were not taken deep enough to show anything.

Hugs

scottishminnie

You are all such wonderful friends to me. I just can't let myself open up to anyone else and you have no idea how much it helps just being able to blurt it all out here.

Ive had real wobble tonight with a close friend. She recently lost her dad unexpectedly and her mum needs full time care so I hadn't shared any of this with her. I got a real lecture about not keeping things from her so there were tears on both sides but I promised to be more honest with her.
I'm starting to accept its just going to be a roller coaster for a while.

Lainey- I'm in desperate need of a haircut so I would happily let you trim my mane! I can't wait for the weekend when I have a trim booked. My fringe is so long I feel like a highland cow looking through a hedge

pollyanna_26

Oh SM it is a rollercoaster . Trying to spare others is a mine field and sometimes you can't do right in some cases . I found it was best to be open with those who matter to you otherwise they can suddenly be hit with something they knew little or nothing about and feel hurt and excluded .
It's a learning curve and no one gives you an instruction manual so you're learning while already worried and stressed yourself .


I'm glad you can now use your thread as an outlet although not glad you need to . You've supported us all through good and bad times so we want to help and support you too .


Love polly x

candlelight_2013

Hello all,


Very close and muggy here today and I didn't sleep very well last night. After lunch today I sat down in the chair and promptly fell asleep and slept for about an hour and a half, never been known.


SM I think if you can manage to open up a little it will make life a little easier, but I know you haven't been brought up that way. Sharing problems, with people you trust can help.


Talking about hair cuts, I think this hot weather has made my nails and hair grow much faster. I had a nail appointment this morning and my goodness I needed it.


Well Lyn you are on countdown now, won't you be glad when it is all over and you are settled in your new home.


Polly are you feeling better now, I think when you have underlying health issues, any bug you catch seems to go on forever? Is your DD recovering well now as well?


TA how are you and Mr TA, has anyone been to see you yet regarding help? Hopefully Mr TA will be able to manage some of his high protein drinks soon. If you think he must have been messed about with in hospital quite a lot and that must be very tiring. I know when Himself was in he was frantic because he said there were so many buzzers and other noises from machines going off that he was desperate for sleep. Also it was an admissions ward and it was never quiet.


It looks as though we might have some rain later so must bring the washing in.


DGD is off to Paris early Friday morning until Monday, so Himself and I will be on our own over the weekend, of course the cat will be here as well.


Have a good evening xx

candlelight_2013

Lainey I think I would be considering option 3, if I couldn't have a stoma reversal when everything has healed.


Being monitored frequently is a good way to go, and if the medics think this is a possibility I would go with that. That poor girl no wonder she was very down, I hadn't realised she had had that procedure. I appreciate there are many people who have to live with it, and they have my admiration, but it must be very difficult at the start. I hope she continues to recover well xx

[Deleted User]

More than glad M'dear relieved. I've spent most of the day sorting cupboards under various sinks and that's yukky! I've had a dishwasher full of Kilner jars and decanted my shelf 'dry goods' from ordinary jars into the Kilners and now have another carrier bag for the bottle bank. He Who Knows is up packing his wardrobe, mine is in 2 boxes and just a few things left for the next week but we're almost there in terms of packing, anything not packed yet is being used. Roll on next Wednesday!

TravellingAbuela

CANDELIGHT No-one been in touch yet as regards support. The physio and OT are due in the morning re possible aids in the bathroom to help showering/bathing. We had to cancel the first visit of the OT as Mr TA had been admitted to hospital.

I have been feeling very down all day and can't shake it off. Mr TA is so tired all the time and just wants to sleep. I try my best to encourage him to try and eat something at mealtimes but I feel it's a losing battle. Though he did manage a couple of Fortisip compact vanilla bottles mid morning and mid afternoon between his tiny meals. He was given some Fortisip Yogurt drinks in Raspberry flavour whilst in hospital and said he enjoyed those. I asked his GP if he could prescribe him some and he was happy to do so (despite the exorbitant cost!) and I can collect those tomorrow from the pharmacy.

I must try and fit in a shopping trip tomorrow too as the fridge is looking very bare, as is the salad & veg box and the fruit bowl. I don't like leaving Mr TA as he is but eldest DGD (now 14) has offered to sit with him and keep him company. He won't be much company for her as he will probably sleep the whole time I am missing.

Night night all and I hope you have a peaceful worry free one xx

candlelight_2013

TA, no wonder you are feeling down, it is time help arrived to support you and help Mr TA. Its all very well the OT coming with regard to showering or bathing, but if the poor man is asleep most of the time perhaps someone could come in and take over from you with the bed bath each day. You seem to have slipped through the net. Perhaps those people coming tomorrow could phone a few people.


That is good DGD will sit with him, you can't leave him on his own, but you really need a break, even if it is only to do the shopping. Please try to look after yourself, I really worry about you.


I hope you manage to find sleep tonight, and if I start worrying in the night I try to think and visualise one of my favourite places in Italy. I know you have been several times, and like you I know we will never be able to go again but I try to think of the beautiful places we went and it seems to calm me.


Sleep tight TA xx