OS ways and Poor Health

caronc

pollyanna_26 wrote: »

Lovely to see caronc here . Remember you're the glass half full girl .It is devastating to learn things wont improve but as you say it's better to have an honest opinion than to keep trying different things . You have the double whammy of early retirement too so much to work through . I believe you'll get there as you keep on adjusting and find the new norm .

I have some energy now so think I'm over the bronchitis . House has been pretty much doing the bare essentials over the last two weeks but as I'm out all day tomorrow and Friday I'll get stuck in at the weekend .
Take care all
pollyx.

Thanks polly x. I hope you have well and truly seen the back of the bronchitis. Remember the housework isn't going anywhere so if you can try and put your feet up at the weekend. I find if I don't wear my specs I can see the dust and stoor therefore it doesn't exist:rotfl:;)

pollyanna_26

candy Pets can be so comical when it comes to the tv . DD2s big lab is addicted to the supervet series (she in turn is addicted to the man himself!!!) They spend hours watching all the episodes and every now and then this huge dog tries to get behind a large, slim and rather precarious tv to find all the dogs . Cue a mad rush forward to steady the set and drag him away .
One of my cats was addicted to football matches and spent the whole 90 mins sitting watching the progress of the ball . at half time he would head to his food bowl in search of something tasty and then come back for the second half .
Noone here watched snooker but if it suddenly came on tv he would jump on top of the set and lean over the screen and bat the ball with his paw back and forth . We didn't dare switch it off as he would throw a hissy fit . Those matches can last a long time believe me . I'll always miss him but not his fondness for snooker .

maddie What a tumble . I think you took your mum's words a bit too seriously there . Sending healing vibes to you and dearest dog and how good of your OH stepping in to take care of you both .
Don't ever worry about not posting . With this thread it happens when it can , that's the whole thing people here understand if you don't show your face for a bit . We all have those times x

caronc Excellent idea about the specs . After talking about my memory earlier I made a cup of tea and then spent ages trying to remember where I put my glasses .
So if I can't see dust it isn't there , advice taken
polly x

pollyanna_26

Apologies to LW I was feeling happy I'd caught up and then noticed I'd missed your reply to my earlier questions . I didn't spot it within the quote . That printer sounds just right and as I'll be near Argos in a couple of days saves faffing with deliveries . I use the scanner on my old one a lot . No idea how much medical and dwp stuff it's copied over the years but it is a lot . The printer is groaning now , I reckon it's ready for retirement and has paid for itself many times over.
Could you somehow persuade your husband to get down with the kids and wear some sort of headphones or ear defenders to block your voice when you are working through the dog stuff?
If you've done all bar the rib and joining up it could be worth doing just a few rows at a time . I'm more tempted to pick up the cross stitch at this time of year as it's more pick up , do a bit and then put down again . I find with knitting I like to do a fair bit at a time . i remember Prinzess quite some time ago saying to Kittie (I think)
that a few rows knitted was a few less to do . Maybe that would be a way to do it .
I am also needle phobic so lucky the flu injection is not recommended for me . All the offspring are the opposite so I don't know where mine comes from . Here I'm urging everyone to have their jabs if advised :rotfl::rotfl::rotfl:
Hope the cinema visit was ok .
polly

candygirl

I went from being needle phobic, to having to self inject .No choice about it, or i'd be even more immobile 😩There's sadly no other option.
Just bern trying to watch the asperger's programme on 2, Bonnie saw Chris Packham's dog n went nuts :rotfl:
MADDIE, Hope you and the pets are better asap xx

Tink_04

Evening all!

I've prepped the things for my beef casserole ready to chuck in th SC in the morning! Doing ok with the menu plan this week so far (ok it's only Tuesday still)

Thanks Pollyanna I've pulled myself together a bit and am trying onwards an upwards! I had some counselling a few years back I'd had my DS and was diagnosed with PND then the MS a month or so later. It was very strange -it was 121 sessions and it was more the person talking at me and me filling out stuff at home? I didn't get much from it really! The GP annoyed me but I'm going to see my nurse and hopefully get some tailored advise! I'm part of the MS society already and attend some groups too which is good for me too.

Just being nosey what is PA?

pollyanna_26

Tink There are better forms of forms of therapy and therapists out there . You need someone who will listen rather than talk at you . DD had some rubbish ones over the years and then our Dr referred here to one who helped make a massive change . The feeling lost and overwhelmed can be helped by decent CBT . See what your nurse thinks if you don't want to see the Dr yet .
Meanwhile how many hours do you work ? You don't sound very well at the moment , do you get sick pay if you have a couple of days off?
In fact unless you feel working helps it is worth considering whether you would qualify for PIP and if applying prior to giving up work would be affordable .
You don't need to reply to that if you don't want to . I'm just wondering if it would work for you ..
Wishing you a restful night .

candy You're braver than me with injections . DD was originally going to self inject with the MTX but changed her mind . I don't know why as she's not bothered by needles . I suspect it was the fact that a nurse would be entering the house which she sees as her safe place until she was settled on doing it herself .

pollyx

Tink_04

Pollyanna I only work part-time 2-3 days a week, I’ve only just gone back in September after being off for a while. I’m a lot better than I was but still struggling at times! I also get the lower element of PIP - my job is a lovely little job and great hours it’s sometimes the at home stuff that is hard! I don’t think the winter helps either. I did go for a walk today with my mum and it cleared my head a bit. My mobility is not great and I think the extra struggle just makes the days harder!

maddiemay

Tink_04 wrote: »

Evening all!

I've prepped the things for my beef casserole ready to chuck in th SC in the morning! Doing ok with the menu plan this week so far (ok it's only Tuesday still)

Thanks Pollyanna I've pulled myself together a bit and am trying onwards an upwards! I had some counselling a few years back I'd had my DS and was diagnosed with PND then the MS a month or so later. It was very strange -it was 121 sessions and it was more the person talking at me and me filling out stuff at home? I didn't get much from it really! The GP annoyed me but I'm going to see my nurse and hopefully get some tailored advise! I'm part of the MS society already and attend some groups too which is good for me too.

Just being nosey what is PA?

Tink PA is Pernicious Anaemia, Vitamin B12 deficiency another auto-immune condition. The body cannot make the substance (Intrinsic Factor) which enables us to convert B12 from our food. We could eat our own body weight in B12 rich foods, but never absorb any of it hence the injections forever.

There are other forms of B12 deficiency, some vegans for instance, the symptoms and effect are the same, but can sometimes be treated by taking supplements and diet. As with many auto-immune conditions it can have variable effects from quite mild to very, very nasty:(,

Sorry did not mean to write an essay:o

pollyanna_26

I'm glad you got out for a while Tink . You need someone to listen to those fears . Come here as much as you want to talk things through or just let off steam . Your challenge will be getting the support the NHS should offer appropriate to your needs . We can talk and listen but you also need that trained help too .
Maybe some brain storming here will help ease the load in the situation regarding all that needs doing at home . You are achieving things by planning and preparing good meals . You gave the children good memories from the summer holidays and you sound loving and caring . I know you are trying very hard to make things work and if you stay at work you will have support from us here too.
I'm glad you already have access to the MS group and the support is helpful .
I'm a firm believer the weather and shorter days of winter has a big impact when you have poor health whether physically, mentally or both . That's why I like the Hygge concept . Things don't seem so bad when you can snuggle down with cosy throws and a mug of hot chocolate . When you aren't too tired seasonal crafts with the children can make those warm memories .
Mobility seems to be a problem but there are others here that can advise better on that .I have only basic wheelchair , crutches and sticks experience via my daughter .
It sounds as though you enjoy your job so that seems important for your wellbeing .
The thing that stands out for me is the fact you had PND followed shortly by the diagnosis of MS . I had PND after my first child and understand how it impacts on you . I didn't then have a life changing diagnosis within a short time .
Unless you had some good therapy back then there will be unresolved issues as a result . There does need to be time to mourn the loss of the life you imagined when you have the diagnosis and you will have had a baby to care for during and after the PND . All these years on i can still remember sitting on the side of the bed while my son howled and the tears ran down my cheeks because i didn't have the energy to pick him up and comfort him .
Well if you haven't gone to bed I'll leave you to do so now and i hope you sleep after your walk and my my waffling .
Sleep tight Tink ,
pollyx.

pollyanna_26

THanks for your post candy. I was trying hard to remember how to spell it:D If you think that's an essay my post must be a small book
pollyx