Just so tired now.

aliasojo

elisebutt65 wrote: »

At least I only have 2 more of these to go

Hang on in there, all this will pass. :grouphug:

SadieO

elise, I have only just seen your post but I wanted to offer you some sympathy and commiseration. I was diagnosed with BC three years ago when I was just 32 :sad: I went through the whole raft of treatment - chemo, surgery, radio, herceptin and tamoxifen. I had a Hickman line too and found it incredibly traumatic. Possibly the worst thing out of everything. So I wanted to tell you that you are not alone in finding it so awful! Like yours, my medical staff were all telling me it was a doddle compared to everything else I'd been through (I had mine done quite late in the game, they tried with my veins for as long as they could). Well that's easy for them to say :mad: Also, I remember well the horrendous bone pain caused by those white blood cell injections :sad:. One piece of advice I would give you is to speak to your doctor and DEMAND stronger pain killers. I tried to soldier on and in retrospect am cross with myself for doing so. And, in true money saving style I hope you know you can get a prescription exemption card, so you shouldn't be forking out for pain killers - get them prescribed instead.

Good luck with the rest of your treatment - honestly, radiotherapy is fine. The biggest pain is getting there and waiting around! If there is anything else you would like to talk about or ask me please feel free. I remember thinking it was never going to end - but it does, I promise! I am just taking tamoxifen now and that is very minor compared to everything else. So just keep counting down till your holiday. I have used insure pink too and found them very reasonably priced, plus they were very helpful and pleasant when I had to phone them to check something. And something else to look forward too - the day you have your line removed will be a very good day indeed

Very best wishes to you, and to everyone else going through this too xxxx

Errata

One piece of advice I would give you is to speak to your doctor and DEMAND stronger pain killers.

I agree with this. My oncologist insisted on prescribing me morphine so it was there if I needed it. She pointed out I needed all my strength to deal with the treatment, so I didn't need spend it on easily controlled pain.

System

So glad others who have been/are going through the same thing are here to give you support.

I can only send you big hugs but they are genuinely meant.

elisebutt65

Clinic day for me tomorrow & my line never bleeds back, so more needles
Then 5/6 chemo on Wednesday: Blehhhh!

Got my final sick note sorted and hopefully I'll be back to work on June 16th . Have my btw interview on tuesday to arrange a phased return, but I only have to work until the end of term (30/06) and then I'm off until September on full pay during the holidays, which is why I'm going back ASAP. I'm actually dying to get back to see my year 2 students before they leave for Uni. I've missed them all.

Going to ask for morphine this time as the Filigestin was an absolute nightmare. Also need eye drops as my eyes are a real state now most of my lashes are gone.

Bennifred

Good luck for tomorrow and Wednesday Elise! xx

dotchas

Not sure who told you that radiotherapy would melt your implant:eek:
Theres a possibility that radiotherapy may harden the implant but its by no means certain.
I had radiotherapy in 2009 after a reconstruction with implant. I have to say there was no noticeable difference. My treatment was over 5 weeks so a lower daily dose but the same total dose. This was to reduce any potential damage to the implant.
I have just had my implant changed but that was due to having been put in the wrong position in the first place!!! I now have an even cleavage LOL!
Good luck with your appts, you WILL get there, I promise xxx

tayforth

Just read your thread elisebutt65. No advice to offer I'm afraid, but I wanted to also offer my support and prayers, and a big (((((hug))))). Best wishes to you and yours xxxx

newbutold

Just wanted to send you a massive hug OP.

I can relate to lots of your feelings in your first post, but only from a bystanders view, having lived with a relative through a 18 month cancer battle. Especially sympathise with the bone pains that your White cell growth injection causes, my relative suffered very badly from these. (I
have yet to read the whole thread.)

Best wishes xxx

poet123

Wanted to send my best wishes and wish you well.