Just so tired now.

System

No wise words from me either but i want to say big (((hugs))) and keep talking on here if it helps you. You shouldnt have to go through it with no one to talk to.

Ich_2

Don't close your mind off to radiotherapy

Totally agree, the medics have to warn of all possible side effects but the equipment is set up to reduce these effects and they will provide medication if needed.
I sit in the waiting room with a bunch of folk all going through the same and it's quite chatty (busy last week as one of the two machines was being serviced)
I too was worried by it but after talking to some that had been treated in the past I became less concerned.
In fact the biggest issue is the boredom of a 90 mile round trip each day

j.e.j.

I can't help much but I really wish you all the best elisebutt, and I think you posting so openly on here about the things you are going through may help others. Your 13 year old needs a good talking to, imo. I know he's got the teenage hormones, but that's no excuse for saying such awful things.

Is there a forum for people who have had or are having this kind of treatment? I wonder if that may help you a bit, talking or writing to people who have been through similar and who know how you are feeling right now.

elisebutt65

Thank you all. MSE at its very best . I've just got up!! DS1 brought me 2 sausage & egg mcmuffins, a hash brown & hot chocolate. Far superior to burnt toast & rubber eggs of previous years . Then I got a Thorntons chocolate plaque from DS2 and slippers from both of them. So not being too bad. Then I went back to sleep.

Neck is still so blooming sore and my dressing is itchy as heck. Getting it flushed and re-dressed tomorrow.
I also have to see if the dentist can see me tomorrow as I cracked a tooth where I was clenching so hard during the procedure and the rough edge has really cut up my tongue.

I was going to give my old 3GS to my youngest but he was so horrible yesterday that I gave it to DS1, who is delighted. Hopefully DS2 realises the lesson there. I gave him a cuddle when he let me and he's being a bit more 12 than 13 today. Unfortunately the phone giving caused a row with my OH who thought he should have it to give to his son! Gah!! Families!!!

I think I may have to let go now and then as you have advised, or I'll end up awake at 3am more & more. The stiff upper lip isn't actually doing me any good at all (Apart from giving me heartburn)

I'm also going to put picture up in place of mirrors as the 7+ x daily shocks as I walk past them will give me a seizure soon. I can't get used to the Matt Lucas look however much make up I put on.

Ill try & practice with my scarves more, but its hard as my right arm isn't working properly now. My wig is actually gorgeous as Warwickshire NHS cover the cost of any wig from their suppliers and mine was about £270, plus I got it trimmed to fit at T&G. It's just it's hot and itchy and I feel really self conscious in it. I might get some tape so I'm convinced it won't blow off

I've also realised that I've developed chemo brain. I tried looking at all those quoted threads and I can't actually stay focused. It's like pregnancy brain and I hope it clears up when treatment stops or I'll go mental from forgetting where I put things, or what I walked into a room for.

Right, time to take some parrots and hit the sofa again. I really need to get some new cushions for it, as 3 months worth of lying on it constantly has worn the existing ones into pancakes.

elisebutt65

j.e.j. wrote: »

I can't help much but I really wish you all the best elisebutt, and I think you posting so openly on here about the things you are going through may help others. Your 13 year old needs a good talking to, imo. I know he's got the teenage hormones, but that's no excuse for saying such awful things.

Is there a forum for people who have had or are having this kind of treatment? I wonder if that may help you a bit, talking or writing to people who have been through similar and who know how you are feeling right now.

I've found the breast cancer and Macmillan forums, but I like it here better, and I don't want to be a newbie all over again.

gadjah543

On a practical note when I had to wear a wig after chemo I bought the silicon gel stickies you get for putting in shoes to stop you getting blisters.Wherever the wig was itchy I put the stickies in and it really made the wig bearable to wear.

Errata

elisebutt65 wrote: »

I've found the breast cancer and Macmillan forums, but I like it here better, and I don't want to be a newbie all over again.

Snuggle up chuck, snuggle up - we know your funny little ways and you know ours
Good tip about the mirrors :T I think I developed the ability to look in the mirror and blank out the bits that were :eek:

Ich_2

One of my fellow radio therapy folk looks to be about your age and has lost her hair. She just wears a woollen hat!

trevor_john

Hi Elise,

Just read this thread, you've had some really wonderful supportive replies on here. I echo them and don't have too much more to add. Someone suggested the gel patches underneath your wig.

I have ms and was recently injecting everyday ( I agree, it is weird having to do it in your tummy!!! ) and I used to get really hot itchy lumps and skin generally. My nurse gave me some gel patches which I put in the freezer, then after a minute could put on my skin. It was so cool and refreshing and stopped the itching. It would actually help for 2-3 hours. Hopefully this sort of thing can help you.

As someone else said, because you're feeling so low at the moment it's not the right time to make any decisions about possible future treatment. You have enough on your plate currently without burdening yourself with more.

You just concentrate on being kind to yourself.

starrystarry

elisebutt65 wrote: »

DS1 brought me 2 sausage & egg mcmuffins, a hash brown & hot chocolate. Far superior to burnt toast & rubber eggs of previous years .

Nomnomnom sausage & egg mcmuffins :heart2: