Just so tired now.

elisebutt65

Dunroamin wrote: »

I wish you all the best but I just wanted to suggest that, if you're going on holiday so soon after finishing treatment, Greece might not be the best choice. I believe that the health care system there never was the best in the world and since their recent economic problems, things have become even more difficult.

http://www.guardian.co.uk/world/2011/aug/05/greece-healthcare-brink-catastrophe

I don't want to scaremonger but, as the wife of someone with a severe and chronic health condition, I tend to be more aware of this sort of thing.

Good luck, whatever you decide to do.

Funnily enough, I don't actually see myself as someone with an illness now. I had some tumours & they took them out = cancer gone. Nothing in my sentinel nodes and the chemo & rads is the back up prevention plan.
My mindset is that once treatment is finished, then I'm all better. Just need to take the tamoxifen once a day for five tears and have the annual check ups, which is no biggie.

If I start worrying about recurrences etc, then I'd probably be in a permanent low level panic state. IYKWIM?

Dunroamin

elisebutt65 wrote: »

Funnily enough, I don't actually see myself as someone with an illness now. I had some tumours & they took them out = cancer gone. Nothing in my sentinel nodes and the chemo & rads is the back up prevention plan.
My mindset is that once treatment is finished, then I'm all better. Just need to take the tamoxifen once a day for five tears and have the annual check ups, which is no biggie.

If I start worrying about recurrences etc, then I'd probably be in a permanent low level panic state. IYKWIM?

I wasn't actually thinking about recurrences of the cancer but of late appearing side effects to the treatments you've had and possibly to the Tamoxifen as well. There's also the point that your immune system will have been knocked about by the chemo and you could find yourself a target for any virus or bacteria going.

"Expect the best and prepare for the worst".

Whatever you decide, I hope you have a great time.:)

elisebutt65

Ugh! Side effects have started to hit. My left b¥tt cheek feels like its on fire. Sleep is disturbed yet again & my stubble is snapping off. Sigh. Tried morphine last night for the first time, but didn't notice anything, so have another dose ready.

Feels weird this time around though. I seem to have to much energy in my legs (always had restless legs), but am also really knackered and in a bit of pain. Also bunged up so need to get some senna in me. Morphine will prob make that worse

Off to clinic later for jabs & line check as well. God, I'm so grumpy today!

jackieblack

elisebutt65 wrote: »

Ugh! Side effects have started to hit. My left b¥tt cheek feels like its on fire. Sleep is disturbed yet again & my stubble is snapping off. Sigh. Tried morphine last night for the first time, but didn't notice anything, so have another dose ready.

Feels weird this time around though. I seem to have to much energy in my legs (always had restless legs), but am also really knackered and in a bit of pain. Also bunged up so need to get some senna in me. Morphine will prob make that worse

Off to clinic later for jabs & line check as well. God, I'm so grumpy today!

You're entitled to feel grumpy when you feel that rough_pale_, don't beat yourself up about it.
Hope you feel better soon

DUKE

Hi elisebutt - I had breast cancer in 2009, had the tumor removed, chemo, radio, Herceptin, Tamoxifen, then switched to Arimidex when diagnosed with bladder cancer in August 2012. I survived & I promise you that you will too my dear. It's absolutely vile that chemo is! Each one made me feel worse, until the last one finally put me in bed. I also gained 2 & a half stone, luckily I was only 7 & a half stone & went up to 10 :eek: I felt like a sumo wrestler as I'd always been puny before the cancer. I've just actually come down to just under 9 stone now When I first began chemo I was like a maniac, couldn't stop talking, ready to party all night long, that lasted 3 days due to the steroids. Then I'd go downhill & sleep for up to 18 hours a day, sob my heart out over everything & anything. The only stuff I could eat was just oven chips, chocolate, chicken crisps, & bacon. I embraced my hair falling out as I'd had too many bad hair days to care, also I thought my hair coming out was the least of my problems. I'd certainly never put myself through that cold cap thing as I had enough to deal with without that too. I thought people needed to know about cancer as my lump was only 0.6cm & if I hadn't found it myself then I probably may not be here today as the cancer was grade 3 & very aggressive. I found going to hospital & talking to others helped me a lot as we were all in the same boat. My Oncologist was brilliant too & I absolutely love you Dr David Spooner! Unfortunately, I've been diagnosed with bladder cancer twice since, in August 2012, & again in December 2012. They check me every 3 months, but I'm fine. I may have the cancer gene they're just looking in to it, but I (don't tell anyone) but I actually feel like superwoman sometimes I'm so glad to be alive, it's vile, I know it's vile, but you will make it, & so will I. If you need anyone to talk to I'll always be here, things will get better, your hair will come back, you will lose your weight, but just take it easy & take care of yourself, because this is probably the hardest battle that you will ever fight in your life. We're all with you every step of your journey xxx

Gigervamp

DUKE wrote: »

When I first began chemo I was like a maniac, couldn't stop talking, ready to party all night long, that lasted 3 days due to the steroids.

Oh, god, I'd forgotten about that! Same thing happened when I had chemo. I felt great, on top of the world and couldn't stop talking. (And I'm usually the quiet one) :rotfl: It was mad. Got another round of chemo coming up, so I'll have to remember it's the chemo/steroids making me hyper.

All the best.

elisebutt65

Lol. I'm totally manic today. I think I may have to avoid MSE as have been ranting a little. (& on twitter) Actually I better avoid Internet altogether today.

DUKE

Gigervamp wrote: »

Oh, god, I'd forgotten about that! Same thing happened when I had chemo. I felt great, on top of the world and couldn't stop talking. (And I'm usually the quiet one) :rotfl: It was mad. Got another round of chemo coming up, so I'll have to remember it's the chemo/steroids making me hyper.

All the best.

Hi Gigervamp - Do you do the power walk which is where you're allowed to go straight to the front of the queue when you have your bloods done before chemo? Oh I so enjoyed doing that, I should imagine it's like walking on the Red Carpet. Wishing you all the very best - I'm always here to chat too xxx

DUKE

elisebutt65 wrote: »

Lol. I'm totally manic today. I think I may have to avoid MSE as have been ranting a little. (& on twitter) Actually I better avoid Internet altogether today.

How are you elise? Sorry about that I just went off on one there, I've obviously never stopped chatting since They don't tell you what it's like as you may or may not get side effects. One step at a time makes things more manageable.

Gigervamp

DUKE wrote: »

Hi Gigervamp - Do you do the power walk which is where you're allowed to go straight to the front of the queue when you have your bloods done before chemo? Oh I so enjoyed doing that, I should imagine it's like walking on the Red Carpet. Wishing you all the very best - I'm always here to chat too xxx

No, have to wait in line like the rest, but as I had my chemo in the mornings, I'd get there pretty much just after opening, so there wasn't much of a queue.

Having said that, waiting for the bloods results to come back sometimes took a couple of hours!