frustrated!!

Brighton_belle

sweetsheep84 wrote: »

Taking meds at the mo. Arthritis is mild but it does get painful. Have tried plenty of treatments. Nothing really works well for long and psoriasis tends to come back with vengence.

Hav you got as far as being prescribed self injecting biologic meds? You're right in that most treatments do not work long term and psoriais is relentless but for some these injecting meds have been fantastic. (sorry if you have been there done that, nothing worse than someone suggesting stuff you have long since tried)
Can recomend http://www.psoriasis-help.org.uk/ for great info and sufferer suport on the forums.

sweetsheep84

No. Havent tried that yet. TBH pretty fed up with tryig all different things lol. Gonna ask gp about that coz they havent offered that one yet. Thanks for the help

Brighton_belle

sweetsheep84 wrote: »

No. Havent tried that yet. TBH pretty fed up with tryig all different things lol. Gonna ask gp about that coz they havent offered that one yet. Thanks for the help

I understand that - it is exhausting and demoralising working your way through so many things that rarely work at all, or for long. However, your GP should be refering you to a dermatologist - a gp will not beable to prescribe any of the oral meds or the biologics.
If you have severe psoriasis you must get referred, a GP does not have the skill, experience or ultimately the abilty to prescibe anything more than creams really. Severe Ps is very debilitating and life limiting - push for the help and treatment you are entitled to.

Rev

My friends OH works 12-15 hour days. He gets up at 4:30am and doesn't get home most nights till 6-7. When he comes in he does his share. He also tells my friend to sleep in Saturday and he'll sleep in Sunday.

Once a week me and my friend go out. Have a meal, drink whatever we fancy. He picks me up in his way home from work. She passes him the baby when we get there and our we go.

She cooks, cleans does laundry, takes care of the children and anything he needs doing that he can't do because he's in work. She cooks his tea wen he gets in because she wants too. So they can sit down as a family and spend time together.

He realises he has a job just as hard as his. They have a partnership. They share.

What you have is an OH who thinks you are his slave. The 'go cook for me' look if directed at me would be met with the 'f' word. Your not his housekeeper. You're not his slave. If you want a day/night/morning off. Take it. Just get up and go out. Simple.

Ladyhawk

There are some very strong medications available for psoriasis available on the NHS. They help with the skin and the associated arthritis. Definitely get referred. These drugs have changed my brother's life for the better.

FBaby

I've written to this, but I can't help wonder if there is more to it than you say, that it is not so much about all what you do and wanting a break, but a deeper issue of wanting attention and sympathy. The fact that you have health issues does make me think that might indeed be the case.

The reason I think that because I really can't see how anyone who felt so frustrated with their workload wouldn't have made changes sooner without the need to ask advice. Actually, it is not even advice you came here for initially, but indeed sympathy.

I wonder if you might have fallen into a vicious cycle of not being given enough attention by your OH, resulting in you doing more for him to gain more attention, which only results in him feeling that it is your own doing for needing this attention, resulting in your frustration and doing even more to make even more of a point.

If indeed you feel that you partner should be more thoughtful of you and your needs, then you need to change how you approach it. Stop treating him like a child who NEEDS your help and attention, start treating him like a grown up so he can do the same back. Stop giving all your love and attention to him, start doing more for yourself. Bring in a bit more balance into the relationship, ie. make him want to do more for you so he does get more of your attention too.

sweetsheep84

TBH i dont have any need for sympathy. I get enough of it each time I go out with stares and pretty fed up. If i were here for sympathy, i would have said about my health issues sooner rather than later. My arthritis only started last June hence me struggling finding it hard to cope now. OH does not understand how painful it can get coz he doesnt have it.

I am now trying my best to help him grow up so he can share some more responsibilities.

balletshoes

forgive me if this has been mentioned before - until you can drive yourself, if you don't trust your OH to do the food shopping right, can you not just do it online and get it delivered?

Unless you and your OH enjoy going food shopping together, it would cut out one of the chores you both have to go through (it doesn't take long to do online once you get the hang of it, and will probably cut down your shopping bill too, as things don't tend to jump into your trolley all by themselves if you do it online).

sweetsheep84

Food shopping isnt a chore for us (he stays on the mag or dvd bit, just call him when i am done lol). Heard too many stories about deliveries not turn uo or weird sub lol. So i would prefer getting shopping done personally. Thanks for the idea though.

Forgot to mention about getting referred, gonna book an app with GP and get it done on monday. That should be a good start.

ms_london

Brighton_belle wrote: »

Severe psoriasis and Ps arthritis are very crippling and exhausting conditions, you poor thing. 'Not always easy' is an understatement! These inflamatory autoimmune dieases will make every task a lot harder, both physically because of pain and beause you will get twice as tired as a healthy person doing them ans your heart is already working very very heard to cope with the excess over zealous production of cell growth. Are you having treatment for these by a consultant dermatologist/rhematolgist? I imagine the excessive skin loss will addto your house work and therefore your ocd tendancies.

I agree! OP - you need to look after yourself a bit more, and your OH needs to pull his weight. Take care of yourself and your little boy, get your shopping delivered, cook meals in the slow cooker, make life easy for yourself and let OH fend for himself for a week or so. Your health is more important! Make sandwiches at the weekend and freeze them, your OH can take a sandwich out every morning -if he can't do this he'll have to starve! He sounds like a proper man child and not a good role model for your son. :mad:

Pop over to the oldstyle board, great threads over there which might help. Wishing you all the best, don't be too hard on yourself xx