Chronic Anxiety & Depression - ESA?

gingergee

Anubis wrote: »

I couldn't manage a flight. The insurance would also be an issue as I have a few conditions and a heart condition.

Good luck Gingergee. You are very fortunate in some respects.

In that sense i am, i agree x My insurance may be a problem, they are looking into it, but if im honest with them i have nothing to worry about (apart from the cost!!) lol!
Like i have said before, i'd exchange every penny i get (partner works btw) to:
A) NOT have SLE and its associated disorders (ie the many babies i've lost, the fact i get a LOVELY butterfly on my face most days etc)
Be able to have the life i used to have.
C) My children not be picked on cos im ill.
If you want to swap lives soapn, feel free!!!! xx
I plaster a smile on each day to make the best of it, and to show my kids that being disabled, isn't the end of the world. I spent ages resenting lupus.My resentment was dragging me down. I am now fighting back! I am about to raise and release 10 butterflys for charity (lupusuk). x

Ellejmorgan

Anubis wrote: »

I couldn't manage a flight. The insurance would also be an issue as I have a few conditions and a heart condition.

Good luck Gingergee. You are very fortunate in some respects.

I got to Spain two and a half years ago, I struggled to get insurance..
For some reason if you mention morphine they don't want to go near you, i've got a bad back, legs, neck and arm...

It cost £190 in the end for one week in Spain just for the insurance, would have cost £8 if not ill...
One quote was for £300..

gingergee

My biggest worry is my blood pressure.Its usually quite high,but controlled at the min. As its long haul, im expecting to pay a fair bit. Im insured with my bank, but have spoken to them about my illness. They are looking into it, but i may need additional cover. x

Anubis_2

gingergee wrote: »

My biggest worry is my blood pressure.Its usually quite high,but controlled at the min. As its long haul, im expecting to pay a fair bit. Im insured with my bank, but have spoken to them about my illness. They are looking into it, but i may need additional cover. x

I would imagine as your doctor says you can't work, due to the effect SLE is having on your heart (and kidneys) - the heart my be an issue.

My doctor gives me sicknotes for a year at a time and knows I can't work in the conventional manner in any way. I am going to do something from home though and would be shocked if he turned and said I couldn't.

If he did say that I would still do it though - I have to for my own sanity at the very very least. i am due a sicknote in the next few weeks but hoping to have started by then so I will see what he says.

OldMotherTucker

Anubis wrote: »

My kids got bullied a lot because of me being in a chair. The real nsty kids would say things like "At least my mum's not a disabled freak" and "Your mum is a retard in a chair" etc

It really affected them and it is a combination of things like that, that my statement of not having children if I had known, refers to. There is more to it than kids being nasty but it all adds up to a difficult childhood.

Youngest told her mates i was 'in the chair' because i fell off a table dancing when drunk - waaaay more kudos all round!

Middle child has had to contend with 'My mum's Lupus is worse than your mums'
Thankfully she was genetically disposed to inherit my b!tch tongue as well and retorts 'My mum copes better and whinges less than your Mum!'

Eldest just gets on with the crap hand that life dealt him:(

princessdon

I have to say I'm really rather sadend by the comments made to your children, makes me feel quite deflated to think they have that to contend with.

Ellejmorgan

I had to go into my kids school one morning, my feet/legs were bad and I couldn't walk, this one kid walked behind me mimicking me, he was trying to take the p out of how I walked..
I dropped the girls off got in my car and cried my eyes out...

gingergee

Thats awful!!!! x Kids can be cruel.
My heart seems to be ok atm (fingers crossed). My last lupus bloods show my flare is settling slightly. Am gonna pay a fortune for the insurance aint i? lol x
Maybe i need to train the kids to come out with witty comments when something is said to them? x
My baby has got CAE. I didnt tell a soul as i didnt want the kids getting grief about that too!! But after a severe episode last week the air ambulance had to come. Now the whole (as small as it is) village are stopping asking what happened etc. The kids may get it worse now, but i hope not!! x

Ellejmorgan

gingergee wrote: »

Thats awful!!!! x Kids can be cruel.
My heart seems to be ok atm (fingers crossed). My last lupus bloods show my flare is settling slightly. Am gonna pay a fortune for the insurance aint i? lol x
Maybe i need to train the kids to come out with witty comments when something is said to them? x
My baby has got CAE. I didnt tell a soul as i didnt want the kids getting grief about that too!! But after a severe episode last week the air ambulance had to come. Now the whole (as small as it is) village are stopping asking what happened etc. The kids may get it worse now, but i hope not!! x

Hun what's CAE & SLE could you detail these conditions please as it's hard to understand what you mean, I only know about backs...

How old is baby ?? My baby is 6 months and is very cheeky and gorgeous...:)

gingergee

I say baby but she isn't really (only to me) she is 31mths.
CAE is childhood absence epilepsy. But this has progressed a bit.
SLE is . Systemic lupus erythematosus.

Which is lupus. I couldnt spell it, so copy and pasted it, now i cant get out of italics!!!! lol x