TATT-(Tired all the time) support group

clairibel

Hi all, i was diagnosed with ME 5 years ago but been suffering in total for 9 and a half years with it, just after my son was born i started to feel ill.

Over the years it has gotten worse until i sometimes feel i'm falling apart at the seams. but the fatigue is the worse especially when i'm so tired i don't want to speak, feel sorry for my family.

But I have been feeling a bit better since i have been supplementing with B12 which can show same symptons as ME and other ailments. I'm not cured but some things have become easier but thats a day to day basis.

My hair has stopped falling out and i'm sleeping better plus my fatigue on some days is minimal. I found out about it on the site below after googling something about Vitamin D which i also take and feel this helps also. But i still have a way to go. also have finally been referred to a ME specialist.

http://www.b12d.org/ I'm not saying this is the answer just some info that may help someone.

Brighton_belle

Alliboy -You have a lot to cope with. I can only repeat what WTBF said - print off what you have written and read it to your GP. Make sure they understand how back you are feeling and how you don't feel listened to.

cocalls

oh aliboy, my tierdness sounds nothing compared to what you're going through-pls tell the dr all this hope you can get it sorted soon. hugs

sweetcheeks33

I think iron in multi vitamins is ok everyday but when I have been anaemic I have bought an iron liquid supplement you will see it in any health food shop or h&b and take this too. If you check the ingredients it has the same ingredients therefore in my opinion ( and that's all it is! ) you are not going against medical advice just not getting constipated and sore stomachs bloated and unwell feeling I am choosing to swap like for like.



I use a Philips 1861 juicer and mine has been great. I use juice master website and books- not for everyone but I like his straight talking and the juices are smazing.... Good luck x

cocalls

think i may have to get myself a juicer.........

Day off work, just put little one to bed for an afternoon nap-really feel like one myself! Quite sleepy. We were out for about 3 hrs this morning getting bargains from 3 different supermarkets, soi'll count that as some exercise, a colleague has asked if id like to play badminton with them once a week which i think i'll give a go.

Trying to go easy on the bread, had a slice at lunch with the left over stew.Tea is hm chilli with carrots and courgettes added.

How's everyone else feeling this afternoon?

glowgirl_2

Hi hun:) I'm having a really dreadful tatt day:( I have a headache and slept for about two hours this afternoon until the phone rang, I seem to be getting worse instead of better, is this normal when starting iron tablets? The badminston sounds good, I think you should give it a go:) dinner sounds nice:)

cocalls

glowgirl wrote: »

Hi hun:) I'm having a really dreadful tatt day:( I have a headache and slept for about two hours this afternoon until the phone rang, I seem to be getting worse instead of better, is this normal when starting iron tablets?

i dont think so it sounds like they're really not agreeing with you-maybe you should ask your drs for another type.

LittleMissAspie

Vitamin D deficiency can cause extreme tiredness.

kittycatface

Hi everyone, I've just had a long read of this thread and am really glad I have found this post and some people who are sharing ideas and experiences. Our family (all the women in it anyway) have had lots of extreme tiredness/depression/lethargic symptoms over the past five years. I am now on a low dose of citalopram and have been diagnosed after a long investigation with endometriosis.In my experience the medics did not take account of the physical or mental manifestations of stress which I think is part of having a long term incurable physical condition. They did not advise nutritionally as to how to maximise energy levels whilst your body is busy dealing with pain.
Some of the things I do at the moment most of which are not very MSE or very medical are:
Mixing in spirulina powder with a smoothy. Its gross and expensive but it seems to help stomach issues.
I go for a walk in cold fresh air on good days
put eucalyptus oil in the bath or on my temples (read in Saga magazine that korean scientists found it as effective at pain relief as morphine!?)
We have also tried various tonics like metatone/biostrath/floradix with varying results for each of us.
My sister:s one who has recovered from legionnaires disease the other who has ulcerative colitis both recommend shiatsu for managing their recoveries. Its like acupuncture but with hands not needles, make sure practioner is registered, can be up to £30 an hr.
I have also started doing a couple of yoga and qi qong moves each day if I feel stressed. There were a couple listed on yahoo yesterday and the qi qong one involves lying flat and placing one hand over the other on your belly. Its supposed to re centre your energy. Call it a stretch or a relax if the new age terms put you off!
The NHS has dieticians that I know some of my old clients were referred to if they put on weight or were very lethargic due to meds. Worth an ask at the GP? Good luck everyone I hope I can be supportive in future x

PS; sweetcheeks the supplement you were talking about is floradix I think.

kittycatface

alliboy03 I thought I would just send you a personal message of support because the situation after your op was very similar to my mums and I really sympathise with your endometriosis. Ring the clinic and see if you can get seen on an earlier day when someone doesn't turn up or cancels, the reason it takes so long is that the consultants only do 1 day's clinic per month. We were pushy and got an appointment a month earlier. They will prob try and put your bladder issues down to anxiety (very easy when its a woman and its a hormonal thing and a male doc!) but be firm with them - it's your body and you know how you feel. if you google endometriosis uk they might have a functional support group near you, or else there is loads of info on their site for helping to manage the condition. Good luck and I am never far from the MSE forums if you need online supporters: hope you have some people around to support you day to day in lincs!