Another DLA refusal!!!

mitch161

i am too off work long term to do with health issues and i too have lived like a hermit. but seriously saying you cant afford taxis and nebulisers .. then suddenly askinging for advice on disneyland..

if your virtually a hermit for months there would be anxiety issues about going out of the home, so suddenly going out to disneyland thats a stretch too far.

and dont say you writing it as if its talking about your sister
"i have a holiday for disney land paris all booked for 30 th june with me and my 2 kids,"

sister has two kids too.. coincidence.

now for some positive advice. if you would rather be out having fun with the kids then stuck at home. and a mobile nebuliser would solve it.. then do this

go to cash converters and sell your laptop and wireless modem ring up the seller of the nebuliser on your mobile phone from cash converters and get the order organised.

then hang up the phone and sell your phone to cash converters.

mobile phones and computers holidaya should NEVER EVER EVER come 1st place to health. seriously if your breathing is that bad then sell everything you got to ensure your breathing is not impacted..

ITS YOUR HEALTH!!

luxury items like computers and holidays should not even enter your mind. even the kids xboxes and itunes u also posted about.. save the cash. get a nebuliser and go in the garden and WATCH the kids play football.

i sold everything i had to get the things i needed to stablise myself. and now i building back up to a normal life again.

luxury should never come before health. and asking for ways to push for more money. seriously i am on £65 a week paying off electric, water, gas, tv licence etc.. and im happy. as i dont go out much i am not spending much so i can afford stuff.

you should not be asking for ways to increase your income until you remove some luxurys in your life.

its disability LIVING allowance not disability LUXURY allowance

cancel the holiday and ask for a refund. oh and if you do have a sister and you truly are on the poverty line. then ask your sister to buy you a nebuliser for a early birthday present.

no new clothes, no gift vouchers.. nebuliser or nothing..

your health should come first

robpw2

zaksmum wrote: »

Well, all you have to do is pop out and get yourself hit by a bus and disabled for life. Sorted.

Doesn't mean that you will be disabled to get dla on any given day ,its all down to whats in the head of the descision maker, Some of the reasons they give for refusal are priceless

wheezymummy

My god there are a lot of detectives on here arent there, shame none of them can seem to read properly!!

Last time i checked i had 3 kids not 2, another example of people jumping to conclusions and making their own assumption, ignorant to what they don't want to hear any thing to get a little dig in!!

This seems to have turned into a debate forum one I'm no longer willing to participate in with small minded arrogant people and im not willing to compare illnesses with people a few of you are like school children need to grow up and stop acting like kids I.e I've need a heart op but i can get on a bus (blue badge award to you) every one copes in different ways and every one is affected in different ways yet we are all the same!

GlasweJen

Lol, I wish it was just a heart problem.

Search the boards, you'll find that I actually have a neurological issue caused by a dysfunctional immune system where basically my body is attacking the cranial nerves which are the biggies in terms of functioning. I need a heart transplant because I got an infection in my ventricular wall following pacemaker surgery and it's rendered that part of my heart useless with it becoming more useless by the day. On top of the heart condition I have hearing loss (granted that's partly corrected by aids), balance problems, digestion problems, dyslexia and high functioning autism.

GlasweJen

Brassedoff wrote: »

Don't get me on the subject of free prescriptions for the supported countries ;-)

I hope you get your treatment tomorrow. I have two friends who had heart and lung (never knew why lungs get done, they said for some reason), anyway, I digress. They both live a full and great life and I am sure you could too. Apart from being in that could country, far too brass monkey for me.

Thanks, I know that if you need a lung transplant it is easier to take the heart out with the old lungs and use it in someone else as manoevering around the heart is too tricky. My heart is likely to come from someone with CF who is getting their new lungs.

clouty

Hi Guys, I just want to say getting DLA is random, and many people overturn a refusal on appeal. I did. Thank heavens for it, as I have a lot of expenses that healthy people don't have, medications the NHS won't supply, but keep me from becoming so ill that without them I'd have to be moved to full time care. Taxis, because sometimes it's the only way I can get to the docs or the hospital. Shopping's way more expensive when you physically can't shop around. ETC.

DLA payments enable people to stay independent. The alternative would be far more expensive for the state. For instance, Wheezymummy has three kids. How much would it cost if they had to be fostered, or put into care (god forbid)?

I hope you have appealed, Wheezymummy, and you are taking advice on how to proceed, from the CAB and/or Benefits and Work. Good luck with it.

clouty

Myalgic Encephalomyelitis, that illness that the NICE guidelines allow only exercise, CBT, anti-depressives, sleep meds and painkillers for, all of which (ironically) tend to make us worse, not better. I have other diagnoses too, but thats what keeps me from living the life.

luminated

clouty wrote: »

Myalgic Encephalomyelitis, that illness that the NICE guidelines allow only exercise, CBT, anti-depressives, sleep meds and painkillers for, all of which (ironically) tend to make us worse, not better. I have other diagnoses too, but thats what keeps me from living the life.

I too suffer ME/CFS and have done for so many years so I am one on this forum who can sympathise with fellow sufferers. I would hate to say how long I have suffered as other sufferers might find it depressing to know. I also suffer other physical problems and so after many months of deliberating during this year I finally put in a DLA claim 3 or 4 weeks ago.

I had to stop working some years ago and since have been living off savings but it is a shock to see how they have gone down. I must admit I now regret not having claimed incapacity benefit when I first stopped working as my savings would be a lot higher as they took a lifetime to amass.

luminated

beller wrote: »

Surely that is what savings are for?

Are you really suggesting that you think it right that you should have claimed benefits so that your savings would be protected?

How unreal!!

YES I DO as it would of been my right to have done so and within the law. I think the vast majority of folks would have claimed and those like me would of been in the minority.

So go away with your obnoxious & self righteous comments - clearly a troll trying to provoke reaction and scare the good folks on here.

soccermom

What a petty thread this has turned into, you should hear yourselves. My disease is bigger and better than your disease.

How sad some people are that all they have to do with their time is that.

I know someone who died off an asthma attack while out with her very young children she was airlifted out. Unfortunately she didn't recover. I also know a young girl who died of a heart condition. Both sad and awful deaths it doesn't make one more underserving than the other.

To the OP, no decision is ever really final regarding social assistance until you have appealed than appealed again. Gather your evidence get your doctor on side and get him to write a letter detailing your medical history.

I have worked as a medical secretary in a large GP practice and have had to write these letters on behalf of the patients GP. I have seen decisions reversed if its a genuine case.

Good luck