Dla - april 2011 new rules

Indie_Kid

nannytone wrote: »

i know about people in wheelchairs!
doesnt mean i can totally understand the difficulties.

I agree. I have friends and family with various types of disabilities but don't pretend that I totally understand their difficulties; because I don't. A relative is partially sighted (not what I have - her eyeball is black) and I don't pretend I fully understand - because I don't. Yes, she may have some of the difficulties I have.

nannytone_2

just been sitting here thinking.
when these big questions appear we all fight our corners.
but in the scheme of things, my sight isnt such a big deal. i just get on with what i need to do as best as i can.
its the small things that really annoy.

i have a ganglion on my hand.
bloody thing aches like !!!!!!y lol
i have tingly fingers and my wrist is weak. nothing to significant but its annoying the hell out of me lol

sunnyone

Your MIL may be better than you out of doors but that dosnt mean that all mobility impaired people are does it?

I find it very strange that you accuse me of what you are doing.

nannytone_2

sunnyone.
i said it in reply to what you have said!
and you are responding to it in exacly the same way as i did!

i was proving a point is all lol

Absolutely

I wonder what/if anything this means for my boys?

I have twins with Ocular Albinism and nystagmus. They have learning difficulties and attend a special school. They are 6 years old but cannot read/write and have the mental capacity of 3 year olds. Their last eye test was done using "Crowded Kays"?? Is that right?

Anyway, it's very hard for the Eye Hospital to get an accurate reading of their eyesight due to their learning difficulties. They can't communicate like typical 6 year olds would do.

I guess I'm just waffling. I'm always on the lookout for any posts or experiences from people with eyesight problems or sight loss. I've been told glasses/contacts will not help my boys to see any better. They will always be classed as partially sighted, but I don't know to what extent I suppose.

Indie_Kid

Absolutely wrote: »

I've been told glasses/contacts will not help my boys to see any better. They will always be classed as partially sighted, but I don't know to what extent I suppose.

Like your twins, I have Nystagmus. The glasses thing is correct. Many people with Nystagmus wear glasses because they generally have vision that is worse than normal. Glasses don't correct Nystagmus.

Absolutely

sh1305 wrote: »

Like your twins, I have Nystagmus. The glasses thing is correct. Many people with Nystagmus wear glasses because they generally have vision that is worse than normal. Glasses don't correct Nystagmus.

Sh1305. I have LOADS of questions about eyesight! lol. Would you mind discussing further? E.g. I know my sons eyes "wobble", but they can't tell me if what they see wobbles. I have been lead to believe that as they were born with nystagmus they won't see "wobbly" but their eyesight will be poor. I've also been told they won't see the same as someone who acquires nystagmus in later life - say from a brain injury as a person with previously normal vision who acquires nystagmus will be aware of wobbly vision.

Arrrrgh! I don't think I'm expressing myself well! I'm new to forums so please bear with me.

I'm just concerned as my eldest twin (by all of 2 minutes) has started vigorously shaking his head when he is tired and this makes me wonder why. I know nystagmus gets worse with stress and tiredness but it's so frustrating that the boys can't tell me exactly what they are experiencing. I just want to help them any way I can.

Indie_Kid

Absolutely wrote: »

Sh1305. I have LOADS of questions about eyesight! lol. Would you mind discussing further? E.g. I know my sons eyes "wobble", but they can't tell me if what they see wobbles. I have been lead to believe that as they were born with nystagmus they won't see "wobbly" but their eyesight will be poor. I've also been told they won't see the same as someone who acquires nystagmus in later life - say from a brain injury as a person with previously normal vision who acquires nystagmus will be aware of wobbly vision.

Arrrrgh! I don't think I'm expressing myself well! I'm new to forums so please bear with me.

I'm just concerned as my eldest twin (by all of 2 minutes) has started vigorously shaking his head when he is tired and this makes me wonder why. I know nystagmus gets worse with stress and tiredness but it's so frustrating that the boys can't tell me exactly what they are experiencing. I just want to help them any way I can.

Yes, we can discuss this if you want. PM me if it's easier for you.

RE: seeing things that wobble - people who were born with Nystagmus don't see this - because their brain has adapted. People who have acquired Nystagmus do see things wobble. I have Congenital (have had it since I was a baby) and have seen things wobble once or twice. It's very odd indeed. Alcohol is meant to help with the eyes wobbling. There is a post from me where I admitted that alcohol means I do see better.

juggy09

Hi wonder if anyone can give me a bit of advice on this.

I suffer from albinism but am not registered blind am registered parially sighted, got the phone call but got told i was not eligible because i was not registered blind.

But the think is i cant read the top letter any time i have been for an eye text.

Do you think i would be entitled to this, as i cant read the top letter on a eye chart? and if i am, what would i need to do.

Thankyou.

jonnypb

juggy09 wrote: »

Hi wonder if anyone can give me a bit of advice on this.

I suffer from albinism but am not registered blind am registered parially sighted, got the phone call but got told i was not eligible because i was not registered blind.

But the think is i cant read the top letter any time i have been for an eye text.

Do you think i would be entitled to this, as i cant read the top letter on a eye chart? and if i am, what would i need to do.

Thankyou.

On page 2 of this thread it specifies the criteria that you need to meet to be entitled to clain the HRM. If you feel that you meet this and can get it confirmed from your consultant then you could appeal against it.