does anyone know what constitutes "several times throughout the day"?

kazzah60

thank you DMG - I think I will have another chat with him about the fact that much as he wants to be EXACTLY the same as everyone else on his course, he really isn't and he can't be either
he really has worked very hard to try and be the same as his peer group throughout his life
but I think he has to accept that in some things he does need to make adaptations,
thanks for the tip about the trousers and the NHS allowing him to wear an alternative - he keeps telling me he has asked them and they insist he wears the same as everyone else
it's been a bit of a struggle with him since he left for uni - now he is an adult, he gets to talk to everyone himself and I get all the information second hand!
and not always accurately by the sound of things!
karen

bertiebat

dmg24 wrote: »

The NHS will make adjustments, even for those who are not disabled. If you think about any pregnant NHS workers, they are allowed to wear their own trousers. Does it have to be joggers in the traditional sense? I'm not sure what is out there for men, but it would be worth having a look?

Most physiotherapists I have seen wear a type of pull up trousers that look really quite smart and do not look like the traditional joggers.

On what is classified on what counts with/or without aids, there doesn't seem to be a general rule.

On my DLA form I put that I couldn't get in or out of the bath and use a bath bench and bath tap shower extension to wash. I therefore wasn't expecting for this to count towards my claim (but this was passed as a care need). The other 'care' issue I have relates to preparing a properly cooked meal (on crutches and problems with arms) which is why I expected/and got low rate care.

Crutches are an aid whose use would obviously be expected when assessing mobility requirements.

I have an issue now with doing up my bra and am looking to get stick on prostheses to resolve this (not sure what the decision maker would make of that!). Before any asks, no I have no intention of telling them!

OP good luck for your son with uni. I've had reason to deal with radiotherapists and they were a nice bunch on the whole.

calleyw

dmg24 wrote: »

This might be a solution - look like normal trousers but actually have velcro fastenings? The navy pair are also near identical to the standard NHS ones.

Thanks for that I never thought of that before for my husband. He has the use of only one hand. He has problems with buttons.

He wears draw string trousers but want to be more normal just like the OP's son.

Yours

Calley

marsupial_mama

kazzah60 wrote: »

This doesn't help your original enquiry but drawstring and elastc waisted trousers can be much easier than the conventional kind.

herein lies the problem ONW - he has to wear a uniform with regulation trousers for his school previously and now for his chosen career - and apart from that he HATES elaticated waists or drawstings or anything that smacks of "needing " adjustments - I know that seems silly- but he does try VERY hard to cope and be as "nornal" as possible- i do tell him lots of people choose to wear elasticated trousers or drawstrings ( which would still be ahrd to undo one handed) but he has always hated wearing them[/QUOTE]

Hi there. I just wanted to give you a link to belts that your son might find helpful and acceptable (I can appreciate how he feels). I used to sell these years ago when I had a little online shop. I discovered them when my older boy was potty training as a toddler and any delay due to fiddly buttons/zips would result in accident. When I started selling them for young children, I recieved enquiries from parents/carers of older children/adults who had similar needs as your son and I used to place special orders for the sizes. A couple of more chubby friends also ordered them as they held the trousers up without the belt buckle digging in when sitting down


I no longer run the business (caring duties took over), but you can order them directly from the manufacturer. They have a range of colours to choose from, including plain black or blue:
http://www.clipho.de/_language/en/index.htm


Good luck with sorting it all out!

kazzah60

thank you so much Marsupial
I shall be purchasing several

your kindness is much appreciated

Redleela

Dear Kazzah,

Could your Son's uniform (trousers) and any other favourite trousers/jeans etc. be modified by a dressmaker e.g. take out the zip and replace with velcro? I would think it wouldn't show at all if the velcro is the right colour and thickness and the dressmaker is capable. That way he can have the same trousers as everyone else and not feel like he sticks out? It might be more palatable than asking for a different uniform or having drawstring trousers?

I hope this helps.

Strapped

Oldernotwiser wrote: »

thanks ONW - but the actual problem he has is undoing his button and zip on his trousers and doing them up again when finished
and as another poster pointed out - there isn't a suitable aid to do that - it just seems strange to me that they accept he needs help to dress and undress but that needing that help to go to the toilet is being ignored and also that it doesn't constitute several time throughout the day

This doesn't help your original enquiry but drawstring and elastc waisted trousers can be much easier than the conventional kind.[/QUOTE]

I agree, many of the people I know who have had severe strokes can not manage a button or zip but are OK with elasticated trousers or the "hook" type fastenings.

Indie_Kid

bertiebat wrote: »

I have an issue now with doing up my bra

You can buy various bras that you put over your head and don't need to do up.

GlasweJen

I have bras that do up at the front because when I got my last pacemaker they severed a nerve and i couldn't move my left arm to its full range. I've used Figleaves but if you PM BlueMonkey she may be able to give you more advice on bras that you can use (hope i've got the right member now lol)!

pipkin71

mandyboops1973 wrote: »

You need to explain why using suitable aids wont help, notice how all the things they acept he neeeds help with have no suitable aids that could be used?

where as praticly everyone of the things they say he can safley do taking his time etc have various aids avalible to do them.

if you dont mention the use of any aids they like to use that against you and assume you can do everything with aids,assuming that evern with the use of aids he still needs the help yyou need to explin to them that there are no suitable aids that will remove the difficulties and discomfort he endures doing them. and explain why each and every aid doesnt help.


for example.

going up and down stairs

they can say you could use a stairlift, maby you have pain in your hips which would mean evern with the use of a stair lift you would still need help gettin on and off the lift etc

There is a section on the form that asks what aids you use and what difficulty you have with using them, so hopefully that will have been done, already