stop the dla takeaway campaign

charles47

GlasweJen wrote: »

Little red corvette, nurses would do all of that if you weren't there, that's what they are paid to do, if you had the most disabled child in the world nurses would still do that for you. The NHS is paying the nurses to do this using tax payers money, why should tax payers then fund your child to get care component of DLA and a carers allowance when they are already shelling out for the hospital costs? It's not the tax payers issue if you don't trust trained medical professionals to care for your son, that's your own problem and tax payers should not be expected to fund it.

I'm surprised you haven't suggested that the workhouses are reopened or that these parents get a job while they wait for their child to leave hospital. It must be nice in your world, so far from reality.

The fact is that families are now expected to provide the care if their adult or child has additional needs. I suggest you read "Death by Indifference", a report by Mencap. It's a real eye opener. Might do some of the readers of this thread some good.

Caring for an adult is even less fair - after four weeks they lose their benefits and it should be a level playing field. But 12 weeks is not always enough either.

Family carers are acknowledged by this government as saving them £87bn a year. And there are those who would take even more off carers.

Morty_007

ok, well i've read most of the thread and rather than fighting for a total stop on stopping DLA for anyone in hospital, i've got a shocker of an idea for you...

(to the best of my knowledge which may be out of date, apologies if so...) DLA is assessed to start with based on the care the carer provides/caree needs and the money allocated accordingly. how about they reassess while the person is in hospital? Make the hospitals responsible for saying which care they are actually providing...I am certain that there are carers who continue to provide the care as there will be carers who don't provide the care. Why penalise everyone when its clear that some people really DO still need the money?

SingleSue

I have three children with disabilities but only one receives DLA. On the occasions that youngest has been in hospital, it has been a complete nightmare with even less rest time than when he is at home (and that is pretty restricted at home). The nursing staff cannot deal with him, cannot get him to keep the oxygen mask on, keep drips in etc and it is down to me to do that for the whole time he is in hospital...it is absolutely exhausting as it is day and night with no break at all (even going to the toilet is fun, as soon as I move away from the bed, the alarms start going off as he has yet again pulled something off/out) as he just cannot cope with the new faces, the new surroundings etc no matter how nice the nurses were or how much they tried to help him. On his last hospital admission, I think I managed 1 hour sleep over the 5 days he was in...I was like a zombie by the time he was released.

Middle son however, is an absolute dream in hospital, he will sit still, do what he is told by the nurses, allow me to go off and get me something to eat or just have a little break and generally needs a lot less parental care than he would at home.

So it is swings and roundabouts, some children will need more parental care than usual and some need less.

dark_lady

Skollobcat we are not talking about A and E here. We are talking about the specialist care that disabled individuals need. But i do realise that it might be a bit of a stretch for you thinking of people with these needs as individual!

pipkin71

dmg24 wrote: »

If a child (or adult) is in hospital, their care needs are already addressed by the state. Therefore I see no need to pay DLA, which is also for care needs.

Agree, DMG.

If someone is in hospital for an extended period, there won't be any mobility or care needs associated with their disability.

I, personally, feel that the time frame for both adults and children, is generous.

Indie_Kid

pipkin71 wrote: »

Agree, DMG.

If someone is in hospital for an extended period, there won't be any mobility or care needs associated with their disability.

I, personally, feel that the time frame for both adults and children, is generous.

I agree. The disabled persons' care (and possibly mobility) needs would be covered by NHS.

nannytone_2

i think it also depends on which hospital a child is in. when my grandson was in a specialist unit, the nurses were more than happy/capable of dealing with any of my grandsons needs, but once he was returned to the general hospital, it was a totally different story. they were geared up for short stay, uncomplicated cases.
my grandson at that time was tube fed, and regularly we would come in at 8 in the morning and his tube wouldnt have been flushed, or he was sick in the night and all they did was change his pyjamas.........they never bothered washing him first!

as i said, general hospitals arent the place for any kiddie with special needs.

Indie_Kid

How many of you can honestly say that when your child is in hospital, you're giving them the same amount of care that you say you give them on the DLA form?

cyberbob

nannytone wrote: »

i think it also depends on which hospital a child is in. when my grandson was in a specialist unit, the nurses were more than happy/capable of dealing with any of my grandsons needs, but once he was returned to the general hospital, it was a totally different story. they were geared up for short stay, uncomplicated cases.
my grandson at that time was tube fed, and regularly we would come in at 8 in the morning and his tube wouldnt have been flushed, or he was sick in the night and all they did was change his pyjamas.........they never bothered washing him first!

as i said, general hospitals arent the place for any kiddie with special needs.

If the Hospital isn't giving suitable care complain. If people don't complain things don't change. Just accepting it doesn't help anyone.

Mandymull

AS mum to two girls with profound disabilties i HAVE to stay with them, either of them when in hopsital...thats thru chocie but also knoiwing that staff do not have the training to 'care' for my children.
I am a qualifed nurse myself and know only too well how little training is given to student nurses on special needs..each time we've been in hospital we have been asked to stay with the child....my girls cant talk, care for them selves, fed by tube etc.. and have huge anxiety disorders and not to mention physically disablilties...
General wards are NOT catered for such disabilites and the care needs that go with that.
so yes in my opinion DLA should not be stopped if the families are proivding the care.