stop the dla takeaway campaign

Broken_hearted

Me neither disabled adults are a lot harder to care for, there is much less help. Every time we go out we are bombarded by children's charities, they get very confused when a disabled adult says we only support adult charities when are you going to help us.

Indie_Kid

sock-knitter wrote: »

i have two children with autism, ADHD, and learning difficulties, when one of them was in hospital i had to stay with him all the time as staff just could not cope with him, he was mforever trying to escape through the fire exit. i therefore had exra costs besides travelling parking expenses, i had to pay for a carer to look after my other son, luckily my son was only in for a couple of nights

Isn't that what your other sons' (the one not in hospital) DLA would be for? For finding a carer for him.

dmg24

If people feel that the care in hospitals is inadequate, then this needs to be addressed separately with the individual hospital. I would also reiterate what others have said about the vast difference between children and adults - if you think children are hard done by, go and have a look at the adult wards.

woodbine wrote: »

its about time that all so called bed and breakfast charges related to hospital stays were ended,some have been,but to take away a CHILDS DLA is tbh just mean in the extreme,and im bewildered why so many on this thread cant see that !

Why is it mean? We are not talking about short term stays, but those over twelve weeks. How long should the funding continue - indefinitely? Should that apply to adults too, and where do you suggest this money comes from?

Vaila

i do feel rather strongly for this \cause, but i also feel that it should apply to adults too

cyberbob

woodbine wrote: »

,but to take away a CHILDS DLA is tbh just mean in the extreme,and im bewildered why so many on this thread cant see that !

No it's not mean it's what DLA is for. DLA is for care if that is being already being paid for by the state as the child is in Hospital why should they get this payment twice (which in reality they would)

charles47 wrote: »

It's a shame that people have no idea what it is like for families with disabled children.,,,,,,,,,, by the government and by others who don't understand the realities of life as a carer. God forbid they ever have to find out the hard way, like so many of us do.

What patronising nonsense why is it harder for a family with disabled children than for people with disabled adults.In reality every carer struggles be it for adults or children. I am the full time carer for my wife who is Bedbound unable to do anything for herself. So i know the realities of being a carer. What I don't expect is for people to receive money for something that they are already getting. Which is what paying DLA on long term hospital stays would mean.

Also in reality the services and support disabled children get are far more than for disabled adults. Also those of us looking after disabled Adults are less likely to have extended families willing to help with care. So I would argue that looking after a severley disabled adult can be far more difficult, but unlike you I do not think it's a competition about who has the harder job.

I just think that being paid DLA for that amount of time for children is a good deal and people really shouldn't expect more. Also if you shout about it too much the government in their benefit review may see a way of saving some money by bringing it down to the same level as Adults. I'd keep quiet if I was you it's a good deal.

GlasweJen

As a disabled person who has spent time in hospital long enough to have DLA removed I think I do have a grasp of the situation (and I was under 16 at the time too). My family simply did not provide any care for me and let the staff do it, nurses etc are hardly going to interfere in a childs care if the parents are there all the time to do that for them. These people are trained professionals, let them do their job! The only time my parents came in to see me was visiting hours as it should be. The presence of parents on a ward can actually cause a child to behave in a way that they wouldn't normally if they are left to the nurses to get on with.

JC9297

GlasweJen wrote: »

As a disabled person who has spent time in hospital long enough to have DLA removed I think I do have a grasp of the situation (and I was under 16 at the time too). My family simply did not provide any care for me and let the staff do it, nurses etc are hardly going to interfere in a childs care if the parents are there all the time to do that for them. These people are trained professionals, let them do their job! The only time my parents came in to see me was visiting hours as it should be. The presence of parents on a ward can actually cause a child to behave in a way that they wouldn't normally if they are left to the nurses to get on with.

I think it depends a lot on the disability, general nurses are able to meet purely physical care needs of a child but if, for example, that child has a learning disability and cannot understand what is happening and is not compliant they are likely to rely on the parents. This also applies to adults with learning disabilities.

For many families the child's DLA and Carer's Allowance are some recompense for the parent not being able to work outside the home. When the money is taken away are these parent's meant to magically find a job whilst their child is in hospital?

I am quite shocked by the 'children already get enough help' attitude of some people. We should be pushing for more help and support for disabled adults, rather than less for children.

Broken_hearted

Many adult carers have to give up work how do you expect them to live ? We are not pushing for less help for children just a level playing field.

Indie_Kid

JC9297 wrote: »

I am quite shocked by the 'children already get enough help' attitude of some people. We should be pushing for more help and support for disabled adults, rather than less for children.

where has anyone said that children should get less help?

Oldernotwiser

If you are working and your child/partner goes into hospital then they have to pretty well manage with the care provided. I don't really see why anyone should get extra funding just because they are free to go in and care for the patient whilst others have to carry on working for a living.