stop the dla takeaway campaign

sunnyone

Prinzessilein wrote: »

I have ASD and one of my problems is that I am an elective mute. My mother goes with me wherever I go. If I was in hospital, then I would not be able to communicate with the doctors and nurses - no matter how well trained they are. I need my mother with me - even though I am an adult.

However I accept that my care/mobility needs would be less whilst in hospital. I would not need to cook or do housework or go shopping for example.

In my case, a reduction, but not cancellation of DLA would perhaps be appropriate. The problem we face is that every single situation is different. For some, their care and mobility needs may be fully met whilst in hospital. For others, they may still need 100% of their DLA.

You are only on low rates Princess so no one can claim carers for looking after you and so you dont have as much to lose as some, if a partner cares for someone on MRC/HRC often the only income for the household can be sickness/disability benefits inc. carers allowance and when the caree is in hospital for an extended stay the only income for the household is under threat by the removal of DLA, at least where kids are concerned often the none carer parent can work to support the household.

The rules should be fair across the board, be it adult or child DLA.

Mikki

cyberbob wrote: »

No but I had a lengthy stay with my wife. When we lost DLA after 28 days. Where is this ridiculous idea that because it's a child you have to do all these things. You still end up doing these things for adults. When my wife was last in Hospital it was a pain and a struggle and I had to provide a lot of her care because the hospital did not understand her needs. I also lost my carers allowance and there is just me no one else no family to help just me. So I didn't have someone else to fall back on as you seemed to have, but I don't think it's a competition about who has the hardest job.



I'm sorry the same thing happens to adults when they are in hospital. If you lose your CA because of that you can apply for income support.

So please stop this I'm a carer of a child so it;s far harder than looking after an Adult rubbish. It's not a competition. I don't think anyone has said anything about it being harder to care for a child than an adult. All we have tried to explain is why we are still involved in care of our children while they are in hospital. I have no experience of caring for an adult so I wouldn't wish to comment on that. I have said I think it is unfair that there seem to be different rules. However, this thread was about children and DLA, not adults. If anything, it seems to be the adults who are trying to turn it into a competition, instead of campaigning themselves for their own DLA rules. It just comes across as being bitter I'm afraid.

I unlike you as hard as it was when my wife was in Hospital and we lost our benefits understand that DLA is for her care and that was the reason it was withdrawn. I had the choice as do you when our Caree is in Hospital to leave the care to the Hospital I decided not to as did you, but you could have and if the care wasn't good enough you should have complained. As you have 3 months before the benefit is taken away it's not exactly a shock and gives you plenty of time to prepare for this.

As I said earlier I think carers of children have it good with 3 months leeway. I don't begrudge you this. What I take umberance with is this attitude that Carers of disabled and sick children have it harder than anyone else just because they are children.

I haven't seen this attitude anywhere. Personally, I have nothing to compare it to - I can only explain our own situation. I'm sorry if this comes across as "we have it harder". I'm just explaining why, when my son was in hospital, he still had care needs that were met by myself. As I said, it's extremely unlikely that my son would ever be in hospital for longer than 12 weeks, but if he was, I have no idea how we would manage if DLA, Carer's etc was stopped. It seems very unfair.

syco1

Just reading through a post that fortunately doesn't affect me..... but once again I feel very depressed about the horrible people on this forum who think of no-one but themselves. What a world we live in !

wattdallas

sunnyone wrote: »

Parents and/or disabled adults have the same liabilities but at least children thave two parents to share the load with in most cases, many disabled adults have no one to shoulder things with and can often have kids to look after as well which puts the family juggling at about the same level as a single parent with children when one has a disability, all disabled people should be treated the same no matter what age.

WRONG divorce rate of parents of severely dfisabled children is in the 80% range.

Indie_Kid

wattdallas wrote: »

WRONG divorce rate of parents of severely dfisabled children is in the 80% range.

Since when did the NRP (non-resident parent) never see their child? The child still have 2 parents.

sunnyone

wattdallas wrote: »

WRONG divorce rate of parents of severely dfisabled children is in the 80% range.

And the divorce rate for disabled adults is about the same.

wattdallas

sh1305 wrote: »

Since when did the NRP (non-resident parent) never see their child? The child still have 2 parents.

Every child ever born has a mother and father ,that doesnt mean to say both parents if any looks after their child.Having a severely disabled child having both parents together looking after them, is not common.

As for you stating that we as parents dont care for our daughter in hospital as we would at home is complete rubbish.We were on a huge ward with lots of disabled children we did all her care ,changing her nappies ,feeding ,turning,giving her meds,washing her,using suppositories regular ,up half the night every night etc etc.
We had no break at all and thats because she cant do anything for herself ,parents like us are a god send to the nurses as they do not have the time.
sh1035 your time in hospital is completely different to mine as you are not 100% dependant and if you were im sure you would like someone to care for you too.

Indie_Kid

wattdallas wrote: »

sh1035 your time in hospital is completely different to mine as you are not 100% dependant and if you were im sure you would like someone to care for you too.

So, you know everything about my time in hospital? Including having to be checked every 2 hours because I was shaking when they put the cannula in? And that I had to be changed because I was bleeding? That wasn't impossible for me to do myself. (even if I wasn't disabled, it still wouldn't have been possible)

You have no idea how dependant I am.