stop the dla takeaway campaign

GlasweJen

Lol SKC, i know! I was actually moved into a side room because some little brat kept pulling my IV lines out when her mum was around but she was an angel when mum left to get clothes/food. My mum stepped in when she realised that the staff couldn't do much and demanded that I was moved away from her as it was kind of important that I got my antibiotics - I was being treated for post operative blood poisoning!

cyberbob

JC9297 wrote: »

I am quite shocked by the 'children already get enough help' attitude of some people. We should be pushing for more help and support for disabled adults, rather than less for children.

I think you need to read the thread properly

No one has said give less help for Children all that has been said is what is in place is sufficient and it has been pointed out that they get more help than adults.

littleredcorvette

I wasn't expecting to have to justify why I do so much for my son when he's in hospital, but here goes:

He has both a physical (full-time wheelchair user) and learning disability, epilepsy, hypotonia and a visual impairment. He cannot walk, talk or feed himself but he does have the most beautiful smile

His regular daily meds should be taken twice a day, 12 hours apart. By giving them to him myself I can ensure that he has them on time (we are well known to the nurses and they provide the syringes whenever I ask for them). Any oral meds prescribed by the hospital are passed to me to give to him as its easier for everyone concerned, and it ensures that he doesn't get too upset.

Yes, it is my choice (as someone else mentioned) and I'm not complaining. I'd rather have a relatively happy little boy than one who is upset and confused by everything going on around him.

Both Adults AND children with disabilities should get as much help and support they need.

GlasweJen

Little red corvette, nurses would do all of that if you weren't there, that's what they are paid to do, if you had the most disabled child in the world nurses would still do that for you. The NHS is paying the nurses to do this using tax payers money, why should tax payers then fund your child to get care component of DLA and a carers allowance when they are already shelling out for the hospital costs? It's not the tax payers issue if you don't trust trained medical professionals to care for your son, that's your own problem and tax payers should not be expected to fund it.

littleredcorvette

GlasweJen, as I said in my original post, thankfully my son has never been in hospital for long enough for his DLA/my CA to be stopped.

Plus, I don't have a problem in not trusting 'trained medical professionals' to look after him - the staff on the children's ward at my local hospital are wonderful and caring. I just prefer to be with him as much as I can and to help him the best way I know how to, just like (I hope) the majority of parents would.

I don't understand why you have turned this into a personal attack on both myself and my son?

JC9297

GlasweJen wrote: »

But you're not giving care when the disabled person is in hospital are you? The kids rules that their parents can keep getting the DLA for 12 weeks is absolutely crazy, this is money for the childs day to day care/mobility needs, what exactly is it being spent on for the 12 weeks that junior is in hospital? End the madness, no wonder this country is going to tits, it's not that no one has respect for carers (my sister is my carer) but that people expect hand outs for something they aren't even doing!

I believe this post suggests that families with a disabled child should get less help.

pwales_2

what a load of keyboard Warriors what a pointless thread i cannot beleive i wasted my time reading it:mad:

Oldernotwiser

littleredcorvette wrote: »

GlasweJen, as I said in my original post, thankfully my son has never been in hospital for long enough for his DLA/my CA to be stopped.

Plus, I don't have a problem in not trusting 'trained medical professionals' to look after him - the staff on the children's ward at my local hospital are wonderful and caring. I just prefer to be with him as much as I can and to help him the best way I know how to, just like (I hope) the majority of parents would.

I don't understand why you have turned this into a personal attack on both myself and my son?

i don't think that there have been any personal attacks going on here, simply people saying that long term hospital patients shouldn't have their care funded twice over, by both NHS staff and by family.

GlasweJen

I'm not personally attacking anyone, I also never said that families with disabled children shouldn't get any help.

I replied directly to your post because you held yourself up as an example and I don't think it's appropriate to pay DLA care and carers allowance for someone who is being cared for by the NHS.

I was accused of not knowing the issues sorrounding the care of disabled children in hospitals and when I posted my experiences a HCP posted that his experiences were similar. Not one of the parents of disabled children has replied to either of our posts.

cyberbob

pwales wrote: »

what a load of keyboard Warriors what a pointless thread i cannot beleive i wasted my time reading it:mad:

Not so pointless you didn't reply. And not as pointless as your post :T

littleredcorvette wrote:

don't understand why you have turned this into a personal attack on both myself and my son?

It hasn't people were replying to your thread and pointing out why they didn't agree. It's called a discussion.