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The (not so old) Crocks Cafe -Part 2
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needing-help wrote: »
Was feeling good today so we took the kids to the park. It was really busy but I saw a bench with just one woman sat at the end so I hobbled over with my stick. I went to sit down and she said oh I'm saving that seat for my husband and children they are just over there playing. Me being me found myself apologising and hobbling off again:mad:
i got myself 1 of those folding chairs in a bag, i get the kids to carry it until i need it, that way i always have a seat no matter where i am
http://www.homebase.co.uk/webapp/wcs/stores/servlet/ProductDisplay?langId=-1&storeId=20001&partNumber=450817&c_3=3|cat_14270233|Garden+chairs+and+loungers|16998677&c_2=2|cat_16849255|Garden+furniture|14270233&c_1=1|category_root|Gardening|16849255
i hope it lets me post the link, this is 1 i got, and now they are £3 off too, might grab a couple more this week, for keeping in the car0 -
grrrrrrrrr just had my decision letter from DLA they have turned me down, stating that i dont need help with the things i actually do need help with
just waiting on the local disability help group calling me back to sort out the appeal0 -
I was up seeing the physio yesterday and she has suggested I go back to my doctor and ask for stronger painkillers (I only use ibuprofen which doesn't seem to do anything now). So, I have made the appointment but now feel like cancelling!
I feel so uncomfortable going in and asking for pain relief rather than it being suggested by the doctor, almost like I am an addict asking for another hit (although I have no experience of that either!). I suppose I am old school where if the doctor feels it is something you should have, they will suggest it rather than going in and asking yourself.
I think I am also scared (not sure if that is the right word), of being made to feel I am wasting the doctors time, something which has happened pretty much a lot of the time and why it took so long for me to pluck up the courage to go back again when the problems had got too much (luckily I did see a different doctor that time who referred me for physio).
Yes, I want relief from the pain when it gets really bad so that I can still fulfil my role as mum and carer but I also don't want to feel like I am going begging cap in hand to get that relief....am I being silly?
My other concern about escalating all this, is that the doctor will think I am not capable of caring for my two younger boys, it is a huge responsibility and a lot of work but with adjustments to how I do things, I am still able to do..albeit in a lot of pain sometimes.
I know I am probably not thinking clearly about things but as a sole carer, it does cross my mind a lot.
Also, if pain relief is offered, what sort would be the best so that I can still drive and be able to function at a high enough level to still be able to undertake all the caring? Is there such a thing? *That reminds me, must tell her I can not have anything paracetomol based.
Hmm, maybe ignore me, the musings of a person not wanting to admit her body is starting to play silly beggers!We made it! All three boys have graduated, it's been hard work but it shows there is a possibility of a chance of normal (ish) life after a diagnosis (or two) of ASD. It's not been the easiest route but I am so glad I ignored everything and everyone and did my own therapies with them.
Eldests' EDS diagnosis 4.5.10, mine 13.1.11 eekk - now having fun and games as a wheelchair user.0 -
Sue,
There is nothing wrong with asking for pain relief I've done it, and I'm sure many others have done it too. They won't accuse you of being an addict or anything like that - they're not there to judge you. Their job is to help you as much as they can.Sealed pot challenge #232. Gold stars from Sue-UU - :staradmin :staradmin £75.29 banked
50p saver #40 £20 banked
Virtual sealed pot #178 £80.250 -
Sue, sweetie, please ask for pain relief. You owe it to yourself. (((Gentle Hug)))What do people do about back support whilst in bed? I woke up this morning and can hardly move my neck again.If your dog thinks you're the best, don't seek a second opinion.;)0
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Sue, sweetie, please ask for pain relief. You owe it to yourself. (((Gentle Hug)))
Um.... swear a heck of a lot, and rely upon Mr LW to pour me some Oramorph 15 mins or so before I need to get up, and then spend said 15 mins massaging my back for me.:(
sue go to the docs and dont you dare cancel for once iam being bossy lol ,
i no how you feel go and get yourself some meds that work iburpoen even on my very good days in past 3 month i have had 5 and theres noway iburpoen works for me , and keep going back so you feel better in yourself then you can do more for the kids without being a pain, if it was the boys iam sure you would give them calpol etc when younger you just have to that for yourself
i no it sucks iam on a a few drugs i use in combination and thats only taking the edge of and i struggle on dont feel guilty , you didnt ask for this but you need that bit extra meds wise so be it , i hope what they give you works x
well for me its nearly time for answers day i hope rehy on thurs iam not so sore in some places but fingers are really tight swollen and really hurting , back is rubbish not breathing decided to be a nightmare dispite me doing nothing oh what fun and games grrr , had to cancel el's vet appointment
just found out the nan that died before i was born had rhematod arthrits from age 30 :eek: so keeping everthing crossed its not that , but mum is going to come along incase they ask for anymore family history but would that even be relevent though
hope everone is haveing a good day looks like its tv in bed alldayfor me why didnt i do it yesterday when i was half ok , anyways the choclate is coming out who wants some x
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Thanks guys.
I did go up for my appointment and the doctor was not an ogre, didn't tell me to go away or that I was wasting her time.
I have been prescribed amitriptylene 10mg a night plus a top up of codeine as and when needed and instructions to keep a pain diary and to see her in 4 weeks.....she did tell me off though, said I should not be taking ibuprofen as I am asthmatic (only background and it is not giving me any trouble at the moment - I'm not even on puffers, well maybe I should be but I don't see the asthma nurse) whereas a different doctor I saw said taking ibuprofen would be fine as I am obviously one of those with asthma that can cope with it without problems.
I just hope I don't get that muzzy feeling you get with some medication, it's one of the reasons I don't take much of anything (including alcohol), I hate the muzziness. I even went as far as to refuse all pain relief barely 24 hours after my hysterectomy because I hated the muzziness so much, the pain was infinately better to put up with!We made it! All three boys have graduated, it's been hard work but it shows there is a possibility of a chance of normal (ish) life after a diagnosis (or two) of ASD. It's not been the easiest route but I am so glad I ignored everything and everyone and did my own therapies with them.
Eldests' EDS diagnosis 4.5.10, mine 13.1.11 eekk - now having fun and games as a wheelchair user.0 -
Thanks guys.
I did go up for my appointment and the doctor was not an ogre, didn't tell me to go away or that I was wasting her time.
I have been prescribed amitriptylene 10mg a night plus a top up of codeine as and when needed and instructions to keep a pain diary and to see her in 4 weeks.....she did tell me off though, said I should not be taking ibuprofen as I am asthmatic (only background and it is not giving me any trouble at the moment - I'm not even on puffers, well maybe I should be but I don't see the asthma nurse) whereas a different doctor I saw said taking ibuprofen would be fine as I am obviously one of those with asthma that can cope with it without problems.
I just hope I don't get that muzzy feeling you get with some medication, it's one of the reasons I don't take much of anything (including alcohol), I hate the muzziness. I even went as far as to refuse all pain relief barely 24 hours after my hysterectomy because I hated the muzziness so much, the pain was infinately better to put up with!
nice one for going and nice to see a doc followibng up with a pain diary
amitriptylene 10mg this is what iam on and there fantastic , i do have a nice full sleep and feel refreshed i really hope thats the same with you , i havent had a interupted night sleep but for friend waking me up and then i sleeped really well , i havent had any side affects either0 -
Um.... swear a heck of a lot, and rely upon Mr LW to pour me some Oramorph 15 mins or so before I need to get up, and then spend said 15 mins massaging my back for me.:(
Not quite what I meant; but thanks anyway.:p
I received a phone call and have an appointment for scans on my neck. Not looking forward to it.
The las time I had scans was 14 years ago and I was put to sleep. What are they like for being awake? Not too sure what type of scan it is yet.Sealed pot challenge #232. Gold stars from Sue-UU - :staradmin :staradmin £75.29 banked
50p saver #40 £20 banked
Virtual sealed pot #178 £80.250
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