The (not so old) Crocks Cafe -Part 2

ash4becks

formaldehyde_perfume wrote: »

Did anyone with HMS see Panorama just now? Prof Bird and hypermobile joints were mentioned.

yes i did but they didnt even explain it well

Indie_Kid

Trialia wrote: »

I didn't, but I've been out. I wonder if someone taped it...

Might be on iplayer?

formaldehyde_perfume

sh1305 wrote: »

Might be on iplayer?

It will be on iplayer, but when is another matter.

They didn't explain the condition very well, and it made me mad when they twice said it was 'double jointedness' as an explanation, they didn't even mention why the condition could cause a spiral fracture. Prof Bird was only mentioned by name at the end as one of the key expert witnesses, but they referred to him as a RA specialist before and during the court case.

needing-help

I have googled hypermobility and it sounds horrible I've never heard of it before and it sounds awful. My joints crack everytime I move and thats bad enough I can't begin to imagine what it's like for those of you that suffer from this.

Gentle hugs for all of you x

ash4becks

needing-help wrote: »

I have googled hypermobility and it sounds horrible I've never heard of it before and it sounds awful. My joints crack everytime I move and thats bad enough I can't begin to imagine what it's like for those of you that suffer from this.

Gentle hugs for all of you x

thats how mine started mind, but i will say atm iam good as it probs will get just back and neck sore but a heck of a lot of resting to get as good as this then everything else starts up just my luck lol

Trialia

formaldehyde_perfume wrote: »

They didn't explain the condition very well, and it made me mad when they twice said it was 'double jointedness' as an explanation, they didn't even mention why the condition could cause a spiral fracture. Prof Bird was only mentioned by name at the end as one of the key expert witnesses, but they referred to him as a RA specialist before and during the court case.

*growls* "Double-jointed" people get to have fun with their condition. Not it.

formaldehyde_perfume

needing-help wrote: »

I have googled hypermobility and it sounds horrible I've never heard of it before and it sounds awful. My joints crack everytime I move and thats bad enough I can't begin to imagine what it's like for those of you that suffer from this.

Gentle hugs for all of you x

It's a bit more complicated than that. Just because a person is hypermobile doesn't mean that they have Hypermobilty Syndrome (HMS) and even with a diagnosis the severity of HMS can vary wildly. I consider myself very lucky because although I have significant mobility issues, I am in no way as severely affected as some people with the same condition. The condition, in laymans terms, can also be a 'symptom' of other conditions such as Marfans Syndrome and Ehler-Danlos. Also, my condition only affected mildly as a kid, in the sense that I was clumsy and always injurying myself, but the only pain I had was as a result of injury so I had a pretty normal childhood; some people don't have that luxury.

Trialia

needing-help wrote: »

I have googled hypermobility and it sounds horrible I've never heard of it before and it sounds awful. My joints crack everytime I move and thats bad enough I can't begin to imagine what it's like for those of you that suffer from this.

Gentle hugs for all of you x

Thanks. Not going to lie, it can be pretty awful for those who have it severely. It's a big contribution to my fibromyalgia - sets it off constantly - and by the time I am my father's age, if not a good way before, I am likely to be in a wheelchair. Ash and I are the same age. I walk with a cane and am nearly housebound due to joint instability now.

I don't even want to think ten years ahead if I can help it. So I try not to. Just take it day by day and adapt as best one can to something like this. I don't ever want to be pitied.

Trialia

formaldehyde_perfume wrote: »

The condition, in laymans terms, can also be a 'symptom' of other conditions such as Marfans Syndrome and Ehler-Danlos.

It's not a symptom of EDS; it is a whole type in itself.

ash4becks

Trialia wrote: »

*growls* "Double-jointed" people get to have fun with their condition. Not it.

its took my dad a few months to realise that iam not faking this, no wonder if this is the way hms is shown to be like :mad: