The (not so old) Crocks Cafe -Part 2

SingleSue

I'm still hanging on in there, things were ok ish when the boys were on school holidays and they could push the trolley in the supermarket and load and unload the car but since they have gone back, I have been as stiff as a board and having no energy at all.

I think it was because I was able to pace myself more during the holidays and of course, the boys could help in the normal chores plus lifting and carrying of stuff. I also hired a wheelchair from the red cross so we could go out and about further than I had been able to, so they could at least have some fun and it helped amazingly, not only did they get to have the long walks along the sea front they had been wanting to do for ages or a long visit to the town centre but it actually seemed to improve my capabilities for doing other stuff.

I am not using it all the time, only for the occasions where we would be doing more than I can cope with (for example, a full food shopping visit - I can only usually do small amounts or for long walks - they take turns in pushing me in the wheelchair), for the normal stuff, I am still using my crutches and the balance seems to be just about right.

Lady_strange

Single Sue, I know I struggle with the food shopping, so I have taken to getting it online and delivered, so that I can use that energy for something else, like cooking, or doing the dishes.

I am dreading having to do battle with my doctors this week, as I want more blood tests doing. Since I found out that there are tests to see if I am developing or going to develop M.E. or fibro, would rather have advance notice, instead of years of misdiagnosis, like with my hashimotos, 9 years of symptoms before I got the diagnosis, not going through that again.

sunnyone

Lady_strange wrote: »

Single Sue, I know I struggle with the food shopping, so I have taken to getting it online and delivered, so that I can use that energy for something else, like cooking, or doing the dishes.

I am dreading having to do battle with my doctors this week, as I want more blood tests doing. Since I found out that there are tests to see if I am developing or going to develop M.E. or fibro, would rather have advance notice, instead of years of misdiagnosis, like with my hashimotos, 9 years of symptoms before I got the diagnosis, not going through that again.

There are no tests for ME or fibro, they are both diagnosed by the absence of other illnesses though for some with fibro it can be confirmed by a Rhummy with examination of certain points of the body, most people with ME and fibro go many years before diagnosis so you will never get advanced notice of them.

I posted above about cheap combination microwaves, did you not see it?

TrixieB

thats fabulous Juno, how much did you raise?

SingleSue

Lady_strange wrote: »

Single Sue, I know I struggle with the food shopping, so I have taken to getting it online and delivered, so that I can use that energy for something else, like cooking, or doing the dishes.

I am dreading having to do battle with my doctors this week, as I want more blood tests doing. Since I found out that there are tests to see if I am developing or going to develop M.E. or fibro, would rather have advance notice, instead of years of misdiagnosis, like with my hashimotos, 9 years of symptoms before I got the diagnosis, not going through that again.

I know online shopping could be an anwer but I am trying to keep as normal a life as possible....plus I am a stubborn so and so!

I think it was all the years I had to do online shopping because of the boys, until I learnt that they were not learning anything by me avoiding taking them in (2 of them are autistic), so now, I want to keep every bit of independance I can get.

My doctor is sending me up for more blood tests, I think to make himself feel like he is trying to do something for me but until I will accept the stronger painkillers, there isn't much he can do to relieve the pain...and I won't have the stronger painkillers because I need to be able to drive due to the boys needs, I would much rather be as stiff as a board and in quite some discomfort (once I am in the driving seat, it is not too bad) than to have an accident through medication.

He is also sending me up for an x ray on my right shoulder, I damaged it in yet another fall down the stairs (me and stairs just do not get on :rotfl:) and despite many months of using the exercises the physio gave me for my left shoulder, it is getting worse rather than better. It has gone from being very hypermobile (my shoulders were amongst the most hypermobile joints in my body and I could shake wrists, not just hands, with one handing reaching over my shoulder and the other behind my back plus I could also turn my shoulders almost inside out), to not even being able to lift it above shoulder height or behind my back...a real begger when trying to undo a bra!

Thankfully it is my right shoulder and not my left....I am left handed and would be completely beggered if it was, plus my right hand has not been able to grip things without releasing if I am not concentrating on what it is doing for many years.

LameWolf

juno wrote: »

I did a fun run today to raise money for Mencap. I'm ridiculously proud of myself, even though I was beaten by 970 others - and most were children under 10.

:T:T:T:T:T Well Done!

TrixieB

Hello all,

I have to go to a work meeting today where I think I am going to be sacked *sigh* am past the point of caring now after they keep messing me around by not paying me SSP properly - only got £23 this week and hassling me and saying nasty things to other members of staff accusing me of faking my medical problems - til I took in a copy of my MRI scan report for them to see ha!
Just want it all over and done with so I can begin the joyous journey of attempting to get ESA and or DLA

Am I particularly unlucky with my employers or have others had problems too? it's very wearing.

Lady_strange

sunnyone wrote: »

There are no tests for ME or fibro, they are both diagnosed by the absence of other illnesses though for some with fibro it can be confirmed by a Rhummy with examination of certain points of the body, most people with ME and fibro go many years before diagnosis so you will never get advanced notice of them.

I posted above about cheap combination microwaves, did you not see it?

I have been told that if I get a test of all the hormones in my body, it can give an indication of if there are going to be any more problems. As stress seemed to have trigger my hashimotos disease, and once you have one autoimmune disease, you are prone to having more, which would explain why it felt like I had rhaynards disease last winter.

My partner has just asked his dad about a combo microwave for a gift for christmas, as they sound like such a good idea.

Lady_strange

TrixieB wrote: »

Hello all,

I have to go to a work meeting today where I think I am going to be sacked *sigh* am past the point of caring now after they keep messing me around by not paying me SSP properly - only got £23 this week and hassling me and saying nasty things to other members of staff accusing me of faking my medical problems - til I took in a copy of my MRI scan report for them to see ha!
Just want it all over and done with so I can begin the joyous journey of attempting to get ESA and or DLA

Am I particularly unlucky with my employers or have others had problems too? it's very wearing.

I have had problems in my last few jobs, currently on my partners claim for ESA. I lost my last job due to the fact I was taking so much time off due to getting ear infections, and really nasty ones at that, that would take my breath away when a wave of pain hit. I also had to take a day off when my partner was really struggling, he couldn't even get out of bed, and as it would have been around 9pm when I got in from work, I couldn't leave him for that long, so took the day off, and they sacked me while I was on a sick note, but as I was agency staff there was nothing I could do about it.

I am now in the process of setting up my own business with my partner, as he has experience of recording bands, and video editing. so we can work to our strong points, and limit our hours.

If you have been working for the same company for a while, you can take them to a tribunal for unfair dismissal.

TrixieB

No I know they can dismiss me for me being physically unfit for my job as long as they follow the correct procedures for it anyway,

Well I have had a not bad day so far friend picked me up and went for coffee and cake and another friend dropped me back got to love the chance of extra cakes even if the chairs in the place were THE most uncomfy chairs ever, must have looked like I had ants in my pants as couldn't keep still lol