The (not so old) Crocks Cafe -Part 2

Trialia

You're welcome, hon. I'm really glad for you both.

SingleSue

Blimey, been ages since this thread was updated.

We came away on holiday yesterday but the stress of getting the car packed, the drive here and then the unloading used up all my spoons and we still needed to get some provisions in (we had brought the tea bags, milk etc with us but still needed meal items). So after struggling to get out of the car and walk the very short distance to the supermarket, I finally gave in and went in a wheelchair the shop provides.....woah! Not sure I will repeat the exercise, or at least not when middle son is driving (shoulders are bad so can't self wheel), he is the boy racer of wheelchair pushers! :eek::rotfl:

The amount of times I thought I was going to be catapulted into the chiller cabinet or lose my knees in the bread aisle was horrendous....he on the other hand thought it was great fun pretending to be Lewis Hamilton powering through corners :rotfl:

mcculloch29

Oh dear Sue! My son would have been the same. He is now a safe, but fast driver. He always drives bang on the speed limit, but somehow it feels faster ... you know the type!
I'm on new painkillers (Tramadol) which mean I can't drink. I had a couple to see what would happen. What happened was a Godalmighty 'hangover' the following day. Boy, did I feel ill. This has made my social life a bit cheaper, weight loss a bit more likely and life in general slightly more boring.
On the plus side, work is going well, students are passing tests, and signing up for courses, which is earning me a decent living. Long may it continue.

formaldehyde_perfume

Sue - Unfortunately, even with a suitable attendant, being in a wheelchair when you can't self propell can feel a lot like that anyway. But well done for not giving in to your EDS and finding a way around it, giving in to it would have been to have stayed in and not doing the things you need to do. Accepting your disability and new lifestyle is just as hard as the pain and daily struggles of the physical aspects.

formaldehyde_perfume

mcculloch29 wrote: »

I'm on new painkillers (Tramadol) which mean I can't drink. I had a couple to see what would happen. What happened was a Godalmighty 'hangover' the following day.

Ooops, I may have been a naughty girl then.

I didn't know alcohol was a big NO-NO on my meds, which include (sometimes) fairly high doses of Tramadol, I thought it was just advised not to. I don't drink often, perhaps one drink once a week, but every few months I go out and seem to drink the bar dry.. Having said that, I don't generally get hangovers or any real reactions to medication (thank goodness!) in general but considering this I may ask for a liver and kidney function test next time I see the GP, just to be sure I'm not causing any real damage.

Trialia

I saw my primary specialist at MRI a couple of days ago, and the visit went as brilliantly as seeing her usually does...

Normally I could only get 12 weeks of hydrotherapy on the NHS but, since we've found it is the only thing that's really helping me, she's pushing me back for another 12 weeks. I can only do two courses in a year because the hydrotherapy pool is so overbooked generally, but 24 weeks out of 52 is so much better than not at all, because it IS being such a help to me. She said again that obviously I'm not going to get better, but holding me in place as I am is an achievement in itself.

She is also going to get in touch with the surgeon I saw in Maxillofacial to point out to him that I was referred to him initially because local anaesthetic doesn't work on me because of my EDS, not anxiety and that he shouldn't have tried sedating me and insisting on local (I felt everything during the procedure, but was paralysed by the midazolam IV).

There was some other stuff, but I don't really want to share. But this stuff *points up* is big. So. She was also happy for me to continue on the morphine and oxycodone for the foreseeable since I don't appear to be habituating yet.

LameWolf

SingleSue wrote: »

I finally gave in and went in a wheelchair the shop provides.....woah! Not sure I will repeat the exercise, or at least not when middle son is driving (shoulders are bad so can't self wheel), he is the boy racer of wheelchair pushers! :eek::rotfl:

The amount of times I thought I was going to be catapulted into the chiller cabinet or lose my knees in the bread aisle was horrendous....he on the other hand thought it was great fun pretending to be Lewis Hamilton powering through corners :rotfl:

He's not related to Mr LW, by any chance, is he? If I had £1 for every time I've nearly been tipped out of the chariot because he's pushing it so fast he doesn't see the bump/dip in the ground, I could go some way to getting the country out of the financial crisis!:rotfl::rotfl::rotfl:

I can self-propel a little but only for a very short while, on level, smooth surfaces such as CMK shopping mall (which I loathe visiting). Visits to medieval re-enactments, such as we did yesterday, require Mr LW's muscle-power.:cool:

Lol, it was funny - at one point, I was looking closely at some weaponry, and he decided we were going to move. So I grabbed the wheels and using all my strength, stopped him pushing the chair. He could not fathom what the obstruction was!:D He was huffing and puffing, and finally said something to the effect of not knowing what was wrong, why he couldn't move the chair; I sweetly said "Because I haven't finished looking at the swords, darling".:D:D:D One day I will train him to consult me as to whether I want moving or not!:rotfl:

formaldehyde_perfume

LW - I was having a proper rotten afternoon but that post just put a smile on my face Thank you

mary-op

Careful with Axe - love the Geranium poem..........it's motivated me to get my paints out and have a go at painting one and framing it for my friend.
Need something to keep me going.
OH been in hospital 3 times over the last month -had gall bladder out eventually but was sent home too soon, bile duct leak so straight back in, another op, intensive care for a week, on to another ward where he felt comfortable then last night they moved him to another ward......same one that had sent him home too early and lost his bone strengthening tablets as well ! So he's all depressed........likewise I'm fed up with it all. Doctor in Intensive Care said once he gets back on a ward not to let them discharge him before he feels really fit and ready -our decision, not the fourth consultant he'll now be seeing.

Ooops.........sorry for rant............only popped on to say about the poem:)

SingleSue

Thanks for all the posts....I think the hardest thing to me was losing the control, in a wheelchair I was at the mercy and inclination of the person pushing it and I just couldn't stop where I wanted (although I got pretty good at my forward and stop hand motions along with voice commands - I felt like a general leading the troops into battle!)

Today was swimming, or my version of standing there and moving about a little until my back spasmed, my legs and arms wouldn't move and my boys had to rescue me to the side of the pool until the spasm had passed but I didn't let it ruin the day and we had some good fun over at the swimming pool.

But, I really must find out the maker of the mattress, it is wonderful, I actually woke up this morning and could sit up without having to winch myself up on the bed post and the sleep quality felt so much better......that will be the next task, looking under the sheet but it will have to wait until things are wanting to move about rather than being as stiff as anything due to over doing things.

Eldest did not have the best start to the holiday as he has had to come on holiday with loads of pain killers and ankle supports...silly begger only decided to go on a trampoline on Wednesday and dislocated his ankle which did go back in on another bounce but did a load of damage in the process.