The (not so old) Crocks Cafe -Part 2

SingleSue

I don't even own one hat!

Trialia

juno wrote: »

I only own one hat. This meant that I was front row at a Bon Jovi concert wearing a Metallica hat.

Oh, nice.

I have... nine or ten, I think. Not counting the wigs. I love hats.

Had to come inside, though - while handing my cat to my houseguest through the window, she accidentally hit me in the head with said window, and now I have an almighty headache and symptoms of minor concussion. Sigh. So I'm now lying still in the dark and have my brightness/contrast turned way down.

formaldehyde_perfume

Singlesue - That's amazing, well done for having the courage to apply. :j :T

I went to the mobility roadshow, it was brilliant. I met some great people, tested out a hand bike which I didn't think I would be able to use as I can't self propel but it worked well, it's something to seriously consider. It's classed as a wheelchair so can go on paths etc, and it would be so brilliant if I could work up my upper body strength to be able to go for a day out in the forest with my dog. At £1,800 I would need to get a grant or save up for years though.

I met a man who offers disabled holidays, I'm thinking of going on one to give my mum a break, but again it's saving up for it.. I am doing well with saving my money though so that's a massive positive.

I also tested out some indoor outdoor wheelchairs with midwheel control which were great because now I reckon with any property I move in to I can use it inside and out so now I know that I can qualify for getting one on the NHS because I was told I have to use it inside for a few months before having a test to see if I'm safe outside (and someone I spoke to said she had the one I liked most on order from the NHS wheelchair services so I know it's possible to get the type I want) .. It's just the size of property I might move to that was discouraging me, so now I just need to get the energy to go to my GP about it.

The down side of the day was that it meant saturday was a complete right off. I spent most of the day in bed, in agony, with the meds not really touching the pain, but I had a nap at 4pm and then felt better.. It just makes me mad because I got up at 9am, didn't even shower (so spare spoons) and sat in a fairly comfortable car for an hour there and back and then 6 hours on my scooter which too is fairly comfortable... A very physically undemanding day, yet my body decided that was too much and I'm still recovering.


Having said all that, I didn't do myself any favours today, I joined in at dog training and then remembered it was Aquafest today (an annual event by the river here, with stalls and demonstrations etc) so I ended up spending almost 3 hours there on my crutches, I know tomorrow is going to be a nightmare. So much for learning pacing techniques! Still, Timmy did great at training, he really loves agility

I hope everyone is doing well. LW - glad you're back, how did it go?

SingleSue

Ah pacing.....I've not yet got that sussed, I still like to believe I can beat my body., hence why today I cannot move without lots of pain and am completely washed out and exhausted.

Still, it was worth it...an all day music gig at a local pub for charity and I managed to walk there and back (albeit on crutches), although my boys and a friend were taking the major pee out of me on the way home as a less than 10 minute walk (I used to be able to get there and back in just over 10 minutes) took nearly an hour at a pace that a snail would be proud of...but I did it and didn't give in, even if it did take my boys physically holding me up for the last 3 quarters of the journey home as my legs had decided they didn't want to do what I wanted them to do.

Did I ever tell you I am a stubborn begger?

formaldehyde_perfume

SingleSue wrote: »

Did I ever tell you I am a stubborn begger?

You didn't need to hun :rotfl:

LameWolf

formaldehyde_perfume wrote: »

LW - glad you're back, how did it go?

Thankyou.:o We had a great time apart from the ferry journeys - the trip out we spent the entire 4 hours in the car, in the "hold" as they had no disabled lift on board, not even an emergency evacuation chair, and I wasn't about to attempt two flights of very steep stairs and risk a fall right at the start of our holiday! We'd stated when we booked, in February, that I'm a wheelchair user, but still no-one had warned us - it seems the person who [STRIKE]made the booking[/STRIKE] changed the sailing times at the last moment and told us it was "take it or leave it - that's when you're sailing" should have told us there were no disabled facilities whatsoever. So the ferry company are getting a stinky letter from me.

Anyways, apart from that, we had a lovely time wandering around Brugge with the wheelchair (trust me, I know every cobble in the whole town intimately!):rotfl: We also drank gallons and gallons of Hoegarden Rose; I bought some clothes (a major achievement for me!) and we loved it.

I'm shattered -I think I left about two months' worth of spoons back in Belgium.:D 'Nuvver early night tonight, methinks.:rotfl:

formaldehyde_perfume

LameWolf wrote: »

Thankyou.:o We had a great time apart from the ferry journeys - the trip out we spent the entire 4 hours in the car, in the "hold" as they had no disabled lift on board, not even an emergency evacuation chair, and I wasn't about to attempt two flights of very steep stairs and risk a fall right at the start of our holiday! We'd stated when we booked, in February, that I'm a wheelchair user, but still no-one had warned us - it seems the person who [STRIKE]made the booking[/STRIKE] changed the sailing times at the last moment and told us it was "take it or leave it - that's when you're sailing" should have told us there were no disabled facilities whatsoever. So the ferry company are getting a stinky letter from me.

Anyways, apart from that, we had a lovely time wandering around Brugge with the wheelchair (trust me, I know every cobble in the whole town intimately!):rotfl: We also drank gallons and gallons of Hoegarden Rose; I bought some clothes (a major achievement for me!) and we loved it.

I'm shattered -I think I left about two months' worth of spoons back in Belgium.:D 'Nuvver early night tonight, methinks.:rotfl:

Well firstly I am disgusted that they didn't have a lift for you, but I am even more disgusted and appauled that they didn't have an emergency evacuation chair.. All sorts of horrible things could happen if something even fairly minor were to go wrong on that ship. Someone slipping and breaking their leg for instance, how are they going to get off the ship without incredible agony if there's no emergency wheelchair. Urgh.

... Anyway, I'm glad to hear the rest of your holiday went well. I know what you mean about leaving spoons there, I'm still recovering from the mobility roadshow, I managed to sleep from 1am - 5pm yesterday, having had a full nights sleep the night before and basically been in bed all day on saturday.. I thought the day in bed on saturday cracked it and I was back to normal, but with dog training and aquafest (mini festival by the river in town) on sunday I was totally whacked.

I haven't actually washed since friday (urgh, I hate admitting that) so first things first is a bath/shower today but then I'm hoping to get out in to town with my dog.. dunno how that will go though.

SingleSue

Been back to the doctors today as things are becoming ever more restricted/difficult...he has increased my medication and told me (ok told me off) to take more care and to take it easy rather than trying to push the boundaries and end up hurting myself more.

Hmm, that doesn't sit well with me....41 years I have been pushing the boundaries of my body, not sure I can change overnight, even if it blooming hurts me!

Trialia

*hugs Sue*

I'm actually finding out just how lucky I am with my current GP - she's brilliant. I had an exam with the nurse yesterday, and she told me that my GP had talked to her about how she's not to move my limbs herself, she should tell me what she needs me to do and let me move myself so I don't dislocate, and she told her all about EDS and the nurse did some more thorough research on the subject. I really, really love this one, have I mentioned that? Finally I have a doctor I can trust!

LameWolf

That's great, Trialia. My GP is nice enough, but I'm not sure about how good she is iyswim.

I'm laid up on the sofa today; right knee is agony. No idea what's wrong with it, and it's usually the left one that gives me most trouble (left one was smashed up in a car accident in 1990) so gods know what's going on. *rolleyes*

I hope everyone else is having a pain-free and pleasant day.:o