The (not so old) Crocks Cafe -Part 2

juno

Have you all heard we're sub standard citizens and do not deserve to be paid much as other people?

I am so mad about this and I don't normally get into politics!

LadyMorticia

juno wrote: »

Have you all heard we're sub standard citizens and do not deserve to be paid much as other people?

I am so mad about this and I don't normally get into politics!

I just read about it. Such a disgrace!

LadyMorticia

Thanks everyone. Hopefully the car won't cost much to fix. We've only had it since Tuesday as well. Really need the car as I have loads of appointments.

On the plus side, someone on the forum has offered me her old wheelchair and said I can have it for free. :eek: Hopefully someone who is going to the Cornwall meet will be coming from Somerset so can drop it off, or I don't mind paying for Citylink etc. The kindness of people makes me happy cry sometimes.

LameWolf

formaldehyde_perfume wrote: »

I was thinking, seeing as the mobility show is coming up, does anyone want to have a little crocks cafe meet up there on the saturday? Just a thought.

Assuming nothing else goes t*ts up beforehand, we shall be in Belgium that weekend - but I'll think of you all.:o

formaldehyde_perfume

LameWolf wrote: »

Assuming nothing else goes t*ts up beforehand, we shall be in Belgium that weekend - but I'll think of you all.:o

oh thats such a shame, I'd really like to meet you, but have a good holiday


... But now I've just been told that mum took the day off specially to take me on the first which is a friday so in a way that worked out well.

needing-help

Not posted for a while, been feeling very down and not done much apart from sit and stare at the wall:(

I took my daughter to see the paediatrician at our local hospital and he agreed there was some hpermobility (she showed him how she can put her feet on her head!) He measured her arm span then announced all her clicking and pain was down to growing pains and he would see her in 6 months but it should have sorted itself by then.

This has been happening for quite a long time now so if it was growing pains she should be 7 foot by now.
I am really not happy and feel a bit fobbed off. I hate seeing my daughter in pain but I don't know what to do now:(

Sorry for my whinge and hope you are all battling on ok. Think I will go off to my cave now.

x

Trialia

*sigh* needing-help, that's exactly what happened to me - for ten years! And I'm only 5 foot 4 now. Misdiagnosis as growing pains is really, really typical with HMS/HEDS. Sorry to hear you've come up against that one.

mary-op

Sorry all............not posted for ages but keep checking in on you all.
Won't bore you with all the details except to say OH has similar bone problems to myself plus recently had a bout in hospital with suspected appendicitus that turned out to be blockage in his bowel and ended up with half his colon being removed.
So, house now resembles a mobility shop with frames, crutches, sticks, my scooter etc. but we're managing ok. In fact I can walk better than him at the minute.
He sees consutant about the colon on Friday and back consultant the following week.
I'm cheering myself up by grabbing a few hours in the garden now its all done and we have sunshine and ordered a pair of pretty blue floral walking sticks...........foster daughter is sharing the cost as early birthday pressie.

Hugs to all of you who need them.............don't we all. Do take care

(Have now finished knitting baby jacket and blanket for foster daughter and left with nearly a full ball of cream wool, plus ball of navy.........now what can I make with them ? Done wrist warmers, scarf, hat.........brains run out of ideas now.
Maybe I'll get my paints out instead..........looks like we're in for a few days rain)

Jojo_the_Tightfisted

Evening...well, it seems to be a period where we all seem to be meeting obstacles.

I've had my Citalopram dosage doubled to 40mg. And whether I was getting worse anyway, or the increased dosage has had side effects as I have been terribly low, feeling ill, not wanting to eat, etc, etc. Been told to stick with it, but it is quite unpleasant. I have also lost quite a bit of weight at the same time, and have the added complication that not eating seems to reduce the inflammation and pain of the RA, so keeping an eye on the fact that I could conceivably get some very disordered ideas about food in this state. [sigh]

Anyway, trying to occupy myself and not give up.


hugs to all that do 'em.

needing-help

Trialia I'm really not sure what to do now. I spoke to my GP who said he wouldn't have called it growing pains. He said she is definitely hypermobile and he will refer her to physio but doubts it will help. GP said she will grow out of it.

I have tried explaining how much pain she is in and I can't stand seeing it. She can't even use her scooter anymore because it hurts to much:(

Sorry ranting again

Jojo It sounds like you are having a really rough time at the moment, I hope you feel better soon.