The (not so old) Crocks Cafe -Part 2

bigzippy

LameWolf wrote: »

That'd be me, too, BZ;if there's one thing I dread, it's the thought of being in hospital. But I'm a total wuss.:D

Don't know what I can say to help, other than to wish you massive amounts of luck and healing vibes. (((HUG)))

Thanks LW, I thought you'd be able to relate to that bit in particular Someone else (not from this board) said they had to wait 6months for their gall bladder op!!:eek: I sincerely hope that wouldn't be the case for me! Not least because it would have yet another knock on affect on our baby plans On pins waiting for my scan now... :cool: I really need it to be fixable this time...

formaldehyde_perfume

Some good news to report for once.. well.. it's not really news I guess but anyway...

Today I went up to Leicester (from Cambridge) on the train to see my friend on her little boys first birthday and the day was just amazingly normal, I think you guys understand what I mean, it feels so good just to do something that someone else would consider normal that it is now an amazing feeling. We had pizza, and cake, and lots of presents and babies; the sun was shining and so lovely and warm

Also, the physio rang this morning and is coming round tomorrow to see if she can help find a solution for the cuffs on my crutches pinching and therefore bruising. I fear we may have to look at bariatric crutches because they're the only thing likely to have a wider cuff and will be heavier, but anything that makes my life easier (and is free, thank you NHS ) can only be a positive thing.

The bad news is that my mum atempted to push me round Tesco in my manual wheelchair yesterday and as we thought, it knackered her so badly we had to stop all the time and it took 3 hours to get a wheelchair-trolley-sized basket of food and she was exhausted; and now today her bad foot has flared up which will take weeks to heal.. so the manual chair with my mum is a no-no. It could possibly still be useful if I find a big strong man, or the once in a blue moon that my dad comes out with me.

This episode contributed to an overall pretty bad weekend, for lots of reasons that are too boring to go in to, so the lovely day today was sooooooooo needed, and such a relief

EDIT - Also, massively good piece of news for me is that I fell out with a really close friend in September, it was over nothing and everything iykwim (I wasn't coping, it was mostly my fault) and I had some positive information for him so I e-mailed him and he has written back not angry at all and said he had missed me It's an amazing feeling to know he still cares as much as he did, and we can be that close again.
I hope everyone is coping ok. Hugs to those who need them

P.S - FYI Lady Morticia is in America at the moment, nothing (more than usual) is wrong.

Natty68

formaldehyde that's really good news that you had a lovely time yesterday with your friend and her little boy. I know what you mean about being able to do "normal" things, it gives you a really big buzz when things like that can happen, as we always seem to be laden down with not being able to do everyday things that other people take for granted.. I know I really get a kick when I get to do something "normal" the only trouble is I get so down when I get back to reality if you know what I mean as it doesn't always last..

Wow that's fantastic news your friend is back in touch, how lovely that must make you feel. Enjoy his friendship

bigzippy good news that you are finally getting something from the Drs, it's amazing how different things present. I suppose the Drs have to rule everything out before they come to their final diagnosis. But glad that you have something positive. Don't worry about going into hospital, although I can talk as I too am petrified of going into hospital at anytime as I don't do too well away from home and my DH. If he isn't there or contactable then I panic and fret so much. Plus my house is a "safe zone" and hospital definately doesn't have that for me.

Trialia I know what you mean about getting strains of flu after the flu jab.. Everytime I have the darn jab I end up going down with a really bad bout of flu which lays me up for a good 6 weeks. DH blames it on living in the town and all the pollution, me I'm not so sure. I am convinced I react to flu jabs..lol

I'm surfacing from my medication stupor I hate having increases and change over of meds, they do nothing for me at all and it's horrible when they make me feel so ugh!! I have had a few "high" days, which I really like, but unfortunately they don't last. So I make the most of them when they are here, my house gets gutted, the garden gets tackled, baking gets done and I can tackle the world..lol Now if I could just keep the "high" days then I would be happy, although not sure my DH would be as he finds it hard to keep up with me..:D

Hugs and love to everyone xx

Erme

I'm so tired...... I've been in zombie land ever since missing my pm nap this pm due to appts. GP suspected anaemia just by looking at my eyes but didn't send me for bloods. I mean I'm sleeping but if it's not good quality I feel whacked. I think I've had about one decent (more than 6 hours and no nightmares) sleep in a week....It's really knocking me up.....

I don't know whether to phone the surgery tomorrow and see if I can get an appt with someone to get these bloods checked or even a phone call from the GP to see what she thinks? I mean I got enough hours last night but it was disturbed..

So it has meant tonight's tea has been one hard boiled egg with cheese in the microwave and right now I can really feel a crisp and choc binge coming on :eek: ...not that I can afford it but that's another thing

E

jodie114

bigzippy wrote: »

After 5 UTIs and 3 upper resp/tonsil infections within 7 weeks, and a trip to the OOH doc who sent me up to see the surgeons at the hospital, it seems that I may have gall bladder issues/stones... anyone had one out before?

Funnily enough, I'm finding the idea of this more palatable than the idea of IC for the rest of my life...biggest freak out I'm having right now is the actual being in hospital, and without DH _pale_

:wave: to all.

P.s. Elle: I have been on pregabalin but don't recognise most of the things you mentioned as side fx

I had my gallbladder out about 3 years ago - it was the best thing in the world, the pain before it was unbearable, and even a salad was kicking it off.
I was lucky, as i was on the last bmi index to be allowed it by keyhole at the time, and i was done as a day case so the whole thing only lasted about 8 hours.
I was fine afterwards and needed no extra medication for pain(although admittedly i take a lot anyway) and was properly up and moving in about 5 days. Trust me the relief was AMAZING!

SingleSue

Hi guys, not posted in here for a while as my mood has been very low..although it is improving a tad now.

Having a battle with eldest at the moment, his joints are very bad this week, made worse by doing his part time job (very physical) and he will not contact his physio or go to the doctors to talk over the new joints being affected (he has EDS). His elbows are now partial dislocating, I suggested getting him an elbow support, he poo pooed the idea, I've tried explaining the damage he is doing now will have an impact in years to come and he has to try to protect his joints as much as possible, whilst still leading a normalish life (e.g still going to his part time job) but will he listen?

Not on your nelly!

So any advice? I have tried the old "Do you want to end up like me" one but his usual reply is "Well, I am going to anyway, so why not enjoy my life now"

He has already been warned his joints are so bad and dislocating so frequently, that he will probably be in a wheelchair by his mid twenties (he is 17) but he appears intent on making that come quicker!

Or am I just being a worry wort?

LameWolf

SingleSue I'm tempted to say Pot...Kettle...Black... As in have you applied for that Blue Badge yet??;)
I don't know how you can get a 17 year old to listen to his Mum, to be honest; imho with men generally, the trick is to make them think the course of action you want them to take was their idea to start with. No idea how you'd achieve that in this instance though.

Erme I sympathise; I've suffered nightmares for most of my life. Horrid things!

I'm 'orribly tired today; but it's OK, I just used up most of today's spoons last night, is all. We saw the new Pirates of the Caribbean film at the cinema, as Mr LW was on early shift yesterday.:) Also went to the bank and ordered our Euros for our trip to Belgium later in the month - had to do it early, as I can only get into town when he's available to take me, and he's only got one more early shift (next Monday) before our holiday, so we'll actually collect the Euros then.

Next Wednesday we have my little mate Sidney coming to stay for 10 days:T - for newer people to the thread, I do dog-sitting, and Sidney is a Miniature Schnauzer with diabetes; he's stayed with us twice before, and he's a lovely little chap.:o

Trialia

If he wants to do what he can while he can, Sue, well, he's very like me... I'd rather be able to do all this stuff before it gets taken away from me than take it easy and never do it at all. Does that make sense? It's why I saved to go to the USA when I was 19 and had never been out of the country. If he sees you and is still willing to follow the path he's following with full knowledge of what's going to happen later... well, it is, honestly, his life to do that with. I don't mean to sound mean, but it's his choice, is it not?

SingleSue

Thanks guys, I understand all that and have said I don't expect him to give everything up but just to use supports to protect his joints a little more while he is doing it, so that the damage is not as great.

I know there was no way on earth you could have stopped me doing all I did at his age...hell, I still push the boundaries of my body now, refusing to give in to it and he is very like me in that respect but I do wish I had known what damage I had been doing back then and I may have taken some (very small knowing me) steps to prevent some of it. In me, he can see where he is going to end up, in fact, end up sooner than I have as his joints are way worse than mine were at his age.

And no, no application for a blue badge or DLA as yet....I'm a stubborn begger.

formaldehyde_perfume

tut tut sue!

I can understand the DLA application, that is a lot of both physical and mental energy to fill out and then the waiting is hard too, but a blue badge application is quite simple and at least in my case it was fairly quick too. POT KETTLE BLACK!

I do understand your frustration with your son though; but as long as he has all the facts and you've calmly told him what damage it can do, he's of an age where only he can decide what to do about it.

If he does come round to the idea of using braces then you should refer him to Orothics through the GP, two of my EDS friends who dislocate all the time say that they're really helpful. One of my other friends can't speak highly enough of push braces.



On a personal note I'm disappointed in my NHS crutches, the cuff is pretty good but they're not very stable and the hand grip is pretty painful, but apparently they can get the sort of hand grip that is on my other crutches so I think when she comes back to see how i've got on with them I'll ask for better handles. Other than that things have been pretty quiet here for the past couple of days.