The (not so old) Crocks Cafe -Part 2

soolin

Actually I now have an image of a Benny Hill type scene in my mind, a speeded up film of a group of assorted people running, hobbling or wheeling themselves about in a line with that very catchy music playing.

soolin

Elle7 wrote: »

I saw that! What a woman.

Hey everyone. Kidney infection is bad, agony last night and so bloated today. Feel rubbish...

Neurology appointment was a complete failure, she didn't even listen to me...Feel so disheartened. No idea what to do now - write to her? Write to the hospital? Too ill to get to my dr at the moment.

I hope the MRI results are good. I haven't had mine yet, I'm a bit worried but if it's a nice noise that's quite reassuring!

It is very very loud and you must not move. They put earphones on me and a sort of neck brace and a weight across my chest and then you roll back into the machine. I had a panic button in my hand and the machine is light inside, not dark which I think makes it easier.

It took about 20 minutes in all and the noise varies. Mine was only a neck and head scan and I assume it is different for other body parts.

I have had two before but one failed as I was so very ill I couldn't lay flat as I was constantly vomiting and they were frightened I would choke.

Elle7

soolin wrote: »

It is very very loud and you must not move. They put earphones on me and a sort of neck brace and a weight across my chest and then you roll back into the machine. I had a panic button in my hand and the machine is light inside, not dark which I think makes it easier.

It took about 20 minutes in all and the noise varies. Mine was only a neck and head scan and I assume it is different for other body parts.

I have had two before but one failed as I was so very ill I couldn't lay flat as I was constantly vomiting and they were frightened I would choke.

I'm having a head, neck and full body, apparantly. Thank you for the explanation, I think it'll help to be prepared. Or at least I hope it will...:eek:

sunnyone

soolin wrote: »

I am sitting here smiling at the idea of you lot being a mini crime wave, a sort of smash and run in slo mo!

Just had my MRI , it is odd how soothing that noise is, rather like being young and sleeping when my mum vacuumed the lounge as the noise was so nice.

I smash and run all the time, there was that window in Butlins, a shelpf in Tescos and the door of the disabled loo in a resturant in Newcastle to name a few but they will block suitabled disabled access with rubbish so that you cant get around easily.

Elle7

Does anyone here take Pregabalin?

I've been taking it for a few months now, and am on 400mg per day. I've been fine with it, apart from the irritating weight gain, but I'm struggling now. I seem to keep getting a horrible fever, where I'm boiling hot and sweating but feel freezing and have a bad shiver, or I'm so hot but my body can't cool me down. And frequently I wake up in the night and my mind is spinning with thoughts - I just manage to worry myself about stupid things, and then can't sleep again.

I tried to get a doctors appointment today but I couldn't. Tomorrow I have my first mental health assessment thing. Worried!

I hope everyone is having a good day, it's quiet here!

Trialia

I *have* taken pregabalin before, but I didn't have those problems - it was the severe exhaustion and weight gain that meant I had to stop it - being in recovery from an eating disorder and adding very rapid weight gain to that? Bad idea.

Elle7

Trialia wrote: »

I *have* taken pregabalin before, but I didn't have those problems - it was the severe exhaustion and weight gain that meant I had to stop it - being in recovery from an eating disorder and adding very rapid weight gain to that? Bad idea.

Yeah, I can imagine...I've always had quite a healthy attitude to food but I find myself trying to skip meals now, to keep the weight down. It's horrible

I had hoped to discuss it with neurology, but that was a complete waste of time.

I wonder if there is an alternative (hopefully without the risk of weight gain!)

Erme

Trialia wrote: »

Heh. Amitriptyline makes me a zombie unless I taper *very* slowly - and I mean cutting what they usually use as an initial dose into quarters!

FP... I have the flu jab every year, and I still invariably get one strain of flu or another. The perils of living in a city with so many universities, I guess.

Erme... If I recall correctly, with what Jojo has, recovery is not possible. It certainly isn't with what *I* have, which is degenerative!

Och sorry....didn't mean any offence...Hugs

Jojo_the_Tightfisted wrote: »

Cheers, CWTA - by the way - I knitted my first squares yesterday! It made sense in a way it never did when I was a kid - and I hadn't been taught how to cast off. Did one garter stitch, two stocking stitch, and one - the one I am most proud of, as I've never done it before - in moss stitch. DD took one look, declared she didn't like the texture of moss stitch, but said 'right, I want a scarf for winter' - so thank you! :kisses3:

I thought that Lanzoprazole was supposed to stop me feeling bleurgh. I may well bring up the idea of an anti emetic at my next appointment.


Erme - I am grateful, as Trialia says, though, I do have more than just the one thing - some of them are degenerative, but looking forward to coming out of the depressive episode.


[blushing] I woke up today at 3.15pm. :eek: I have NEVER, ever, in my life EVER slept that late before. My bodyclock is so stuffed at the moment!

Och so is mine and when I don't sleep I get symptomatic :eek:....had a nicotine OD on thursday by Friday the ward were concerned I wasn't sleeping....LOL...I'm sleeping now but not enough

bigzippy wrote: »

Don't be daft, moan away I don't drop by often anyway, to be fair.
"They" can't/won't do anything to help other than refer me to Urologist (done and seen), have the Urology tests (1 down, 2 to go -not looking forward to the cystoscopy), and take the antibiotics they've been handing out like sweets for the last 2 months! I'm drinking cranberry juice, and popping cranberry tablets and multivits and allsorts. It's not peeing that hurts, it's my bladder and kidneys that kill. Makes wearing anything more painful too

Btw, I've heard that cranberry can mask the infection by treating the symptoms rather than the infection, so beware of "so much they don't need antibiotics"...not sure where I got that from now, but always worth checking with a doctor when you suspect you have an infection IMO.


I was awarded LRM and LRC last year and have finally got my tribunal date (July) through now - the letter for reapplication was March last year, so you can tell how long this has taken to get to this point!

As for the issues with pain and cleanliness, afaik that was more in line with MRC (not commenting on the mobility side of it) - to qualify for the HRC it was my impression that you needed near-enough constant supervision through the night...? I suspect your strongest basis for appeal would be on the mobility side rather than the care side, but I obviously don't know your case! Either way, good luck with it all!

I've just enlisted the assistance of my OT (who's just given me bath hoist, perching stool, bed rail and is arranging grab rails ) to write a letter for the tribunal for me


Welcome Jodie


Sounds like you might want to talk to the doc about gluten/wheat intolerance...? Re: the coeliacs thing, be aware that they can't test you for it if you've already cut out gluten. From my experience they do a blood test first and then if there's anything to investigate/confirm they'll think about the scope.

Erme I'm a lady of faith, but nothing short of divine intervention in the form of a miracle will see me recover from what I have either - and while I have faith that it's possible, I'm realistic that it's unlikely to be happening in my case either.

:wave: to everyone else. I'm now in the midst of my 7th and 8th (at the same time) infections in 7 weeks. The joys of a sh!te immune system. :cool: Hope everyone else's UTIs and otherwise clear up soon!

Yeah I'm the same on all these so called churches where if you are nothing less than 150% fit then you don't have faith :mad: - och and loaded LOL...Healing for me is a gradual process and everyone has to die of something. But yeah...kind of get you there. Faith is about life but not living in this present body for eternity...Just think hun - when you get to glory you'll have a perfect body with no disability :cool:....that'll be fab. You'll have a perfect body and I'll have no SI scars

Yeah on the cig reduction now full blown on e-cig....don't quite know how I'm doing it - there is no 'mega' plan for the transition. If I really want a cig I have one...But I think it's my only chance of quitting the cigs - plus it's cheaper ....

And doing the FL again cos I revised the spreadsheet yesterday...

Sun here today - pray it's not too windy like it has been...

Hugs anyone who needs them. Pay day tomorrow - with all the blow out last week on e-cig I can't wait (today is going to be a long day)....

E

bigzippy

After 5 UTIs and 3 upper resp/tonsil infections within 7 weeks, and a trip to the OOH doc who sent me up to see the surgeons at the hospital, it seems that I may have gall bladder issues/stones... anyone had one out before?

Funnily enough, I'm finding the idea of this more palatable than the idea of IC for the rest of my life...biggest freak out I'm having right now is the actual being in hospital, and without DH _pale_

:wave: to all.

P.s. Elle: I have been on pregabalin but don't recognise most of the things you mentioned as side fx

LameWolf

bigzippy wrote: »

After 5 UTIs and 3 upper resp/tonsil infections within 7 weeks, and a trip to the OOH doc who sent me up to see the surgeons at the hospital, it seems that I may have gall bladder issues/stones... anyone had one out before?

Funnily enough, I'm finding the idea of this more palatable than the idea of IC for the rest of my life...biggest freak out I'm having right now is the actual being in hospital, and without DH _pale_

:wave: to all.

P.s. Elle: I have been on pregabalin but don't recognise most of the things you mentioned as side fx

That'd be me, too, BZ;if there's one thing I dread, it's the thought of being in hospital. But I'm a total wuss.:D

Don't know what I can say to help, other than to wish you massive amounts of luck and healing vibes. (((HUG)))