Miscarriage support

skintchick

Metranil_Vavin wrote: »

Thanks amus, I will have a read of the article.

I just keep asking myself how I managed to have my son who is (in my eyes) the most perfect child. I had a really straightforward pregnancy, no complications other than an assisted delivery.

But now I seem to be coming up against a brick wall every time we conceive.

Maybe what you say above is what is happening to me too. Like you I've had one mc at 9 weeks and now 2 Chemicals in a row.

MV, my story is similar.

PG 1 - mmc, baby died 7 weeks
PG 2 - straightforward uncomplicated pregnancy resulting in healthy baby at term and a home birth.
PG 3 - mc at 6 weeks
PG 4 - mmc at 13 weeks, baby died at 11
PG 5 - mc at 4 weeks (a chemical I guess but I hate that term)
PG 6 - mc at 10 weeks

But I now know I have a genetic blood clotting disorder called Factor V Leiden, and might also have another clotting issue called antiphospholipid syndrome.

My consultant said my DD is a 'miracle' and he has no idea how we had her with no problems.

The hard thing is that you have to have three in a row before anyone will do anything. I do remember with my last pregnancy thinking that at least I'd either have a baby or I'd get some help.

They refused to count my very early mc, so I had to have four in a row.

you could always go private? A friend of mine has all the costs for St Marys if it would help to know how much. I know the most expensive test is around £400, I only had three tests cos the NHS won;t do all of them, they cherry pick based on your history.

Get in touch if I can help at all.

Metranil_Vavin

Skintchick I am also so sorry for all your losses. It really is horrific that you have to have had a certain quota before the NHS will take it seriously.

It is good to hear that at least you know now why you have been having so many problems, and I sincerely hope there is a treatment that can help you now?

I have emailed today a private clinic who specialise in miscarriage, and requested a call back from them. I am quite prepared to pay to have a consultation if I think it will help me. I spoke to a Dr from my practice yesterday, and although he was nice about it all, I got the impression that they really don't take this thing very seriously, and when I asked about testing he said there were blood tests available but they were for specific conditions which were rare (??).
He basically just told me that my age was probably a big factor in my problems, and that I should wait a cycle and then try again and if the same happened come back and speak to them. Brilliant.

If I can get a few more answers a bit more quickly than that by going private, I'm prepared to pay for it!

skintchick

THE conditions might be rare, but they are very common among women who have experienced multiple miscarriages, so kind of not rare at all!

FVL which I have affects five per cent of the caucasian population, so that might be rare, but lots of women who've had multiple mcs have it.

Yes, thankfully there is a treatment. When I get pregnant again I have to take 75 mg of aspirin a day, and inject myself with 20mg of herparin daily too. If I also have antiphospholipid syndrome then the aspirin dose rises to 75mg at 34 weeks.

So it's a very easy treatment.

I think seeking private help is a good thing to do. The NHS doesn;t do a thing till you've had 3 in a row, and in my experience that can end up with you in a very delicate mental state. For me, the fifth loss tipped me over the edge.

I'm now in counselling but having an answer and treatment has helped a lot and I feel a bit more sane now.

I hope you can get some answers too. Feel free to come post on the multiple miscarriages thread, I always hoped it work parallel to this one where people can post about treatments, experiences, etc.

tinkwings

Ok so now on Day 11 of Bleeding since my MC & hospital admission .

How long do you normally bleed after a natural MC? It is really getting me down now?
Should I ring the ward? or see my GP?

Metranil_Vavin

Tinks from memory I bled for about 14 days after my mc at 9 weeks.

Did you have any sort of proceedure whilst in hospital, an ERPC or anything? If not I would say maybe give it a few more days and then contact the hospital/GP.

Is it lightening up at all, or still as heavy?

tinkwings

Metranil_Vavin wrote: »

Tinks from memory I bled for about 14 days after my mc at 9 weeks.

Did you have any sort of proceedure whilst in hospital, an ERPC or anything? If not I would say maybe give it a few more days and then contact the hospital/GP.

Is it lightening up at all, or still as heavy?

The only thing apart from lots of morphine in hospital was a internal to get out the biggest clots to try & stop the hemorraging as bleeding is nature's way of getting rid of things . That stopped the hemorraging but the bledding is like a very heavy AF with clots :(
They weren't keen to do a D & C as I had a nasty reaction and fitted last time I had an operation

Metranil_Vavin

Maybe give it 2 or 3 more days and if it doesn't seem to be easing up, speak to your GP?

Mine is pretty clotty too, which is odd given I was only just 4 weeks along.

It's like a horrible, cruel joke isn't it

amus

tinkwings wrote: »

The only thing apart from lots of morphine in hospital was a internal to get out the biggest clots to try & stop the hemorraging as bleeding is nature's way of getting rid of things . That stopped the hemorraging but the bledding is like a very heavy AF with clots :(
They weren't keen to do a D & C as I had a nasty reaction and fitted last time I had an operation

I would give the epu a ring it sounds like you may still have leftover placenta to be bleeding so badly after 8 days

cookiecrumbs

I had a mc at about 8 or 9 weeks. I bled for about ten days and had an internal scan afterwards which confirmed I was back to "normal". The nurse also said she could see follicles on the right hand side, one of which should turn into an egg.

I am now about 7 weeks on from that and have not had another AF. Is this normal?

Thanks

tinkwings

So just rang the Ward & spoke to a doctor she said if I am still bleeding in a couple of days to ring & I will be made an appointment for a scan