MSE Parents Club Part 3

Millie's_Mum

Sami, the pain in your other boob when you start to feed is normal I think (I hope it is cos i had it too!) it feels like a let down but in the one you're not using? It doesn't hurt as much now as it did so its either lessening or I'm just getting used to it (16 wks)

ladybirdintheuk

Sami - i get that too! I think it's just let down reflex kicking in on both sides at once.

Jem - Izzy won't drink from a bottle either. We've not tried a doidy cup, but she will drink quite happily from a TT food pot. It does take ages though! If you are leaving baby with someone it's probably worth suggesting they do the milk feed before the crying starts Probably easier that way! I've given up on the hope of going out without her in the evening at the mo - it is only a little while in the grand scheme of things. (not that I don;t think anyone else should, it's just not a priority for me iyswim) By the time I go back to work she will only need 2 pots worth during the day though, assuming we can fit in 2 boobie feeds in the day time. ~crosses fingers~

Izzy has just fallen asleep on me, and I was about to go move us both into bed, but someone is drilling. :mad: Hopefuly will stop soon. They are building a big extension onto tesco which is very close by. Normally it is far enough away that we can't hear it, but they are obviously doing a noisy job today!

elle_gee

3onitsway wrote: »

Thanks Elle . Thats exactly what we were thinking - we should congratulate them on becoming parents - but 'congratulations' seems inappropriate! We'll leave the presents until he comes home. Babys dad called this morning, Dr.s have said there will be moderate to severe disabilities. Hospital sound really carp with having Mum and Dad there together. It sounds like he can be there during the day, but is chucked out after evening visiting time. His parents have flown back from there hols so at least he's not on his own now.
I think i'm just really aware/afraid of saying/doing the wrong thing. Having our own disabled son, I know lots of people speak before thinking! Although DS was all ok at birth, we noticed the differences when he was 12-18 months when he wasn't doing as expected. Once he was diagnosed - we had some very strange comments! (My nan is one of the worst culprits - but she gets away with it because she's old! :mad:)

Sorry, meant to reply to you earlier.. We were told Rhys had "suffered an insult to his brain and been left with damage" - it took 24 minutes to resus him after they brought him out so it's the lack of oxygen then that's caused brain damage. He has had numerous tests including an MRI scan which is very rare (and complicated!) to do on babies and has weekly ultrasound head scans, none of which can tell us exactly what he will have difficulties with in the future. The only thing I knew that lack of oxygen at birth could cause is cerebal palsy(sp?) and that there are varying degrees of it.

Countless times they mentioned "doing the kindest thing" and that they would tell us "WHEN they were starting to lose the fight" so we demanded they sit down with us and tell us what they think he might have problems with - just some vague idea would be better than nothing at all. We were told they thought he would have problems with mobility and probably need a wheelchair permanently and that feeding would be a problem and he would have to be tube fed for years. About eight days after that meeting, another consultant was saying how surprised he was that Rhys was still here and that he was showing signs that he would be fine with feeding (the co-ordination between suck, swallow and breathe) and that his mobility was bang on perfect for his gestation! So.. The first consultant is one of the top ones in the hospital so we didn't doubt what she had said - it just appears that Rhys got some fight back and proved them all wrong

Only time will tell what difficulties Rhys is going to have in the future. We know he had cronic kidney failure and they are slowly now improving but not quite there yet (levels of bad stuff are falling but we don't know if it's going to plateau or if they will eventually recover to normal) and brain damage, but only by his development over the next three years or so will we know what's affected. To look at him now, you wouldn't think there was anything wrong..

Sorry, waffling now.. Point is, we were told the worst case because they have to prepare us (covering themselves, I think) but Rhys has surprised everyone by still being here and actually behaving normally in many more ways than they ever thought.

Does the hospital have flats for the parents to stay on the neonatal unit? Ours has four rooms for parents, plus open visiting hours so anyone can go anytime.

workinmummy

elle_gee wrote: »

Speaking of dummies, can you buy really mini ones? I'll have to have a look..

Elle, i have pm'd you.

SusanC_2

Sami_Bee wrote: »

I have a couple of qu's for the BF-ers..
Is it normal for your 'other' boob to hurt when you start to feed? mine does, its not really painful but sort of tingles as the let down starts and lasts for about 30 seconds..

I don't remember noticing it when I was feeding (was too busy noticing the pain on the side she was feeding) but that description sounds just liek what I used to get on both sides when I had let downs at other times like if Alice cried just before a feed. I can't remember how long it lasted but it was only in the early days (possibly about a month?) I figure it is that in the early days you have lots more milk so you feel it more when you have a let down and the milk isn't actually go anywhere. Hope that makes sense.

SusanC_2

Elle - one of my brothers was brain damaged at birth due to lack of oxygen. He did a programme tailored for him by the British Institute for Brain Injured Children. At the time it was run by Keith Pennock (who set it up) who later left and set up Brain-Net and has since died so I don't know how similar it is to what it was like then but I would have thought it wouldn't be wildly different. He wrote a book about it called Rescuing Brain Injured Children which is well worth reading. If you want to know more, feel free to PM me.

Sami_Bee

Thanks ladies tis good to know I'm "normal" :rotfl:
I'm now just worried about my scar - which I'm guessing no-one else is affected by, I'm just braving the pain at the moment hope I can continue to, I really don't want to give up because of me IYKWIM I'm hoping it will be Edgar's choice when we stop.
I wish I had thought of this before I had surgery, although I wasn't ever told I'd have such a big scar, I was expecting 1cm at the most, It's not like I could have not had it either as I had a very large skin tag removed that was painful and probably would have been just as painful if not more when feeding :mad: damn my rubbish body!

scruffy96uk

I think someone deserves cake :bdaycake: Happy Birthday Sami. I also use to get that tingley feeling

I swore by Nelsons teething powder and found them great value as boots do BOGOF on them quite alot.

Elle It does sound like Rhys is doing really well. Hope he enjoys his first trip out.

scruffy96uk

jenkellyxx might be worth trying something like this. It wouldn't be a long term fix but if it means you get a break to go out and do something baby free I say it's worth a try. You should be able to get one in boots or local chemist.

Krystaltips

Sami, give the number in my signature a call and someone might be able to talk through different positions with you, or how you can ease the pain at least... If all else fails... You can completely feed from one side only

Oh and the tingle is let down... I never felt it at all with Aimee but get it all the time now!