Fibromyalgia (part 2)

bigzippy

Ok guys, prepare yourselves for a biggy! Sitting comfortably?

I have managed, somehow, to sneak onto some randomers unsecured wireless network :shhh: so I've actually been able to read up on what you guys have been up to from the comfort of my own bed! I'm so scared that it'll drop out at any moment that I daren't go to bed until I've posted on here, and I wanted to read through first, so there goes the sleep...not that I've had loads lately anyway... :rolleyes:

Thanks for thinking of me you guys I haven't made a big fuss about the BB...mainly cos I've been feeling a bit "little" iyswim. Changing the meds - or more to the point, coming off pregabalin - has meant that not only do I have more pain now, but my temperature regulation is ridiculously bad, I manage very little irregular and rubbish cycles of sleep and I've got a constant flu-y feeling at the moment. All that combined has meant that I'm fit for very little other than lying in bed (invariably not sleeping:rolleyes:) or lying on the couch (invariably bored out of my brains!). I can't deal with any kind of confrontation when I feel "little", including ringing "service providers" (I'd love to know what service they're providing right now!), and I feel "littlest" most when I'm tiredest. Which I am. Immensely. I'd forgotten what I was like pre-pregabalin/amitriptyline etc...

I've now started the Sibutramine...I've had one last night and one tonight. I'm still wondering whether my IBS is messing with me or whether I feel constantly nauseous cos of the Sibutramine... I can tell you one thing though- if it hangs around I'm ditching it and going back on Pregabalin! A girl can only take so much!! I'll try something else (which hopefully would be less painful!!) if I don't take to it well. Not sure what, but something!

I'm also a bit down today cos my dad rang last night and told me that my Aunt (who has two types of cancer at the same time...and has already battled 2 other types over the last 15odd years) is now classed as terminal and they've stopped all treatment She told him that they didn't tell her a timeframe of how long she might have left, but I don't know whether she doesn't know or isn't telling iyswim? Either way, I don't fancy our chances of getting her to our wedding (you knew I had to mention it sooner or later, right? ). Even if she's still with us, I'm doubtful that she'll be well enough to make the trip up here (I live in the north, she lives in London). It wasn't unexpected, but I never had grandparents that were alive long enough for me to meet/remember and of all the family that my dad's become estranged from, she was the only Aunt I've known all my life. I only know one other to speak to. I was really upset about it last night, but I know that won't help... *Sigh*

As for the wedding planning, I managed to go to Manchester with my assorted nieces last friday to do some bridesmaid dress trying-on. We've found our winners in good ol' British Homes Stores and the woman there said that they have the colour ranges in ALL the time, and they just change the dress styles annually (in January), so we should be able to get perfectly fitting dresses near enough right before the wedding with no fussy ordering etc. You can order them online too, which cuts out a load of faff. So that was good. (EDIT: I'll post pics when I'm back on own computer online at home etc) Just have to convince OH that he really does want to go suit shopping now! And I have to pick my dress for definite too!! If I want the one I showed you guys then I have to order it by like March 13th, to make the 6 month deadline, which as you can imagine, is starting to freak me out a little! :rolleyes: (I still don't know how it can possibly take 6 months to get in though!!) The good thing is though that I popped into the shop last week and they said that although I have to order 6 months in advance, I can do it "with sizing to follow" - so I only have to commit to a size in May. Yay!

Ok, now onto you guys:

Raeh glad you made the appointment with doc and hope you get hopeful and helpful news back

S/e and Auntie Axe nice banter as always Glad to see you back S/e we missed you.

Cwta I don't envy your position with your Dad & sister etc. I can't really add to what these guys have already said I'm afraid.

LW well done on conquering everything you have a fear of. And I mean that sincerely. Even walking in the pub, I'm sure, is a challenge - never mind anything else. You should pat yourself on the back for every little step - if you wrote them all down, each step you were dreading (after the fact or it would freak you out too much!), and then ticked off what you managed and were KIND TO YOURSELF (a thing my SIL is always telling me to be!) then you would or should be very impressed with yourself! I used to get panic attacks about going into Uni, and other things at the time, and I still get anxious about a great many things. I know I'm on the smaller scale, but I'm just saying that we can relate, if only in part, and we're proud of you!

Kass I've COMPLETELY forgotten what I was going to say to you!!

Trialia have a great time in Germany!

Sharon welcome back!!! I hope that the course of treatment is effective and manageable and pray that you remain strong throughout: mentally, emotionally and physically.

Unity get well soon

Suep well done on getting the scooter! It sounds awesome. I've been getting my OH to push me round stores in a wheelchair over the last few weeks, and although it's not comfortable or pain free sitting in a chair for that amount of time, it's nice to be able to go and look at things with him without getting grouchy about my energy or pain levels. I can relate to you walking your dog too, I'm really missing doing that with OH atm. In fact OH brought over one of his dogs tonight (from his mum's) to cheer me up

Saffie sorry but I can't remember what I was gonna say to you either!!

If I've missed anyone out then I'm really sorry (and really sure I have!!) and I'm hoping that I'll be back with you guys properly soon Til then :wave:

somebody_else

Wheee!!!! It's zippy! And appropriating someone's wireless network too. Tut, tut. [Serves 'em right for not securing it - a bluddy silly thing to do in this day and age, there's no telling what some folks would do with an opportunity like that. If the worse that happens is that zippy manages to keep up with us here, then they'll have got off very, very lightly. Personally, I'd rather stick to the wires and a solid firewall.] Having said that, I hope it doesn't take too much longer 'til you get your own bb sorted and you're back with us a bit more often. We miss you as well.

Sorry you're feeling so 'little' zippy - are you sure these pills are worth it? Easy for me to say, but I'd rather be a bit over the ideal weight than be in more pain than necessary and feeling sick all the time. I do hope the side-effects wear off soon and you're feeling a bit 'bigger' in the next couple of days.

I was going to say something else, but the brain's just turned to sludge and I've forgotten what it was.

I'll come back in a bit if it comes back to me.

I hope everyone else is having a lovely lie-in.

raeh

good morning all

BZ was most excellent SIZE=1]said with ted voice[/SIZE to log in and 'see you back' im sorry you arent feeling great i totally understand the 'little' feeling, im only a short @rse anyway but i have times when i feel so small! I agree with s/e about the pills and is it worth it? your oh loves you just as you are, id take being bigger over pain any day iv been putting a lot of things into perspective recently...i was listening to people at work in the staff room com plaining about things and they make themselves unhappy about the way they look, dress etc and i just said i have bigger things to worry about rather than should i have a biscuit with my cuppa and i had 2
anyway il shut up blathering on ..... was good to see you and i hope things are sorted soon and i look forward to more wedding talk .... and photos of course

s/e i hope you get a relaxing and peaceful to weekend to catch up on rest and dont be overdoing it next week

cwta well done on biting your tongue with your sister make sure you have a nice relaxing weekend too

i took double my pregabalin last night [i am allowed to do this on gp advice, when needed and this is just advice to ME] i dont do it very often as i have to drive early in the morning and i just needed a good nights sleep for once, well i slept like the dead and woke with a heavy head but i never woke once through the night and now the hang over has worn off [after crumpets and a cuppa] i feel much better so i may do that again tonight

off to mums today as its her 60th birthday and my sister is going to throw a little party, shes only around the corner from mum so we will 'pop round' to hers and hopefully she will have everything ready im in the process of making a banner and my arms needed a rest so im on here

have a great day whatever your plans are

black_paw

wow bigzippy ..lucky i have my new comfy chair to sit on ! spend out after getting some back dated benefit money, old chair was a pain to sit in with 4 cushions , this one seems to mould to your back and the arms have cushions on them which is good as my arms are very painful most of the time. soon be the wedding !

bigzippy

Cheers guys, it's good to be back!! I wasn't sure if the connection would still be here today but so far so good I'm scared of moving the laptop to any other place in the house though in case it disappears! OH is ringing Sky today for me (cos I'm too "little" ) so we'll see what they say. BT Openworld were supposed to come on Mon/Tue morning but never turned up... Apparently there's some problem with transporting my number over from the last house or something... it's not essential, obviously, but I'd rather not have to change my number if possible - especially as I sent out all those letters last year re the family tree etc. Would just be easier and might make the extra wait worth it. It is getting a tad frustrating now though as they're saying I'll probly only get the phone line 5th March!! and BB 2 weeks later... :rolleyes: *Sigh*

As for your concerns over the treatment guys, I have thought about this long and hard and I'm not going into it lightly. If it makes me feel sick for anything longer than a few days I wouldn't be able to cope with it anyway. I'm taking Tramadol at night to help me deal with the pain enough to sleep (sometimes anyway! ) and paracetamol/cocods to manage the temperatures...that being said, I am definitely missing the relative stability of the meds I'd gotten used to! Having suffered to get to this point though I think I should at least give it a fair crack... and if it's not worth it then I'll try something else. It's not really about how I look, for me, believe it or not. I know OH loves me as I am and that I could use clothes more flatteringly. It's more that I'm scared of it all getting out of hand. My dad had a quadruple heart bypass a couple of years ago and has been a "big" guy all my life. He's been fairly inactive too and I'm wary of going the same way. I would rather try and get back to a fairly reasonable level now and try and maintain it, than wait til it got any worse...iyswim? I feel it's something I've got to take drastic measures on and so I may as well do it before the wedding. I feel a bit better today though, so hopefully I'll settle down with it soon and the sun will come out and start warming the aches out of my bones! (How much are you looking forward to summer really?!)

I remembered last night, in the middle of the night (of course!), that I'd forgotten to say I was really happy to hear that Suep's dad was responding well to treatment

Can't remember what else I remembered now though of course... :rolleyes: Ah well, hopefully I'll be able to keep sneaking on here til my connection's sorted...;):D

Careful_with_that_Axe

bz

Now I was a good girl and didn't mention it, but it had occurred to me that you could get online in the way you have. Hopefully you won't get so bored when you're resting now that you've got us back.

Your description of feeling "little" is so spot on. With me, I tend to pick the battles as I have an over-developed sense of "not fair". It's not always the best thing to do though.

It is so lovely to have you back. We've missed you and I've been a little concerned as you've been so unlike your normal self since you stopped Pregnantwotsit.

Sis and I had a "chat" and she's got as near to apologising as she's ever gonna get - so that's good. She did her day of retail therapy with me so, on top of a lousy nights sleep, I am shattered. However, she's supported me in that I really need to spend a day in bed and will do so while she's still in SW tomorrow and can be with Dad.
I'm gonna resort to Amy tonight as I desperately need some unbroken sleep.

My retail therapy was only leaving Waterstones when I physically couldn't carry any more books - I feel I've got an interesting litlle pile to look forward to reading. Little pleasures.

sharon, sending you strength and positivity. Look forward to when you feel up to posting again.

unity, hope you're recovering nicely?

raeh, a decent nights sleep makes all the difference (as do crumpets). Hope you enjoy swinging from the chandeliers at party and can hear well enough to drive home *grin*.

S/e, hope you're starting to get some better snoozing in too.

My brain actually hurts I'm so tired, so am gonna have a hot bath and try not to fall asleep in it.

Laters taters


p.s, Do you know what is the most common sort of Owl??





A Teet(owl) Boom, boom, tish *grin*

bigzippy

Careful_with_that_Axe wrote: »

bz

Now I was a good girl and didn't mention it, but it had occurred to me that you could get online in the way you have. Hopefully you won't get so bored when you're resting now that you've got us back.

Well funnily enough, my BIL and nephew checked on moving day, but to no avail. They only checked in the living room downstairs tho and I'm not risking setting myself up in the living room tonight in case I lose connection! :eek: I'm hoping that some kindly non-techy has just installed their wireless and won't get round to securing it til I've had my use!

Careful_with_that_Axe wrote: »

Your description of feeling "little" is so spot on. With me, I tend to pick the battles as I have an over-developed sense of "not fair". It's not always the best thing to do though.

I have been learning to pick my battles from a young age...so now I also pick the ones I want OH to take on too

Careful_with_that_Axe wrote: »

It is so lovely to have you back. We've missed you and I've been a little concerned as you've been so unlike your normal self since you stopped Pregnantwotsit.

Aww, shucks. Ta very much
"Unlike my normal self"...what, not quick with the dirty humour?

raeh I forgot to say that I knew what you meant about not being able to hear with/out glasses. I have to put mine on to hear... but then I do lipread a lot and I have subtitles on permanently. I hardly bother with the cinema anymore as the SFX are always far too loud to make out the speech and there's not the handy option of subtitles at the main screenings...so I wait til the DVDs come out and save myself the aggro!

Careful_with_that_Axe wrote: »

p.s, Do you know what is the most common sort of Owl??





A Teet(owl) Boom, boom, tish *grin*

Now this might be a result of poor sleep...but I don't get it...? :o

OH! Wait! I think I do now!! Oh Auntie Axe! That was B.A.D.!! In fact it was almost grim!

bigzippy

Seeing as we're doing poor jokes... *ahem*

A Greek and Italian were sitting in a Starbuck's one day discussing who had the superior culture. Over triple lattes the Greek guy says, "Well, we have the Parthenon." Arching his eyebrows, the Italian replies, "We have the Coliseum."
The Greek retorts, "We Greeks gave birth to advanced mathematics."
The Italian, nodding agreement, says, "But we built the Roman Empire ."
And so on and so on until the Greek comes up with what he thinks will end the discussion.
With a flourish of finality he says, "We invented sex!"
The Italian replies, "That is true, but it was the Italians who introduced it to women!"

"Nice threads, man," commented Donald when his buddy showed up one day in a snappy new suit. "Where'd you pick 'em up?" Richard beamed. "My wife got them for me. Pretty sharp, huh?"
"I'll say. What was the occasion?"
"Got me," admitted Richard with a cheerful shrug. "I came home from work early the other day and there they were, hanging over the chair in the bedroom."

Ba Da Boom, Tish!!

somebody_else

Careful_with_that_Axe wrote: »

p.s, Do you know what is the most common sort of Owl??


A Teet(owl) Boom, boom, tish *grin*

I just tried this out on T/S. He gave me the finger and said it wasn't funny. Not funny at all. In fact it was pathetic and he wasn't going to laugh. Then promptly cracked up. I told him it was Auntie Axe's fault.

Nice to see you again zippy.

'Fraid I'm still feeling ropey and really tired. I'm getting distinctly hissed orf with this. Every time I think I'm picking up a bit it all goes to pot again. Thanks for the good wishes about my sleep though - by my reckoning I'm only owed about 10 years worth of decent sleep now. Like others, I do occasionally double up on the ami, but I can't do it too often or my body gets used to it really quickly and it ceases to be effective.

I was going to say sommat else, but the brain's still in sludge mode. I think I'd better go back to lurking.

suep

BZ Great to have you back, I dont blame you for getting online as you have, my ds1 did exactly the same when they first moved into their flat while they waited to get the internet sorted.

I went round town in the scooter with oh this afternoon, well only to H&B but it was enough, it was so good to get were I wanted without doing myself in, mind you I had a builder round earlier to discuss having a ramp built so I can get out of the house in scooter without oh around to lift it, and he talked for quite a while at the front door, explaining the best way to do it ( I dont care, just tell me how much ) and after he left my legs went all wobbly, they are really aching now. Im on my own tonight as oh has gone to a club in Brighton to see an old punk band :rolleyes: and dd1 is out on the town for a friends birthday so will have a nice warm bath and an early night soon. It's not even 7.00pm and Im struggling to stay awake already maybe I'll have to skip the bath, its too much hard work.

It's ds1's birthday today, I have a son of 27 :eek: I feel so old :rotfl:
Hope everyones having a good weekend