Fibromyalgia (part 2)

Carnation

Could someone clarify the rules about talking about meds and symptoms for me, please? I read messages where people talk about what meds they took last night to get a good nights sleep and where they ask if anyone else has a particular symptom so I am confused!!!!

Careful_with_that_Axe

Carnation wrote: »

Could someone clarify the rules about talking about meds and symptoms for me, please? I read messages where people talk about what meds they took last night to get a good nights sleep and where they ask if anyone else has a particular symptom so I am confused!!!!

Checking the site rules would be a good place to start if you are unsure.
http://forums.moneysavingexpert.com/forumdisplay.html?f=97

black_paw

got bad eye infection sunday swelled up like some one hit me hard ! woke up with it glued togeter .OH calle dme Nelson all day ,,,managed to get up at 10 phoned doctor's at 10.30 and got appointment for 11.50 on a monday wow , got some antibio cream for it. been in bed most of the day and evening worn out from trip to doc. been up 1 hour now and now back to bed , still totally worn out half nelson !

kassandra

Careful_with_that_Axe wrote: »

Oh dear. I think I need to lie down again. Nurse!!!!

Hahahaha :rotfl: Is you spacey??? :rotfl:

bigzippy wrote:

Oh, and I'm STILL hungry. All the time. Forgive me if I'm wrong, but I thought the purpose of appetite suppressants was that you didn't feel hungry! :rolleyes:

Quite right dear. I'd give it a bit longer though. I found Tramadol suppressed my appetite. I know that's not what it is for but that was the only pleasant side effect for me. Unfortunately it made me too spacey and I need to drive to pick the kids up so had to stop that. Also it never took the pain away but then nothing has so far

raeh wrote:

kass you make me laugh :rotfl: sadly i would enjoy reading the mag but then i have a large garden and am consideraby older than you [did anyone read that with a harry enfield accent?? no?? its just me then!! ]

I did, I did!!!! :rotfl:

bigzippy wrote:

It's not an age thing, it's a condition thing. They list sensitivity to light on the symptoms list for ME at least (not too sure about Fibro) and ME and Fibro "come under the same umbrella". I do also think that people don't know how to adjust their headlights to the right height though too, which is especially annoying if they have those ultra bright xenon bulbs.

I have never seen it listed for fibro but I definately have it. That and noise, sometimes to the point where I freak out and shout at everybody to shut up cos I just can't cope with everybody speaking at the same time. I need people to speak one at a time with no other noise iykwim?

I get confused with the ME/Fibro thing. Do I have both? Are they the same thing? If not, does everybody with Fibro have ME? I read (was it on here?) that Fibro is predominant pain with fatigue and ME is predominant fatigue with pain. I feel like they are both as bad but my doc has never said anything about ME. Sometimes I feel I could cope with the pain if I wasn't so tired and other times I feel like I could cope with the pain if I wasn't so down. Most times I feel I wouldn't be so down if it wasn't for the pain and tiredness! One of the things I noticed when I kept a pain diary for the doc is that when I was writing stuff down, although I listed what pain was where, I generally related how I felt not to how much pain I was in but how tired or how low my mood was.

I feel like I'm falling apart I had my shopping delivered yesterday and bent over to pick a bag up. I felt something snap in my back to the left of my spine and was in agony. I managed to straighten up and get rid of the woman who delivered it. She was trying to insist on moving the bags for me so I could close the front door bless her but I just couldn't stand the idea of her coming in. Anyhoo, I've had pain in my ribs since and rang doc's yesterday aft. She thinks I've pinned a ligament and says I'm going to be in pain for at least a week. I never slept last night cos everytime I moved I was in really bad pain.

I asked her about the pain in my chest as nhs website was telling me to dial 999 :eek: It may be the new meds (neprosyn) so if I'm still getting it next week then I have to come off them. Got more meds to take with them though as they are having an effect on my stomach which is quite painful. It's mad that you have to take more meds cos the meds you take for pain gives you more pain elswhere :rotfl: What's all that about?

Hope everyone else had a good night. Is Unity still ill? What about Sharon? Have we heard from her over the weekend? I remember she said her hubby was ill but don't recall anything after that.

Look at me doing multiquotes!!! :T :T :T Most excellent! (who did the Bill/Ted voice???)

suep

Hi all, I think I over did it on the comp yesterday as my fingers and hands were in agony last night, Ive never had it so bad, I was going to try and avoid the comp for sa couple of days but couldnt resist popping in here to check on you all

Thinking about it now, BZ is right about the sensitive eyes being part of Fibro/ME, it might not be on any list but Fibro is known as a 'sensitive to everything' disorder, something ot do witht he Thalmus gland I think, I read this stuff and never remember any of it.
Kass Some doctors think Fibro and ME are the same illness, but they dont know enough about either of them to really know, they do have similar symptoms. I have days when the fatigue is worse anddays when the pain is worse, then other days when I have a migraine or one of the other lovely symptoms rearing its head. They are getting closer to understanding it now and have gone from thinking its a Rheumi disease to a neuro one so hopefully a prper test and proper meds to control it wont be too far away ( Im not holding out for a cure )
Anyway hun, I have to thankyou again for making me laugh with your Gardeners world mag :rotfl:
raeh - I hope one day you will have lots of lovely little grandkids to take to feed the ducks Try not to worry too much about the blood test results - I know thats easier said than done, but it could be a good thing, it could be showing up something treatable or something really minor, try to stay positive. I think its ridiculous that that you have to wait 2 weeks though :mad:
cwta My hairs horrible too, Im sure it used to be straighter, now it seems to have a life of its own and just sticks out everywhere, its also very thick, thank goodness for straightners and a daughter whos a hairdresser I hope your snotty nose clears up soon.

Ive not heard from Unity yet, she has been a abit down again but was going away at the weekend so hopefully she'll be back soon. Ill email her later and see if I get a reply.
Ive done it again and typed a big one, sorry:o my poor fingers are going to drop of at this rate :rotfl:

LameWolf

Hi folks, just checking in as I've been out of action for a couple of days (stonking 'orrible migraine, spent Sunday and Monday flaked out on the sofa:() Still feeling a bit bleurgh, and despite reading the thread, not holding the info in my head long enough to do sensibubble (Mr LW's word) individual replies.

So have a group ((((HUG)))) instead; normal service will be resumed....eventually.:D

Unity

Just a very quick post to say thanks for the concern - I am back :T. I've quickly gone through the messages and thanks to everyone who was concerned - you all know how it is.
Before I say what I've been up to I just wanted to say that I am so glad to see Sharon back - go girl go!!! :T and welcome to all the newbies.

At first I had a really nasty bug that couldn't have happened at a worse time and took some getting shot of. It basically meant a week of rest as I needed a full canteen of spoons for this past weekend as we had been booked for ages to visit DD2 down in the SE - about five hours drive away.

We had a really lovely time, it was great seeing both her and her partner and their new flat (first home together). We visited Cambridge, about an hour's drive away on Saturday, then on Sunday - Eltham Palace http://www.english-heritage.org.uk/server.php?show=nav.12744

Do have a look - as this is where they are thinking of getting married! We then went back to their local for Sunday lunch and started the drive back at around 4 p.m. Traffic was really heavy but we still got back in 4.5 hours.

Popping out now to pick up a parcel that came yesterday whilst we were at the knee clinic with DS.

I am having a rant now so feel free to miss this bit - if you feel so inclined, especially Sharon and Magenta, who I realise have far more to contend with. To be honest I would far rather this particular thing had happened to me - but you know how we mothers are about our children. DS has to have an operation to take part of his hamstring out which they will then use to make a new cruciate ligament to hold his knee in place which means drilling a hole through his knee to attach it.

I am very, very annoyed :mad::mad::mad: as the injury happened a year ago in Newcastle (whilst he was playing 5-a-side for his university) and he has done the same thing twice since and each time ended up on crutches! Unfortunately he was wearing a Sunderland football top which is a heinous crime:mad: - two warring cities, a little like Celtic and Rangers! The paramedics were great but he was treated appallingly by the hospital staff (they were openly scathing) despite us just trying to laugh it off and pointing out he was playing for Newcastle University when it happened! It wasn't x-rayed or scanned - in fact the 'specialist nurse' said he definitely hadn't done his cruciate ligaments and more or less accused him of being a wimp. He never saw a doctor, never had an x-ray or scan at the initial appointment or at the follow-up where he was supposed to see a 'specialist' - who then discharged him!:eek:

It now turns out he has totally ruptured his cruciate ligament, damaged both cartilages and because this was not spotted there is quite a bit of wear on the joint as well!

Luckily the specialist physio we saw yesterday really knew what she was doing, she actually showed me how his bones are easily able to move in opposition to each other - because there's basically nothing to stop them!

He's not a lad who complains so I was surprised to see him filling in the multi-choice form asking him how he is affected by his knee and circling the words 'severe' and 'extreme' for most questions including, how much pain he gets just turning over in bed!

The good news is that because of the severity he will see a surgeon in approximately two weeks and they are hopeful of getting this done in the summer when he's on holiday from university. He will be an in-patient overnight and on crutches for up to four weeks - away from sport for nine months and over-all it will take two years to recover.

Okay I am off the soap box now.

Careful_with_that_Axe

suep, pass on hugs to unity for us perlease? Sorry she's been down. Hope your hands improve. A good soak in hot water tends to help mine a little.
LW I'll talk quietly - poor you.

LameWolf

Good grief Unity that's terrible that your DS got such cavalier treatment. Words fail me! I wish him all the best for his operation, and hope that he will make as swift a recovery as possible. Welcome back, by the way - glad you got over your rotten bug in time to enjoy your weekend.

Careful_with_that_Axe

That is terrible Unity! How dare they - no wonder you are up in arms. That sort of thing really needs to be reported to to PCT in question. Hope you son feels up to doing that.
Big, big hugs - can sneak a hug in to you DS too? *cheeky grin*