Fibromyalgia (part 2)

Unity

Sharon that's brilliant :jI am so pleased for you - I had a feeling there was going to be good news, but didn't want to say anything . I don't think it's morbid at all planning your funeral - in fact I've had a list in the back of my Book of Shadows of various music tracks - it gets added to and subtracted from on a regular basis. I don't think it's a bad idea to have a bit of humour either. DS reckons he'd want The Jam "Going Underground" and DD1 always said Arthur Brown's "Fire" would be good at the crem. I've always wanted that Dylan Thomas poem "Do not go Gentle into that Good Night" or "I wish I'd looked after me teeth" by Pam Ayres :rotfl:together with Tony Bennett singing "The Best is yet to Come".

BZ - Your poor MIL2B she is certainly going through it. I would be inclined to get on to PALS (Patient Liaison Service) first before contacting your MP as he/she will no doubt ask you to do this before he/she gets involved. They are very good.

CWTA - Have a brilliant holiday, as you know I may (unexpectedly) be doing the same, if I am up to it. I reckon I might as well be in pain with a view as in pain with a view of the rain . Have you read "The Birthing House" by Christopher Ransom? If not I can send it to you - same as usual, you send it on to Suep when you've read it.

Suep - Fancy you remembering my fear of wasps :eek: yes they've featured in many a nightmare and it wouldn't be the first time I'd sprained my ankle trying to get away from them in my sleep:rolleyes:. I don't like spiders, crane flies or bats either.

Saucy - Suep is right - don't give up on the DLA. Firstly ask for it to be looked at again and point out that they have ruled in direct contravention of what your doctor has said. Register for an appeal and also get another set of forms and get help to fill them in. Your local council should have funded Welfare Rights Centres and they are very helpful - often suggesting stuff you wouldn't have thought of.

I had to finally relent and go to GP's yesterday as the pain in my foot had kept me awake all night and considering the meds I'm on, it must be bad to breakthrough. Anyway he could feel the lump on the side so sent me for an X-ray and gave me some Voltarol cream and tablets for if it doesn't work. I still think it might be another cyst in the bone - beggar.:rolleyes:

He's in favour of me getting away - but not to Turkey (£256 b&b for a week!) as he said he'd prefer me to stay in the EU - just incase. Tbh one of the alternatives is Corfu (love the place) so that's a possibility. We'll just pack a couple of suitcases and either book something really last minute Tuesday or Wednesday - or failing that if the weather looks promising here - we'll head off to some of the places we've been meaning to visit. Suep - you never know, after our trip to Arundel a couple of years ago we may well make it to see you yet! We are just going to stop off along the way so my back holds up.

Anyway I hope everyone else is keeping as well as possible.

suep

Hi all, I had gd again this afternoon and am exhausted as usual so I'll be quick
Im so relieved for you sharon some good news at last. :j

Unity we must meeet up one day, how long have we been friends now ? it must be about 7 years. I hope your foot gets better soon and you manage to get away for a few days.

cwta I spoke to Dad on Saturday and he was happy to be home, I havn't seen him this week as he has had the in-laws down from Scotland for the week, hopefully he's resting up and eating well, I'll ring him tomorrow.
I hope you and se have a great holiday and Im happy that your taking the laptop, we missed you last time.

Thats it, my brains gone to sleep and I cant think what else I wanted to say, hope everyone else is ok.

bigzippy

purplecatlover wrote: »

bz hows mil today? seems like it will be beneficial to ahve the nurse in frequently checking on her, mayb take a tad of the pressure of ou. dont forget to take time of from visiting/being taxi etc to rest...you cannot overdo it and exhaust yourself this close to the big day.

She's still not had the drain put in - some problem with getting the right doctor bloke and CT time at the same time...
I'm trying... thing is, all the running round now means a few weeks of proper resting before the wedding. Hopefully. :rolleyes:

purplecatlover wrote: »

lw i swear they are massive this year, i never knew such big ones existed, which is partly why i questioned if they even were moth.

There was a massive one in the en suite the other night...so I did the obligatory screaming for DF He came in and the moth took off flitting about. Then he says "oh, now he thinks he's funny!" and he turned round and it had settled on his bare back! :rotfl:

Unity wrote: »

I don't think it's morbid at all planning your funeral...

DF's always discussed with mil2b and his best friend what songs he's want at his funeral.... Apparently Amazing Grace on the bagpipes are necessary....except I hate bagpipes! :cool:

Unity wrote: »

BZ - Your poor MIL2B she is certainly going through it. I would be inclined to get on to PALS (Patient Liaison Service) first before contacting your MP as he/she will no doubt ask you to do this before he/she gets involved. They are very good.

Ah, tbh I actually cba with the writing to anyone... It's a good idea, if I had the energy...but frankly, I don't. And it's not my highest priority right now either, rightly or wrongly...:o

Sharon glad you got some good news

Everyone else :wave: ....I'm knackered now!:o

purplecatlover

morning, hope everyone has managed a good nights sleep.

kassandra

LameWolf wrote: »

Kass you put me to shame; my kitchen cupboards need cleaning out, but I think I'll wait til Mr LW is here to help.

I didn't do them. I figured bathing the kids and doing a load of laundry was enough for one day

I really wouldn't put you to shame anyway. The cupboards haven't been cleaned since I moved in and they are filthy and full of grease! I cleaned two when I moved in, one for food stuffs and another for crockery (and my cutlery stood up in a cup cos I haven't done the drawers either ), and I've just ignored the rest and lived out of those two :rolleyes:

I've got a really horrible feeling. It's one of those that you get after a nightmare. I must have been crying in my dreams because I remember looking in a mirror and seeing my mascara all run down my face and apologising or something. Then this morning when I was at the inbetween stage of consciousness, I heard the bedroom door open and I got a really horrible feeling of dread in my stomach which has stayed with me.

I wish I knew loads about dreams because I think they all mean something. Thing is though, when that happened this morning I hadn't just been dreaming and it woke me up iyswim so I don't think it relates to the dream where I was crying. I suppose if I analysed it, I could read allsorts into it. Just need to try and shake this feeling now.

How's everyone else this morning? It's really fresh here. It's been raining through the night and I got a lovely fresh smell when I walked in the bathroom this morning (I keep the window open at all times as there is no fan and moisture had caused silverfish to move in), I could tell it had been raining without looking out of the window.

I didn't have any twitches last night but that could be the wine that knocked me out. I didn't even take my amy. Mind you I never do when I've had a drink. I worry about how it would react with alcohol and would rather not find out!

kassandra

Morning pcl, hope you're feeling well this morning.

When I was rummaging for the kids some clothes the other morning - yes most of my stuff is still in bags.......and when I say most, I obviously mean all - well I was searching and moving stuff when a massive moth flew out and right at my face :eek: I screamed and did that thing that you do when you've just touched something horrible, you know what I mean, that running about and shuddering and wiping my face whilst making pffffft noises Blooming 'orrible things. I love spiders and most insects but moths, bee's, wasps and bluebottle's just freak me out!

So suep and unity, you were both friends pre-mse then? That's really nice that you've been friends for so long. I agree, you must meet up!

I agree about the funeral thing. I've said I want it to be fancy dress and have karaoke and I don't care if people don't agree with it. It's my funeral and it is so me, I love fancy dress and karaoke so there! I also want "things can only get better" by D-Ream but I might change it to the going out song and pinch "underground" from you cos I love The Jam and can't believe I never thought of that before, it's the only Jam song I know off by heart all the way through! I do worry though, that someone other than my sisters will be left in charge and won't do what I want (espesh if it's my dad) I don't want a coffin or a church service and I know he would insist on that. I should really look into it and see if I can make sure things are done my way.

Not long now bz :eek:

Unity

Suep - Well, I won't be seeing you next week chuck as we have booked a last minute deal to Rhodes staying in a lovely small hotel only 59 rooms - with a pool in a small resort called Pefkos just 200metres from the beach! :T:T:T:T I got up this morning, looked at the rain and was spurred into action. We travel back on 26th August and flight gets in at 1.30 in the morning of the 27th so twelve hours later I will be having my facet joints injected - hope there are no delays - but there seldom are on night flights and it is with Thomson. The girl at Hays travel has arranged my mobility seat, I just have to tell them at check in when we arrive. The place looks lovely - no nightlife - other than restaurants and tavernas but fairly close to Lindos. I can't believe I've done it! It's not like me to be so "spur of the moment!":D

CWTA - I hope you get the same weather in the Scilly Isles as we get in Rhodes - providing of course there isn't a Monsoon in Rhodes :rotfl:.

Black Paw - Can those of us about to leave these shores borrow your angel?

BZ - A quick phonecall may be all it takes to PALS to get things sorted - a stitch in time and all that . After all it would be unthinkably awful to have DF maybe think about postponing the big day because of MIL2B's health. He certainly won't want to get married without his mum there. I know you'll be insured, but as we all know there's been a lot of planning . Poor love, I really feel for her, it must be so painful to have these things bursting all over. I do hope she feels better soon and that she gets a good prognosis for the future.

I never had a MIL as she died when DH was just 19 (cremated on his birthday:eek:) so I never knew her - but by all accounts she was a remarkable woman and must have been to have such a wonderful son:T.

Well I guess I'd better start now if I am to pace myself and get everything done in time. The last thing I want is to have to cancel at the last second because I have run myself ragged - so if I don't get back on here, I will think of you all whilst lazing around doing not very much at all and watching the waves lap against the shore as I have my Shirley Valentine moment :cool::D.

Unity

kassandra wrote: »

Morning pcl, hope you're feeling well this morning.

When I was rummaging for the kids some clothes the other morning - yes most of my stuff is still in bags.......and when I say most, I obviously mean all - well I was searching and moving stuff when a massive moth flew out and right at my face :eek: I screamed and did that thing that you do when you've just touched something horrible, you know what I mean, that running about and shuddering and wiping my face whilst making pffffft noises Blooming 'orrible things. I love spiders and most insects but moths, bee's, wasps and bluebottle's just freak me out!

So suep and unity, you were both friends pre-mse then? That's really nice that you've been friends for so long. I agree, you must meet up!

I agree about the funeral thing. I've said I want it to be fancy dress and have karaoke and I don't care if people don't agree with it. It's my funeral and it is so me, I love fancy dress and karaoke so there! I also want "things can only get better" by D-Ream but I might change it to the going out song and pinch "underground" from you cos I love The Jam and can't believe I never thought of that before, it's the only Jam song I know off by heart all the way through! I do worry though, that someone other than my sisters will be left in charge and won't do what I want (espesh if it's my dad) I don't want a coffin or a church service and I know he would insist on that. I should really look into it and see if I can make sure things are done my way.

Not long now bz :eek:

Hi Kass,

Oh yes, Suep and I go back a long way - it's at least seven years I reckon, maybe even more.

I was just going through a drawer the other day when I said to DH - "When I die I want to be buried in my Egyptian gear! I bought it when we were on a Nile cruise and it's a floor length black dress embroidered with Egyptian Gods, scarabs and lotus blossoms and it has the black scarf head dress with gold dangly bits fringing it.

When my dear dad died I was determined to give him a good send off so his funeral music was very much of his era - Glen Miller (Moonlight Serenade) The Ink Spots (If I Didn't Care) and Fred Astaire singing "They Can't Take That Away From Me" - there wasn't a dry eye in the crem. He loved singing himself and ballroom dancing so it was a fitting tribute especially as being ex-army he had the Union Jack on his coffin and was carried in by his friends from the Fellowship.

I must admit I have a particular Peter Gabriel song - played at the end of the film 'City of Angels', "I Grieve" and that is deffo on my list. I like the idea of fancy dress - I was thinking of a Rocky Horror style funeral :rotfl:.

purplecatlover

kass you can state your funeral wishes in your will (which should be free for you to make as you should be entitled to legal aid), not sure if that means they legally have to do as you want or not though.

unitythat sounds like its going to be a lovely holiday, ahve a good time.

yesterdays moth si still alive and tormenting, but lookign horrid and i cant put it out of its misery. it moved form the pavement to in front of my front door, i had to walk round the bins to get in adn avoid it lol.

LameWolf

purplecatlover wrote: »

kass you can state your funeral wishes in your will (which should be free for you to make as you should be entitled to legal aid), not sure if that means they legally have to do as you want or not though.

That's what I've done; I'm having The Lakota Womens' Power Chant! I'm not worried about not having my wishes adhered to, as the only person who'll give a flyin' wossname about it is Mr LW, and he knows if he doesn't do as he's told, I'll come back and haunt him!:D

Unity have a great holiday - will you be incommunicado, or do you think you'll be able to get online at some point?
I never had a MIL (this time round anyway) either; she died 2 months before I met Mr LW. But I feel a bit of a connection to her nevertheless; Mr LW talks about her a lot, and says she'd approve of me because I make him happy. Also we have a lot of her stuff, which we use regularly; mainly kitchen equipment, but also a lovely crocheted blanket which I use to cover me when I need to lie down on the sofa in the winter. LOL our jam cauldron is a family heirloom - first belonged to Mr LW's grandma, then his mum, now we have it!

Uh, oh, I'm waffling. Will shut up now.:D