Fibromyalgia (part 2)

purplecatlover

bz you know what i said to kass a page or two ago when she apologised for being neglectful? it applies to you as well, (and everyone else for that matter!)
i agree mp is a good idea, also PALS at the hospital are a good place ot go to complain to.

kassandra

Careful_with_that_Axe wrote: »

I'm rather the same lw. I've always been known as the unconventional conventionalist as (I'm sure I may have said this before ) I love shaved heads, piercings, tattoos but also comfy shoes and elasticated waist trousers

:rotfl: I'm the same! At one point I had my nose, eyebrow and bellybutton done and had my own dress sense. Friends would say things like "they're Kassy shoes" Yet my favourite saying is "function over fashion" and give me my comfy shoes and my cardi anyday!!

I've been having more frequent and extreme twitches of late. Last night my arm went that much that I smacked the wardrobe. I was asleep too and it woke me up. Later during the night, I dreamt that someone smacked me in the face with what looked like a big black hole. I heard the smack and felt the pain and it woke me up. My body just bolted upright!! I can only think it must be the tablets and hope it settles down although it seems to be getting worse! I must look really strange with how often I'm getting them but it's worse when I'm relaxing. Anybody else experienced this on Lyrica?

Must go. I've just been informed that a six year old wants me a fight in the back street :rolleyes: :rotfl: :rotfl:

suep

Kass I had really bad muscle twitches while I was on Lyrica, it got so bad especially at night that dh started talking about seperate beds :eek: I also got bad dizzy spells and a few times even had to pull over while I was driving as everything was spinning around me. I came off it after the nerve pain came back despite being on almost the highest dose, Ive been off it for about 7 weeks and am still getting occasional twitches and dizziness. Talk to your gp about it.

BZ I hope mil2b is going to be home soon and stay healthy for the next couple of months, is there anyone who can keep an eye on her while your on your honeymoon ?

LW Im a bit more conventional nowadays but am an ex punk as is dh, although he's not really ever outgrown it although his hair is normal now, he used to have a mohican and my hair was most colours although never green. It's rubbed off on dd who's hair is bright red at the moment :rolleyes:

cwta Im glad your dads ok and his wife will be home tomorrow, she'll be scared to leave him again. I hope you get a restful break, I know Ive asked you before, but what day are you going ?

It's very hot and muggy today, Im off for a shower to freshen up in a minute

Careful_with_that_Axe

sue We're off on Saturday morning at some ungodly hour! Am taking mini-laptop with me, so will be easier to stay in touch this time round. May even persuade s/e to say hello!

How is your Dad doing sue?

kassandra

I hope you both have a brilliant time Auntie Axe xxxx

bigzippy

suep wrote: »

BZ I hope mil2b is going to be home soon and stay healthy for the next couple of months, is there anyone who can keep an eye on her while your on your honeymoon ?

I reckon she'll be in for the rest of the week. Apparently it is the psoas abcess back, already, ridiculously quickly! She only had the drain out mid-June for crying out loud!! :eek: It started growing out to the site of the drain, rather than the other way round, and then burst while we were there! :eek: BLEURGH. Made her feel much better tho, and in less pain, along with the IV antibiotics and sliding scale for the insulin. They're going to CT guide the drain in tomorrow and I've asked that they make sure this one's more discrete (and they actually strap it to her properly) this time, esp with the wedding coming up, as they are talking about leaving it there for the foreseeable future...potentially permanently :shocked:

It's sort of a good thing tho, cos at least if she has this drain in then the district nurses have to go round at least a couple of times a week and that in itself will give her more support...especially while we're on honeymoon. Her sister is coming over this weekend to see her, so I think I'll have word in her shell....:rolleyes: I actually have been asking for about 18months about them sorting someone out to be with her while we're away....whispers in the wind :cool:

Careful_with_that_Axe wrote: »

How is your Dad doing sue?

Wot she said

sharon59

sorry to hear BZ about MIL but maybe now you will be able to enjoy honeymoon with less worry now she will be getting support-every cloud......
Sorry not caught up with eveyone for few days.scan went ok but it took 3 people a total of 6 attacks to get needle in for dye -last Dr thought it would be ok without but no way said l keep going- after drinking a litre of foul fluid-sitting in waiting room like idiot for 1 1/4 hrs doing it and then being told tomorrow it wasnt clear enough cos no dye used!It went in 6th time=l was pretty emotionall by then!
Went home to a fab custard slice then went to bed to hide!
Today my so special friend Seaside has been and she has helped me finalise my funeral plans-lots of tears as well as laughs -but now l feel its done and l can put it behind me-but when the time comes its going to be easier on DH.
Well my latest fate is in the scans sat in a hospital computer tonight and nothing can change it now.
so 10.30 tomorrow all keep crossed that l get a plan.
Am going to go to bed now with a sleeping pill or l know like last night it will be a long lonely and imaginitive-in my minds eye night.
sorry for morbid most.thanks for the fact tthat l know you understand though
love to all xxx

black_paw

sharon your so,so very brave in dealing with all the things that are going on with your self, i just want to give you mega ((hug ))) and a warm heart medal,, will send my angel to look over you and tomorroe will be a good day for you. xxx coco on way to for night nite drinks to you

purplecatlover

i hope you do get a plan today sharon and that you did get a good sleep last night. what paw said too.

Careful_with_that_Axe

What black paw said with knobs, bells, whistles, morris dancers and a village idiot on top *g*. You are being so brave having to deal with all this and I thank *insert deity of choice here* that you have Seaside there to be with you as she sounds absolutely wonderful.

bz Sheesh!! Poor MIL2B. She deffo needs better care from the hospital this time round. You poor thing having it burst when you were there - not nice at all.
You don't need all this so close to the wedding, so I hope you get some result from whispering in Sis's ear this weekend.

I decided not to be selfish and phoned Dad and asked him if he wanted me to take him out to lunch today. The delight in his voice told me it was the right decision to make. Yesterday I reached the point where I was so tired I could have cried, but I slept quite well so not so bad today.

Must start thinking about packing!
Hugs to all