Fibromyalgia (part 2)

purplecatlover

theres a couple of threads about it on the benefit board too i discovered...its disgusting, i could easily jon the rants about it since it is my dla that is going to pay for my house fairy, and that pays for my gym membership. im sick of them picking on the frail and disabled, not thatit was any better when they were pickiing on single morhters, or jsa claimants but still. i am glad benefits and work got so many people signed up. we can see how helpful social services etc have been in here to some people and not to others, it will only get worse if it all comes down to them as i bet they wont let them emplo more staff to deal with extra claims for help etc. k ends my soapbox

whitney punished me, she poohed on the doormat, now i know im forgiven.

unity yay for the cancellation, not so so long to wait now then. just as well it came before you booked.

raeh you make sense, at least to me....its easy to forget though until afterwards when its payback time. hope your enjoing the hols.

sue thats great about your dad, and im pleased you got to go see him too. hopefully form here on it will look up for him (i didnt miss it earlier for a change, just got distracted and then hit post without finishing writing stuff).

this mornings post included my car tax renewal meh oh well better now than april when ive been havig to do mot and tax at the same time every year for the last few.

Careful_with_that_Axe

Unity So pleased you are getting the pain appointment soon - must be a relief for you just knowing it's scheduled in. Also, Yay at the referral to the Rheumi. Your list of symptoms/difficulties should come in really handy then. I had been wondering how things were with you, but figured you would advise when you were in the mood or had the time.

lw The slugs take no notice of my swearing, but I think the neighbours might *g* Everytime I come across one, I can't help saying "Ooh you !!!!!!" *g* They are seriously getting to me.

pcl Yup, definately punished and forgiven.

Sister piddled me off today -emailed her and said how low Dad was (subtext being pick up the phone to him every so often) and got an email back saying how lucky I was to have the freedom to spend time with him! Hmmm, yup, aren't I lucky to be poorly and unable to work full time.

Also advised her it's Dad's wife's 70th B'day and would she contribute towards getting her a new laptop - in her most generous offer, she agreed to chip in £20. You know the saying, she wouldn't etc on you if you were on fire? *sigh*

purplecatlover

cwts have you tried salt for the slugs? she would soon change her tune if the positions were reversed, if only it was as nice to have the freedom fo not working as people think it is.

sharon59

hi peeps!CW we all have someone like your sis in the family dont we-just wish sometimes we could let them truley have 24 hrs of our life ......
Glad dad improving Suep and Unity great news on the appt-it does pay to be polite and also having your name have a ring of familiarity when somthing comes up can jog secs mind.
love to the rest of you!
we have had warm and overcast today but just pleased for it to be dry!
Went Day unit and they were great.Have discovered the oncologists sec is fab and offered direct line access and will sort appts or anything for me.Have now a definate appointment for Thursday morning so will be seen after the BIGWIG meeting so cant ask for more than that.
Did fabric painting on tshirt today quite pleased with mine-blobs that are bit like abstract poppies-def a one only!!!!!!!!!

Careful_with_that_Axe

sharon aka The new Van Gogh *g*
You must be a favourite patient to have direct line access!

LameWolf

CwtA you could try beer traps for the slugs. Best use I can think of for Greene King IPA.:whistle:

Careful_with_that_Axe

lw Thanks. I keep forgetting about beer traps. Will organise that tomorrow.
Hope your knee is not too painful and that you are resting it as much as it needs (fat chance! *g*)

suep

Sharon Good luck for next Tuesday and Thursday, I'll be thinking of you.

Unity Im glad your app's come through and isnt too far away now.

Moominda Sorry I must have missed your post earlier, welcome

Ive had g/d again this afternoon and am almost completely brain dead but I thought Id better pop in and say hi so I dont get too far behind, this thread moves so fast. Hope your all well.

suep

I thought the cat lovers would like this

http://blogs.catster.com/the-cats-meow-a-cat-and-kitten-blog/cat-ladders-around-the-world/2009/08/05/

Unity

PCL - I hope you've had the e-mail to tell you that over 5,000 people have signed up to the petition against them scrapping DLA :j. I wonder how many members you have been personally responsible for? To think they worried they probably wouldn't get the 1,000 in a month and they've got five times that in the first 24 hours :T:T:T. Good on you girl! Yes, I can't quite believe that it's only three weeks until the injections - I'm so pleased :j.

LW - Thank you so much for the offer of positive vibes, I will take you up on them as I am quite "positive" they do help:T. Like I said, it's not a very nice procedure made worse by having to lie very still on my front. It's done in theatre with an X-ray machine positioned over my lumbar spine. They inject some local anaesthetic and then they take a long thin needle and working with the X-ray they insert it and head towards the facet joints on the lumbar spine. It gets a bit difficult with me because I have the old pelvic fracture which has caused an overgrowth of bone - so they need to work around this, then I think they use lignacaine to freeze the nerves. Once this is done they go in with the epidural and try to find the sciatic nerve - this is done with a huge pad (the sensation is like a large TENS machine) and they stimulate the nerve to make sure they have the right one, so I can feel it right down my thigh, my calf and into my foot - then they numb it as well. The whole procedure is uncomfortable and makes me feel a bit nauseous _pale_ - but the feeling in the recovery room is second to none (especially as the local anaesthetic is still working ) as the spinal pain disappears. After thrity odd years of pain on a daily basis, this is really something .

CWTA Try grapefruit skins for the slugs;) my aunt used to swear by them. I haven't seen a rheumi in probably five years or so - so I'm hoping it might be productive. I had one day (yesterday) when I felt back to - what I would call normal, for me and I thought it was the end of the flare (probably what prompted me to look at holidays) but today the blisters are back, together with swollen glands and the joint pains have returned with a vengeance. Added to this is a really bad pain in my left foot. It's not the joint, it's running along the outside edge and I'm finding it very painful to walk on.

I met up with a friend at lunchtime to excahnge knitting magazines. DH dropped me off, as although it is quite close, it is up a steep hill and I said I would walk back. I rather wished I hadn't as my foot was hurting so much - it took me ages to walk 500 yards :eek:.

Suep - well here's one cat lover that thinks it's great!

I have started on the knitted squares for this: http://www.macmillan.org.uk/Get_Involved/Worlds_Biggest_Coffee_Morning/theknitter.aspx
so far I have completed one :embarasse. Mind you a few people have been asking why cancer patients would need blankets and it is a valid point - I am sure my good friend with BC would prefer I knitted a cover for her wine bottle .

I am shattered again now so whilst I am still making some sense - hopefully anyway I'm going to get on with the knitting .