Fibromyalgia (part 2)

suep

cwta thats a bargain, well done on winning, I never see any good bargains on ebay.

pcl did you say you were taking one of your cats to the vets this morning ? I hope everythings ok.

I've been sorting through the food cupboard ,fridge and freezer today and making a list of everything, the cupboard is so full up Im sure I can almost skip one weeks shopping at least, there was stuff I didnt know we had lurking in the back and 12 cans of beans ! (they've been on offer at asda ) I've just finished a menu plan for next week using up as much as I can from what we've already got, I feel all virtous now except for the nerve pain thats started up on my left side from kneeling on the floor while sorting the food out.

bigzippy

Well done on the 1p win Cwta.

I'm EFFed off. They lied to me. I went down to my wheelchair assessment appointment and she went through all the same questions that were already on the form I filled in. Said that the Gp didn't feel I would benefit from it (which when I had her read the Gp letter it didn't seem to say that, it just didn't explicitly say that I would). Said that I didn't meet their criteria. I got rather upset - it's that whole thing of us having to continually go through this rigmarole of putting ourselves out there to apply for what should rightfully be ours but having to go through somebody elses judgement process of whether you're too ill/ill enough/not ill enough/faker etc. It effs me off. She said she'd consult her manager but I'm not holding my breath. I was so angry/upset/emotional when I came out.

Anyways, from there I went to the hospital to drop mil2b's clean nighties and underwear off so we don't have to go tonight (yay! A night off!!). She was really upset and weepy though. Wants a shower but noone would go back and tell her whether it was working today, wants her feet washing and her hair washing and noone's been back to say whether they'll do it, let alone done it for her. She's sick of it all and I can understand why. Apparently they wouldn't put her slipper socks on for her the other day because "they didn't want to take her independance away"!! :shocked: Like, !!!!!!?? She can't raise her legs let alone lean over her painfully distended belly to reach to do it! :mad: Idiots. I've still NO idea why they're still feeding her when there's nothing come out the other end since a week saturday ago! (Tmi?? :rolleyes:) Hopefully she'll feel better after the drain goes in (to the abcess) tomorrow...:cool:

Then I went to Tesco and took my stuff back and tried to avoid buying anything else (you can guess how well that went...! I bought my dad's bday card, father's day card and a dvd for £3 (Night at the museum)). Then I came back to town and took back some stuff to Asda and ended up coming out with veg and stewed steak for hotpot and another £2 dvd (Evan Almighty) (on the basis we could give him that for his bday and keep Night at the Museum :shhh:). Then I went in Next to see if I could get my linen pants (which I have in brown from last year) in black...but although they did them they didn't have anything above a size 10 :rolleyes:. Then I went into town, went to Natwest and took some money out, took it over to HSBC and payed it in to my flailing overdraft and remembered that I'd forgotten to tell Natwest I've moved :rolleyes: so I made my way back to Natwest via a few pit stops...I went to Boots to see what I can spend my bday giftvoucher cards on and to the florist in town (which told me the same guff about purple gerberas) and then got a pastie and a giant cookie for my lunch to take home. Can you tell I was trying to make the most of having the car??

I'm now debating whether I should go for a nap and attempt to pick DF from work later/go for a nap and not pick him up from work/not have a nap and try and stay up til tonight and go/not go for DF...??

bigzippy

Suep that's most virtuous! I'm rubbish at meal plan malarkys...

Careful_with_that_Axe

bz Aww, I am so sorry you had that upset today. I'm not at all surprised that you got all emotional - I hope that was in front of them and made them feel bad. 'Ugs to you lovie.
Perhaps you could go back to GP and tell him what happened so he can telephone them and put a rocket up their collective wotsits. I'm glad that you treated yourself to a couple of bits and pieces and hope it made you feel a little better.
Whatever else you decide to do - do take a nap? Please?
Your poor MIL2B. Maybe it's time for you and DF to see the consultant when he deigns to visit her bed and talk to him about the care? And get Social Services involved.

pcl Hope all went OK at the vets - for you and the purr babies. *g*

suep that is virtuous of you! Well done!
I am really fussy about baked beans and only really like the M&S ones
They're 45p so I make sure I make two meals of beans on toast out of them.
I'm rubbish at meal plans too as my appetite is weird and I have to fancy something to be able to eat it. Maybe I've given into it for too long and need to just get on and eat whatever.

I've got a thrifty week meals wise as the hens are laying again so I have 12 eggs.

Good job really as when I went to Tesco to pick up garden chairs etc that I ordered I accidently bought a computer desk.
It was only £17.50 though
Shame a dress and a DVD slipped in the trolley too, but the total bill was less than £30 so I can live with it and I may take the dress back.

Gonna sit outside for an hour or two while the chook is cooking in the oven - no not one of the live ones!

bigzippy

Cwta, I cba to see GP. I feel a bit betrayed by him tbh I was upset infront of her, yes. But I doubt it'll do any good. I did point out (tearfully) that there's no way I'd swallow my pride and put myself through all this rigmarole, or even use a wheelchair at supermarkets etc, if I didn't think I'd benefit from one!!

The treats weren't really treats either...they were presents (apart from the boring £2.50 grey vest top) for dad for his bday and father's day. I did pop into New Look but they didn't have my size in the top I spotted and therefore wanted :rolleyes:

Nap hasn't occurred yet, but I did tell DF I wasn't going to pick him up (although I will get him from the bus station in town) and I've been camped out on the couch since I got back (apart from taking washing in, hanging washing out and shoving more washing in the washer :rolleyes:)...:o

Mil2b is a bit stranded tbh. They won't do anything til the all important drain has gone into the all important abcess. There's no chance of us seeing the consultant cos none of us knows who he/she is and I have the strangest feeling that they [STRIKE]deliberately[/STRIKE] [STRIKE]accidently[/STRIKE] on purpose schedule visiting times outside of consultant working hours :rolleyes: Not sure what Social Services will be able to do either...??

I'm fussy about beans too...I'll only happily eat Heinz.:o I know what you mean about fancying food before you can eat it. Although....when I'm at someone else's house I'm usually pretty happy to eat what I'm given so long as there's no choice...?:cool:

Lol @ things slipping in the trolley...

Careful_with_that_Axe

bz Wouldn't surprise me if you were right about the consultants being well out of the way at visiting times. When Mum was in hossie, we spoke to staff on the ward and organised a visit when the consultant was gonna be there, although he wouldn't speak to us, we got to talk to Registrar.
What Social Services did with Mum was set out a care plan for when she was in hossie and when she got home - you know - shower once a day, exercise feet, walk at least 20 paces etc etc. When she was at home someone came in once a day and made her brekkie, got her washed and dressed, washed up and prepared a sarnie for her lunch. If your MIL2B's finances are as limited as you have indicated, you can get funding for the care from the local authority.
If you want me to look into it for you and gather the info for you to look at I'll be more than happy to. Sad situation.
Did DF have a word with nurses about her care at all? It's difficult in that situation though as it feels confrontational. Good luck with it all hon and lots of ugs.

Careful_with_that_Axe

Give you all a laugh - I went to sit outside on the old and decrepit lounger. I have to put it otsude the front door next to the smelly drains, but at least it's in the grounds where the flat is rather than on the road side iyswim.
I sat down on it and it promptly collapsed underneath me and I couldn't get up again!
Much puffing and panting later, I managed to struggle to my knees and came in.
I was red from the sun thank you, not blushing *g*

Unity

Careful_with_that_Axe wrote: »

Gonna sit outside for an hour or two while the chook is cooking in the oven - no not one of the live ones!

CWTA Do I take it you have WEATHER? of the nice kind? :eek: You jammy person . I know the weather forecasters said that this summer would be better than last and I'll admit it - they were right. I just sort of hoped it would last a bit longer than four days though :mad:.

We are back to [STRIKE]winter[/STRIKE] normal, here - cold, damp, overcast so bang goes the good mood .

To those who worried I might be doing too much, fear not - when I said that I can't stay in when it is sunny, that doesn't mean I necessarily go out . It just means that I go from my normal position of sitting on the sofa with the laptop, to sitting out in the garden where it is too sunny to use said laptop . I learned many moons ago that I can't do two days out one after another so last Friday was Alnmouth, this Tuesday was York and the good days in between were in the garden.

Suep - You deserve a medal - the last time I planned meals and used stuff from the store cupboard was when I was running down the old freezer prior to delivery of the new one. I am nothing if not lethargic Tbh it is one of those days/weeks when I feel very disinclined to do much of a worthwhile nature, so I must find my motivation key and use it.

BZ - Good luck with hospitals and Social Services where MIL2B is concerned, is she very old? Believe me when I say you'll need to stand your ground unless things have changed greatly. My mum was terminal with breast cancer and secondary bone cancer when my son was born - she'd fallen and broken her arm in two places (her GP failed to diagnose these) then she fell again and broke her thigh. The hospital's main concern was to get her up, get her mobile and get her home:eek:. Despite both my dad and I both being disabled and me having a four week old baby, we were expected to cope:rolleyes:. No doubt they still wonder just why they were found to be negligent.............;). Don't even get me started on consultants - although:-

What's the difference between God and a consultant?


God doesn't think he's a consultant :rotfl::rotfl:.

bigzippy

Unity I'm sure from the way I talk about her everyone thinks she's really quite old, but in truth she's only 63...living the life of a... I dunno.... 83yr old??

bigzippy

Cwta I had a word with the nurse that's caring for her (slightly different uniform, looked more in charge) this morning and asked her to watch her today cos she looks so miserable, and asked her to make sure that she got her hair/feet washed today as she'd requested and hopefully that would make her feel a bit better...
If you happen to stumble on any relevant info that could be helpful, that would be great, but don't go out of your way...