Fibromyalgia (part 2)

bigzippy

Tvm Cwta

I've just had a weird call from mil2b saying she's had a call from DF's boss at work...so of course my first thoughts are that he's either ill at work, or that his other job is after him. Neither were right - it was his boss at the office job saying that they've got a pic of him but want one of me and of the dress and are planning something for him to do with the wedding... I'm confused. Why would they want a pic of my dress? And do they seriously think that I'll give it them pre-wedding?? They asked what would be the best gift to give and mil2b (sensibly) told them money. I don't think I'm supposed to know about it, which is amusing as mil2b is practically no help without me or Rob to do the techy communications for her I've emailed her (the boss) so we'll see if we get a reply... Mil2b didn't even take down her email address properly...just the website bit! Typically.:rotfl:

bigzippy

P.s. Oh and I finally got round to ringing up for a blue badge form! :dance: I'm so good Oh and did I tell you I got a letter saying that I'm at the top of the waiting list for my wheelchair and that I just need to make an appointment for an assessment and I should be able to take my wheelchair away with me...:dance:

LameWolf

bigzippy wrote: »

I should be able to take my wheelchair away with me...:dance:

That'll be good; you'll be able to do so much more than without it.

sharon59

Trialia-sorry you have such bad toothache-its worst ever pain.
suep-I hate losing my independance with a passion and fibro certainly makes you feel bl**dy useless a lot of the time.I find loved ones also put restrictions down-albiet well meaing as they know the end result but l say bu**er off and let me have fun -even if l spend next week in bed-for me its worth it!
Beeno ut with my charity shop collegues today and it felt soooooo good and l forgot about fibro and cancer and bills -highly reccommended!
LOVE TO EVERYONE ELSE!

poohbear59

Trialia wrote: »

Thanks... It hasn't gone yet. Jaw's still crazy sore, some of my teeth hurt and I feel sick. It's so frustrating - I cannot seem to find a dentist who has any experience with my health issues who can take me on. The one I found who IS taking new patients is on the other side of town and has no clue about fibro or EDS/HMS, but told me it looks like I may lose another two molars if I'm not able to be treated soon.

Oh, and the dental hospital said they won't treat me. *swears again*

Its not neuralgia is it? Thats how my FM started! Trigeminal I think. Ask your doctor as there is medication other than pain killers that work on some people. Luckily I am one of them, I just have a continual dull ache there now. So much better than it was.

bz My DD was married last month and we went very MSE, used a friend who taught family how to make buton holes.They are very fiddly but people with 'normal' hands should be able to manage. I made one too!! The groom wore mine.

Forgot to say that we were recommended from the flower ladies at the church to say we were buying flowers for a church and we got a big discount on the flowers. If you say wedding they charge more!! And we weren't lieing as it was in a church!

Careful_with_that_Axe

Just a link to a major giggle that really resonated with me being a cat lover and coming from a family of engineers.
http://www.youtube.com/watch?v=mHXBL6bzAR4

bigzippy

LameWolf wrote: »

That'll be good; you'll be able to do so much more than without it.

I certainly hope so. I'm also hoping the Blue Badge isn't an @rse ache to get now... I have no clue what to put on the form...any pointers?

Suep I know what you mean about giving up your pride for the illness....I was asked by "my best friend" on Sunday whether I wanted to go to Primark with her today...which normally I would say yes, especially as I've wanted to go for a few weeks, but as I've not exactly been on form lately I knew I shouldn't push it by standing about and walking for like the 3hrs it takes to get round Primark (I know, it's extreme :rolleyes:) so I said I was free but didn't think I'd be physically up to it but that I should get my wheelchair soon. Now, it's worth mentioning that I've never asked anyone, or had anyone else, push me except DF and that took a looong time for me to swallow my pride even then (and I still don't ask for the chairs myself, I get DF to do it and I still get a bit embarrassed)... So I really didn't know how to approach it with this friend. I didn't know whether I should ask her, or whether I should leave it til I got my chair, or what... It's a new situation to deal with and decide how much control I can pretend to have over this condition... In the end she sent a message asking whether my chair would be motorised or not and when I would get it... I said no it wouldn't be motorised and *deep breath* would she manage pushing it...she said she'd give it a go...but of course now I'm paranoid about how much me+chair will weigh

bigzippy

poohbear59 wrote: »

bz My DD was married last month and we went very MSE, used a friend who taught family how to make buton holes.They are very fiddly but people with 'normal' hands should be able to manage. I made one too!! The groom wore mine.

Forgot to say that we were recommended from the flower ladies at the church to say we were buying flowers for a church and we got a big discount on the flowers. If you say wedding they charge more!! And we weren't lieing as it was in a church!

Ta pooh. I did think that I would more than be able to manage the buttonholes - as it looks very much like it's just the stem head with floral tape and a pin... but then I remember that I'm being put under house arrest for the week before the wedding! Mil2b's idea to keep me as well as possible for the day :rolleyes: I think if we don't have any joy I might have to get some of my more crafty minded rellie's roped in to do some though...:cool: It's the prices of the bouquets that bother me more tbh. I think it's extortion to try and sell what is essentially 4 bunches of -allbeit pretty- flowers for £155!! _pale_:shocked:

poohbear59

bz I have sent you a pm

julietiff

Hi all,
pretty new to mse but was Dx last march with Fm after many years
of pain